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12/02/2008 08:47 AM

Abdominal Nerve Pain(page 2)

lpete301
Posts: 27
Member

I hear you. Look up the "ACNES" or Abdominal cutaneous nerve entrapment syndrome, I started out with symptoms like you describe, but they have only gotten worse. Right now my pain is better, but I expect it will start up again with in the next two weeks. I havent figured out the pattern yet, but I know it will be back. Myt doc checked the gall bladder and it was ok, but I still had the pain with the test, so my gastro put in a stint to check for the spincter of oddi dysfunction. I definately had that problem. To test it they put in a stint to keep it open. TYhey leave this there and see if symptoms get better. Normally it is left in place for a couple of months. The theory is that the sphincter does not let digestive juices out properly and there fore causes pain. The spincter is at the end of the tube that both the gall bladder and pancrease dump into before going in the stomach or intestines...if forget which. In my situation the spincter went into spasm and was trying to close and would not relax. They put in the stint and within 24 hours I was in the ER twice, then sent home on Morphine, then the next day they took out the stint and cut the sphincter, that specific pain is gone, but the other continues. I have an appoint with the pain specialist on Thursday so I will be updating then. Gettingoldsucks, post here with what the doctor says. IF anyone wants more information on this spincter situation, I am more than happy to discuss it more.

Linda

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12/16/2008 08:18 AM
Monstrosity
Posts: 5
Member

Wow... This is so ironic. I'm 28 soon to be 29 years old and have been living with the same symptoms for almost 5 years. Although I think I know where mine started. Thiers more to it than this but I wont bore everyone with the petty details. I was gaining weight and not training/dieting/or working out. I was drinking like a fish and eating like crap. I bought a "Gut Buster" (elastic strip that wraps around your abdomin) to heat it up and help target weight loss). I was wearing the thing 24/7. I remember being at work and it started to hurt so I took it off. From that point forth the pain never went away. I had other issues at the time so I didnt think anything of the "Gut Buster" being the culprate... I've had two colonoscopy's done, an ultra sound and scene a ton of specialists for everything you can think of. Yesterday a surgeon looked at me and said he thinks its nerve damage. I'm interested in hearing how the pain management turned out?

12/16/2008 08:24 AM
amommy02
amommy02  
Posts: 1891
Senior Member

Have you seen an allergy specialist? Much of what you are describing sound like what happens to me when I eat things I'm allergic to. If you haven't already I strongly suggest allergy testing. One other thing to consider is Celiac disease or gluten intolerance.

12/16/2008 09:46 AM
Monstrosity
Posts: 5
Member

Not sure about 301 but I've been tested for food alergies.

12/16/2008 11:50 AM
lpete301
Posts: 27
Member

I saw the pain management doc and he thinks it is myofascial pain...Duh. Anyhow he gave me one injection of lidocaine into the right side front abdominal muscle about 2 inches above and to the right of my belly button. The inject hurt like you know what...with painful strong twitches, which means he got it in the muscle that was spasming. When he was done pain was incredibly better until I got to the elevator then it hit me. It hurt for two days, but I can eat and not feel like I have a brick weighing down my stomach and pushing into my diaphram. I definately feel better. I had an apt for Thursday of this week, but we are frozen in here so I had to reschedule for next week. I am still not comfortable just a little higher up on the right side, I am having spasms there now that the other is taken care of. I am still having small spasms in the other area, but they are bearable. I will have him reinject there again along with the area higher up.

To sum it up...It may be nerve entrapment due to muscle spasms, but the injection definately helped! I am so glad I went back, just being comfortable after eatting is great. Linda


12/17/2008 04:16 PM
Monstrosity
Posts: 5
Member

How often do you have to get these shots? I'm seeing my family physician on Friday and am going to push him for the shots or send me to a Nurologist.

12/17/2008 07:31 PM
jenn36
jenn36  
Posts: 899
Member

Hi Linda,

If I didn't know better Iwould have thought you were my 16 yr old daughter. She has been out of scool since September. We thought it was endometrosis, so a OBGYN did a laparoscopy, everything looked great except intestines were very distended, well over 5 feet of stool in there. She had a barrium enema, colonoscopy and endoscopy. We can not find anything physically wrong. But the pain she feels is so overwhelming. Where did you learn abotu abdominal nerve pain?

