Fibromyalgia Support Group

Ok, I'm feeling really overwhelmed right now. I just got a new dx of carpal tunnel syndrome in both of my hands and got another dx for TMJ. The dentist made me a gaurd and the doc gave me braces to wear. But, I've just been in so much pain with my neck, jaw, back, hips, legs, and feet. Nothing helps for the pain without doping me up, and I can't function like that. I really wanna give up...feeling like this until the day I die is more than I can bare. It hurts for people to hug me, or the slightest touch is painful....screw this FIBRO! I know all the other treatments like moderate exercise, yoga, massage, meditation, warm baths, etc. But it's only a small amount of pain relief. It's consuming my life..I don't want to live like this anymore. Sorry to sound like a whiney little brat, but I'm just done.

I'm done with waking up every morning in so much pain..

I'm done explaining myself and how I feel..

I'm done trying to get the dr.s to give a damn, and figure out what wrong with me...

I have this HUGE pain in my heart that's called Fibromyalgia that has caused me to separate from the world...

when is it going to end?

I am so sorry that things are this bad. I along with many others have been where you are and have had days that are this bad. First of all you are not whining. Second of all don't worry about explaining yourself to anyone. I feel that people either get it or they don't. And if they don't and they give you grief then they don't matter. Fibromyalgia is an illnees. And it causes chronic pain along with a WHOLE lot of other things. You cannot help that you have this. What you have to do is find a way to survive and have good days.

When the days become umbareable for me sometimes I have to wallow in feeling sorry for myself for a while. But then I get pass that and try to find something that will give me relief. Mild exercise and stretching helps on some days. A hot bath. A cup of hot tea. Laying under an electric blanket. I just have to keep trying til I find something that makes the pain tolerable for me for that day.

Please hang in there. You are obviouly having a bad flare. Just keep going. I know it is so very hard to do sometimes. But as long as you still have the breath of life in you, there is still a purpose for your wonderful life!

I pray you find relief, peace and comfort. Many hugs to you.

You poor thing....I feel so bad for you!

The first thing that came to mind when I read your post was a book I read while I was forcing my body to earn my black belt in karate. I was in excruciating pain! The book is called Zen in the Martial Arts. Little did I know how much I would continue to use the wisdom in this book!

Things do happen for a reason....you will find something to help you get through this which in turn will make you stronger!

We are strong, courageous women and we stick together!!!

I am praying for you, my friend!

{Hugs}

Post edited by: Kimbaskicks, at: 01/11/2011 02:59 PM

SufferingSilently...I read what you wrote and I felt like I could have written it myself.

I have Fibromyalgia too and I have been in horrendous pain lately.

I just want you to know that you are not alone. Please know that.

Just take life 1 day at a time. Otherwise it can become overwhelming.

Please never give up. You do matter.

Feel free to message me if you need to vent or chat.

You are not whining. You are expressing how you are feeling.

Take care.

It's just hard because very few people understand, so it's like I'm battling this demon on my own...I know all my FibroFamily are fighting with me. I'm really trying to find the positive but I'm blinded by the pain. Even now, it's so hard trying to find the words to describe how I feel because of this fog. I want to cry but can't because I have to appear strong. I have tears, they just can't see. I know this is bad but sometimes I hope when I lay my head down to rest, that I'll just stay asleep. My family deserves somebody stronger...for now, I guess I'll just hold on tightly.

SS- I have been there- still am- you have written so eloquently what so many of us have felt. Hang in there, sweetie! There will be better days, I promise!

I'm sorry your are suffering so bad, but you are far from being a whiney little brat! Your post hit me hard, besides the the TMJ and Carpal tunnel, I left Ohio on Dec. 22nd feeling the same way you do right now. Reading your post was like reading something that I would have wrote. Now, fortunately I'm have a new winter home in Key West, Floria and I'm sitting here painfree. You would think that would be great right? You went on to say that you that Fibro has made you separate yourself from this world. Wow, that sure did hit home with me. Yes, I'm painfree and I'm sure there is plenty of people who would love to be where I am right now, but I KNOW NO ONE down here and cant decide if its better to be in pain or missing your friends and family so bad that it hurts.

I talk with people up in Ohio and they keep telling me how bad the weather is there but to be ALONE 24/7 sucks. I'm feeling like a whiney little brat at this point. So which is worse? Being in pain physically or emotionally? I don't want to live like this either. I've got a brand new grandbaby that I miss terribly and wonderful guy up in Ohio and here I sit complaining about being alone. Not sure which is worse. I'm done too! I guess that its impossible to have your cake and eat it too, huh?

Hope you get some relief soon and that tomorrow will be a better day for you.

Love and Hugs,

Lori

I'm sorry you are in a bad flare. Nope I don't see whining, you needed to vent out how you truly feel among friends who truly understand. Being a little angry is a good thing. So is giving yourself the okay to cry if you need to and screw everyone else.

Hope it's better soon.

Suffering Silently,

First of all, what are you doing with your pain management? 'Doping' yourself up --leads me to believe you're with the wrong doctor for a number of reason. The first what kind of medicine is he giving you that is changing the nature of your natural self. There are alternatives. One being that certain drugs, opiates for instance, do not cause a HIGH if you are in pain. So there is this false sense of patients of pain management are using their RX for recreational uses. The second reason this doc doesn't sound good to me is that doping you up conveys that he's either given you too high a dosage or he's put you on an inappropriate medicine.

Please see a reputable pain management doc. I can tell you that I have never once felt or acted doped up, and that my pain at times has been signifigantly diminished. Enough so that I believe I can stand to live a long, long time even with Fibro.

Please look into pain management, I promise the right doc can help you so much.

hugs heather

The only thing that they have found to help with my muscle pain without making me sick is Soma. I obviously can only take that at night to sleep. It helps me sleep and helps with the pain. The docs haven't been able to find a medication that takes away my pain and doesn't make me sick or loopy. I am super sensitive to medication, vicodin makes me sick, darvacet makes me sick, tramadol makes me sick...etc. So I don't take anything during the day, and Soma at night. I'm hoping this new muscle relaxer Amrix works without making me sick, I'm going to ask the Rheumy about it when I go to my appt.

Thank you guys for not thinking I'm a whiney brat.