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06/07/2011 04:53 PM

Bad bed side manner

sms
sms  
Posts: 42
Member

I have been ill now for almost 4 years and never had a doctor tell me to give up and except the pain. My Rheumatologists canceled my monthly appointment and wanted to put me off for another 3 months. When I spoke to his staff I was told that if you are having touble staying on your feet it's a problem for the Neurologist not a Rheumatoligist. When I attempted to explain to the women that I have fibromyalgia and muscle pain and that is why my legs go out she told me that I was welcome to see another Rheumatoligist. After a few of my tears she finally to the time to make me another appointment with another Rheumatologist in their clinc. I knew when I hung up that my doctor no longer wanted to deal with the problem but I never guessed I would get such hurtful words when I went to my monthy Neurologly appointment. The first words out of my neurologist mouth was that he couldn't help mke and that we would have to wait to see what the new Rheumatoligist says. I guessed that my Rheumatoligist would complain to my other doctors but I wasn't expecting this. I told him that this has happen before and I am sick of the "not my problem game" and just looking for a little help. He then told me that he couldn't help me and that I am expecting too much and need to except the pain and that it may be their for the rest of my life. He went on to tell me the reason I am getting pissed off at my doctors is that my expectations are too high and this is the way it is. So time for new doctors and a new clinc. I have no idea why a doctor would want you to give up! What a A-hole! Angry

Post edited by: sms, at: 06/07/2011 04:54 PM

Post edited by: sms, at: 06/07/2011 04:56 PM

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06/07/2011 06:06 PM
ssinnge
 
Posts: 598
Member

I am so sorry you're experienced this with your doc. It's time to move on to another rheumy and continue to be your own advocate, make them listen to you! My rheumy just added wellbutrin to my daily regimen of drugs for my inflammatory polyarthritis, and today is the 3rd day I've taken it, and it has already helped tremendously. But he prescribed it for my advanced FMS as well as the arthritis (also taking enbrel). Even though wellbutrin is scripted for depression, I've learned it is also scripted for FMS, certain arthritic diseases, as well as depression. I also take elivel for my FMS too. Hope you find a good doctor.

06/07/2011 09:01 PM
Kvasconez
 
Posts: 966
Member
I'm an Advocate

Wow, that is the most unprofessional thing I have ever heard. What about the phsycian's mantra, "do no harm?". Your doctor probably did you a favor in the long run. But, I would make a call or put in a complaint about this physician. I have had a hard time finding a rheumy in my area that takes my insurance. I may be fortunate. The worst things I am reading about relate to care from rheumies for some reason. I am sooo sorry this happened to you, SMS...really rotten. I hope the next one is extra caring for your sake.

Post edited by: Kvasconez, at: 06/07/2011 09:04 PM


06/07/2011 09:30 PM
wolfmanpark
wolfmanpark  
Posts: 2721
VIP Member

SMS as bad as it sounds being tossed from an doc there is reason for them to do this. They can no longer treat the problems presented to them. I was thought to have fibro as well but the fact that my inability to walk presented to that doc that something more is wrong and the neurologis would have to run some test and find that problem. An rhumy is good at treating existing problems and maybe even testing for some problems but if you have an serious autoimmune disease or an serious neurological disease and he had kept treating you and not treating that problem you could end up in a wheelchair or an bed for the rest of your life.. You should be happy that this doc made an wise decision. Mine strung me alone for about 16 months shooting cortisone in me all alone it was not even working and had other issues. It took me going to my new primary care doc to ask for an cane or whelchair for trips and such to send me to te correct doctor. So please please be thankful

06/07/2011 09:39 PM
wolfmanpark
wolfmanpark  
Posts: 2721
VIP Member

After reading the other post I am gonna be the mean bad person here. The doc made the decision not to treat her inability to walk because he did not know what was going on. Fm for the most part does not restrict you from walking I think we can all agree on this !!! It might make it hard but not restrict. Neurologis is the best bet here and that doctor made the best decision in my opinion to move her on to another specialist. he should not have strung her out without telling her that she needed to see an specialist though for that he is a prick. And then again maybe your primary care doc might have been told this info and not followed up.

06/08/2011 06:19 AM
broken
broken  
Posts: 11066
Group Leader

I know from my own exsperiance of docs that I think it is so hard because they should know right they went to school for this..I know the way it was handeld was very poor judgment,I must agree with wolfmanpark on this though..because I have been there so many times..you are better off with a doc who wants to help you then one who has given up..answers any answers would be great but answers for us can be very hard..you need a new panel of docs..I know that it is a lonley feeling when docs stop wanting to see you,but remeber everything happends for a reason and you will find the right doc..

06/08/2011 08:08 AM
wolfmanpark
wolfmanpark  
Posts: 2721
VIP Member

Thats right broken I myself have fired my primary care my pdoc and my pain management doc all in a two month period and replaced them with the right doctors. My new primary care doc sit me down and done an (3 hour) clinicle study thats right primary care doc. She said things are not adding up guess what I knew this. She first set up an appointment with an neurologist and he done another three or four hour session and then sent me off to 5 diffrent mri's from brain to hind end and now we are starting to see whats going on. A man thats 39 years old should not be walking like I am in pain 24 hours a day for nothing fibro might still be an dx but there will be more then fibro on his paper work. My pain dates back to childhood. Oh crap this isnt about me sorry. Fire the doctors if they dont produce results is my point.

06/08/2011 08:27 AM
bobbiejoe
bobbiejoe  
Posts: 105
Member

I found some years ago that you have to be your own investigator on your health. do the research and ask alot of questions. I have an interesting doctor as well he just tells me he isent smart enough to figure things out and sends me to specialists. If I present him with findings I have found he says so your and expert then? Some times I dont know if he is an ass or if he has an odd sence of humor. I have not seen any one sence my dx They cant help me anyway.. Good luck and do the research

06/08/2011 01:09 PM
sms
sms  
Posts: 42
Member

Thank you everyone for caring. I really try not to pitty myself but sometimes it's hard when you feel like no one wants to help. I'm waiting for my records to come in so I can start fresh with a brand new clinc, but until then I saw another doctor in the same clinc who ran some more test on me. Thank you again!
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