Jenn


12/18/2008 03:51 AM
gettingoldsucks
gettingoldsucks  
Posts: 3430
Senior Member

I am being tested next week for gallbladder disorder and if it's positive they are removing gallbladder within a few days. I live with right side ab pain everyday since 2006. It comes on immediately after eating anything. Some foods make it alot worse but any food sets it off. I am down 15 lbs since Thanksgiving cuz the pain got worse so I simply have stopped eating. Gallbladder disorder will not fix itself and has the same symptons as stones. You all may want to ask your doc about this.

12/18/2008 07:45 AM
shortstuff116
shortstuff116  
Posts: 1635
VIP Member
I'm an Advocate

Linda, Glad to hear that you are feeling a little better. I have a question for you, What if the pain you are having is in your hip bones and straight up the middle down there? I have had this pain since all this started and the one that stops me in my tracks and brings me to my knees is the one that is down there, It is a sever stabbing pain. I can't move or do anything until it passes. Is this Myofascial pain? All my doc will tell me is to put heat on it when it happens. I can't do anything until it passes, let a lone heat. I can't MOVE. That's how bad this pain is. As the weather gets Colder the more it hurts. Can you help me? Thank you so much. Merry Christmas and May the New Year be good to you. God Bless You All. shortstuff

12/23/2008 02:04 PM
lpete301
Posts: 27
Member

Shortstuff: I would ask to see a pain management specialist. Stabbing pain almost seems like a nerve issue and a neurologist might be better for that, but the PM doc should be able to at least narrow it down, and might have a treatment. Have you had any surgeries that might have cut or trapped a nerve in scar tissue? Does heat help? How long does it last? If the heat does not help, tell your doc that and tell him you need to do more and how it affects you, like how long it lasts, how long before you can move etc. I have pain like that, but it is a nerve trapped from a c-sect and since I was put on the Neurontin it is better, but still zings me occasionally. Myofascial pain is muscle pain that involves the covering of the muscle called the Fascia. I really cant say for sure if it is that or nerve pain.

Jenn36: Distended bowels is not normal and would def cause alot of pain. Has or is she seeing a Gastroenterologist? That would be the doc to talk to about bowel issues and why they arent moving. They could possibly be moving in parts of the bowel, but not in the place where it is distended. I learned about the abd nerve pain when my Gastro told me that he thought my pain was coming from the abd wall and that there was nothing wrong with my bowels. He pissed me off and I ended up on the internet hunting for information on symptoms and treatment of Abd Wall pain.

Gettingoldsucks: Your pain def sounds like gallbladder or if that comes back normal it could be spincter of oddi dysfunction which can and did mimick gall bladder pain in me. Be sure that the tech makes a note of any pain you experience during the test! Tell them when it hurts and how the pain relates to the pain you feel after eating. The person who reads the scan does not know if you have pain even when things might be normal on the scan. That was my situation...normal scan, but pain during it.

Just a little background on me, I was a Dental Assistant, but can not work anymore due to pain, fatigue and fibro fog. I have a severe case of Type A personality and have to know what could possibly be causing my symptoms and so I end up on the computer doing as much research as I can on what ails me and what my doc seems to think might be causing my problems. I even have been known to look up causes for the results of my blood tests when they come back out of the norm which sends me in all different directions. I went for about 5 years with massive amounts of pain that were not explained and so ended up searching for answers and then taking my results to my doc to rule them out. My mother was a counselor and so I learned many medical terms in my teenage years just by combing through her text books. I am by no means a doctor, or an expert, so everyone should speak to their doctors about any questions they have.

One suggestion I have for everyone is to write down you symptoms from the most disruptive to the least no matter how small the problem may be and give it to your physician and tell him that you need help. Symptoms by themselves may be no big deal, but when you match them all up together. Make multiple copies and give them to any other physicians you have and hopefully someone will be able to find a way to give you some relief. That was the thing I did with my regular doctor and he did a bunch of blood work before sending me off the the Rhuematologist.

Linda

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