MDJunction - People Helping People
 
Ask a Question
01/26/2011 09:54 AM

interesting but painful treatment

mandyg
 
Posts: 50
Member

Hi everyone. I am getting this new treatment that involves injections. It is not trigger point injections it is actually injections into the entire muscle. It is kind of a lot to explain so if you would like to hear more about it just PM me or respond here and I will write more, I just didn't want to ramble on and bore you all but basically he only does one muscle at a time. It is absolutely torture right now and the worst pain ever (sounds fun, I know). I have been going since November but supposedly he only has to do each muscle only once and then never again and he and I are both hopeful when this is over that I will be pain free for the most part for the rest of my life actually. For those of you who don't know me or remember, I am 24 but was diagnosed in 1997 when I was 11 years old. First time I have hope in a long time, have even been able to get off some of my depression medications.

Hope you all are having a good day,

Mandy

Reply
 

01/26/2011 11:18 AM
Natalia5150
Natalia5150  
Posts: 3632
VIP Member

You wont want to privately pm everyone who will be interested,

do you know what they are putting in your muscles, is it a steroid?

whats going on with your muscles that you need this?

How did he explain it to you? And whats the longest anyone has gone pain free with this treatment,

What kind of a doctor is he, neurologist, Rheumy that kind of thing, and how many muscles does he have to do?

How long after the injection is it such bad pain?

I am interested in how you are doing, also has he published?

thanks honey,

fingers crossed that this is working really really well for you!

natty


01/26/2011 12:05 PM
mandyg
 
Posts: 50
Member

I will PM you a little later when I see if anyone else responds and wants to hear. He also has a book it is called "Freedom from pain" his name is Dr. Norman Marcus. The book was written before he started with these injections but his book is still very interesting. He started the first pain management center in NYC ever so he has been dealing with pain patients for over 30-40 years. He is a pain management specialist who is also an anesthesiologist and was a psychiatry attending for a while. This is his website...

http://backpainusa.com/

one day when I was reading his blog I also came across this which I am assuming is about me because it sounds exactly like my story..

http://backpainusa.com/content/vagueness-myofascial-pain- concepts-confuses-treatment-non-cancer-pain-adolescents


01/26/2011 12:06 PM
mandyg
 
Posts: 50
Member

Look at his website and information about him and then I will write later and explain exactly what is going on with me because it obviously is a little different than just back pain. He is injecting lidocaine just to make it less uncomfortable but he says it isnt actually the lidocaine that is removing the pain it is the actual injection of the needle.

01/26/2011 02:31 PM
alttab6218
 
Posts: 3
Member

I would like more info on this. Please PM me.

01/26/2011 02:51 PM
Kimbaskicks
Kimbaskicks  
Posts: 743
Member

Me, too! Gonna check out his website! Thanks so much!!

{Hugs}


01/26/2011 04:51 PM
Natalia5150
Natalia5150  
Posts: 3632
VIP Member

Thanks for the info Sweetie, will give it a go in the morning before anyone gets up and my pea brain is clear.

hugs Natty


03/03/2011 03:15 PM
mandyg
 
Posts: 50
Member

Hey everyone,

Sorry I haven't responded in forever. I actually took about 2-3 weeks off to study for my social work licensing exam but I am starting treatments again on Monday. Ill try and do my best to explain what he does in as little words as possible. Basically he injects lidocaine into the individual muscle. He developed this machine to test each muscle and see which ones are actually causing pain. When he discusses fibro he says when you touch any muscle on your body it will hurt which is completely true, just touching our skin is so painful. What this machine does is test each muscle to see which actually is causing the pain. He says a lot of the pain is referred pain from other muscles. It is hard for me to really explain it. He gives me an IV of Ketamine and Valium before the actual procedure so I don't feel the pain of the injections. He doesnt believe it is the Lidocaine that takes away the pain it is basically cutting off the blood flow to that muscle followed by 3 days of "physical therapy" which is actually just being hooked up to a machine to stimulate the muscle and speed up the process of retraining the muscles. Once he does a muscle, he never has to re-inject that muscle again. There are exercises that I am supposed to do everyday to keep my muscles limber,only takes 5-10 minutes twice a day. Since the treatment started I actually have been able to walk a mile which is more than I have walked since I was 10 years old. When I wasn't getting the injections for the past month I really see the improvement because I have been able to cut down on the amount of oxycodone I am taking so much without even noticing. I have a long way to go but I definitely think I am moving in the right direction. I will keep everyone updated on my progress and PM me if you have anymore questions about the treatments. I am not going to lie, it is extremely painful treatment and my muscles bruise terribly for weeks following the injections but if I am able to cut my pain even in half it will all be worth it in the end.

Hope everyone is doing well...


03/03/2011 05:22 PM
Natalia5150
Natalia5150  
Posts: 3632
VIP Member

I am so sorry they are so painful, but if indeed they end up rendering you pain free from the fibro they would be well worth it.

I always think that it a wonderful way to tell that the treatment is working, taking less pain medication.

I am praying for your success, but after all you just passed your boards....

Having gone through so much pain yourself you will really understand your clients and their pain.

Pain is pain, it doesn't matter the for it takes what matters it how we handle it, and you will be a very wonderful advocate for your clients, and I think this is terrific.

Post edited by: Natalia5150, at: 03/03/2011 05:23 PM


03/03/2011 06:17 PM
Kristie1972
Kristie1972  
Posts: 454
Senior Member

i am so interested in what all the dr does for you. please keep us posted.
Reply

Share this discussion with your friends:
<< Start < Prev 1 Next > End >>


Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.
Contact Us | About Us
Copyright (c) 2006-2014 MDJunction.com All Rights Reserved