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01/08/2008 03:05 PM

testing for Fyromyalgia(page 2)

froggy
foggy  
Posts: 135
Member

Ha.....Most of the time I was told to try Aleve or Advil. But having to support a family I kept pushing myself. The bills just keep coming in. Anyway, it was hard to go see the Doc every time I got hit. So I just kept pushing. And then theres the lull between visits, tests, being referred to Specialist, more testing, Phychiatric Counseling. And then you just dont care anymoreSad Nobody believes you. Theyre all scientist they want it in black and white. I cant tell you how many times Ive gone through this without medications before being properly Diagnosed. Pinch Well enough venting I have learned a lot over the year tho and thats, to pace myselfCool
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01/08/2008 03:13 PM
spruce1
spruce1  
Posts: 848
Senior Member

Froggy,

Oh I agree! It's like just because they don't see a bug under the microscope, it just isn't real.....frustrating!!

I hope you realized I wasn't angry with you...just the whole system and what I've been thru. I so glad now I get some help, how about you, have you been given anything for your pain and sleepless nites?

Spruce

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01/08/2008 03:20 PM
coffeeinTN
TeainTN  
Posts: 574
Member

someone ask about the book i mentioned. it's "Fibromyalgia & Chronic Myofascial Pain' A survival Manual by Devin Starianyl and Mary Ellen Copeland. It"s a great book. everyone should get it. ImmuneSupport.com is also a great web site for info. they sell vitamin and mineral suppelments that are a great help for me. I would not mention it if it were not a huge help to me.

s


01/08/2008 03:26 PM
spruce1
spruce1  
Posts: 848
Senior Member

Thanks Coffee,

I'm gonna try and get it soon. Do you think it would be in the library?

Spruce


01/08/2008 03:42 PM
hanginon1
hanginon1  
Posts: 68
Member

CoffeeTN,

Thanks so much for all the info! I just ordered the book off of Amazon.com for about $14.00. And now I'm going to check out that website. It definitely seems like we have to be the ones to find the ways to help ourselves. I can relate so much to what Spruce is going through today. Why do they think you suddenly don't need your pain meds anymore. My doctor helped develop cymbalta and keeps pushing more of it on me, when more is not helping, although I know the original dosage helped me sleep again and took some of the extreme morning stiffness away. The muscle relaxer and pain med is what gets me through work. If I don't work, no insurance. Arggghh... I take vitamins but I'm curious to see what you are taking.


01/08/2008 04:30 PM
froggy
foggy  
Posts: 135
Member

Hi Spruce. No No I know you werent mad at me. Beleive me I am one person who never jumps to conclusions. But hey yes I have flip-flopped between Lyrica and Neurontin I also have some Ami for sleeping, Tramadol And also take some special herb when it get unbearableWhistling

01/08/2008 04:46 PM
spruce1
spruce1  
Posts: 848
Senior Member

Well Foggy,

I think we can be thankful that at least we have some help. So many struggle real bad with the pain and misery and have no help!

Spruce Cheerful


01/08/2008 06:57 PM
shar
shar  
Posts: 74
Member

Coffee, thanks for the info on the booklet, I am definetly planning on purchasing it.

For me, my diagnosis took..I believe...10 years! yep...This all started with a car crash 11 years ago...and finally now, within the past year or so they arent blaming it all on depression & anxiety, which by the way, Im learning is also a part of this disease.

Danni-Lynne, Its so nice to meet you. Ansd so wonderful to hear your story of freedom from abuse. You are a proven survivor hun!

Shar


01/08/2008 10:00 PM
danny_lynn62
dannylynn62  
Posts: 25
Member

Shar,

It's equally nice to meet you!. Yes everyone keeps telling me that what I did took courage and that I'm a survivor. For the first three or four weeks I sure didn't feel like any of those things just filled with terror and a strong feeling of dread, but I just kept plugging away. This disease didn't make things easier thats for darn sure. The good news is that this is the first week I feel reborn!! This wonderful group of new friends filled with warmth and caring have jump started me to this level. Definitely some divine intervention going on in my opinion. Look forward to chatting with you more. Anyone who can find the book I bought yesterday should grab it up. I;m having a hard time putting it down. Good Call CoffeeinTN.

danny_lynn

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