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MDJunction to me

Macv"For me, MDjunction has been a place where I can share my experiences
living with the very rare bone disease called Ollier's ( Enchondromatosis ) with the parents of children recently diagnosed. I can help them not to run
into the pitfalls my parents did when I was young, give them a bit of a view
from their child's perspective and simply be there to offer support and
hope to people who are scared and just had their lives upended. I also belong to a chronic pain group and it's been a Godsend to be able to actually
talk with others who understand what I'm dealing with. Besides them helping me through my tough times, I can be there to help them as well. Here too, I can use my years of experience to help others avoid pitfalls and it makes me feel good, gives my life more purpose. MDjunction brings people
together when their suffering, at their darkest and feeling alone in this world and allows some light to be brought back into their lives. HOPE, that's what
MDjunction means to me!
Linda aka Macv
" (Macv)

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FMS ForumsGeneral & SupportI started a fibromyalgia website
02/25/2011 12:25 AM
CrystalDraco174
CrystalDraco174  
Posts: 677
Senior Member

I started a website about having fibro and what I deal with from day to day and stuff...if you could check it out and let me know how I can improve, that would be fantastic! I just barely started, but any comments are appreciated!

http://allinmyhead.webs.com/

Thanks Laughing

“Once you choose hope, anything's possible.” Christopher Reeve

Please note! I am not a doctor! What I post is my own personal advice based on personal experience.

My personal, detailed experiences as a young person with fibromyalgia can be found at http://allinmyhead.webs.com/.
Reply

02/25/2011 04:16 AM  Top
CrystalDraco174
CrystalDraco174  
Posts: 677
Senior Member

Laughing Check it out and give me any comments or suggestions Smile If you have any good links or videos I should post, let me know!
“Once you choose hope, anything's possible.” Christopher Reeve

Please note! I am not a doctor! What I post is my own personal advice based on personal experience.

My personal, detailed experiences as a young person with fibromyalgia can be found at http://allinmyhead.webs.com/.

02/25/2011 04:40 AM  Top
Auntie3285
Auntie3285  
Posts: 9112
VIP Member
I'm an Advocate

Hey, Crystal ~~~

Great to see you here again ~~~

How are things going ? What have you accomplished with your schooling ?

Are you still in Ohio (South of me) ?

I will definitely check our your new website . I am sure you ll do a great job with it !!! Smile

Marilyn


02/25/2011 05:39 AM  Top
CrystalDraco174
CrystalDraco174  
Posts: 677
Senior Member

Hi!! Wowww! Long time no talk!

Things are going pretty great actually! I'm in my 3rd year now Smile

I'm actually not even in the US anymore! Haha! I'm in Japan! Laughing

I'd love it if you'd look at what I have so far and let me know what you thinnk Smile

“Once you choose hope, anything's possible.” Christopher Reeve

Please note! I am not a doctor! What I post is my own personal advice based on personal experience.

My personal, detailed experiences as a young person with fibromyalgia can be found at http://allinmyhead.webs.com/.

02/25/2011 06:44 AM  Top
galleygoddess
galleygoddess  
Posts: 113
Member

Great Job! Looks good! Very Well Done! Can't wait to see more on your site. P.S. Love the web address "All In My Head!" Wink That'll show 'em.

Cheers,

Galley


Previous discussions I participated in:
Farewell, for now!
to those on PAIN PILLS
Nucynta?

02/25/2011 07:11 AM  Top
CrystalDraco174
CrystalDraco174  
Posts: 677
Senior Member

Thanks Galley!! I appreciate you checking it out!!
“Once you choose hope, anything's possible.” Christopher Reeve

Please note! I am not a doctor! What I post is my own personal advice based on personal experience.

My personal, detailed experiences as a young person with fibromyalgia can be found at http://allinmyhead.webs.com/.

02/25/2011 07:15 AM  Top
Adewyn
Adewyn  
Posts: 5026
Group Leader

Wow JAPAN! Good for you!!! I am so proud of you... and it is nice to see you again... Love the website....Keep at it...!!! Hugs and love

Previous discussions I participated in:
Just checking in
Light Therapy
FIBRO WEATHER FLARES

02/25/2011 07:36 AM  Top
CrystalDraco174
CrystalDraco174  
Posts: 677
Senior Member

Thanks! I'm glad you guys are liking it!
“Once you choose hope, anything's possible.” Christopher Reeve

Please note! I am not a doctor! What I post is my own personal advice based on personal experience.

My personal, detailed experiences as a young person with fibromyalgia can be found at http://allinmyhead.webs.com/.

02/25/2011 08:35 AM  Top
grammyinPA

Great job!!!!

02/25/2011 08:40 AM  Top
CrystalDraco174
CrystalDraco174  
Posts: 677
Senior Member

Thanks Connie!!! Laughing
“Once you choose hope, anything's possible.” Christopher Reeve

Please note! I am not a doctor! What I post is my own personal advice based on personal experience.

My personal, detailed experiences as a young person with fibromyalgia can be found at http://allinmyhead.webs.com/.
Reply

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