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04/28/2008 22:00
sindee4499
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Posts: 84
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 I have not yet applied I went to the ss office got my paperwork looked through it and was like what do I do with all this. The first question that threw me off was when were you unable to work I have yet to have a dr. tell me I Can't work maybe because I tell them I just want to be normal but I have come to the relization that I will never be normal again. I keep trying different jobs were I am my own boss thinking I can make myself work if and when I have a good day needless to say I worked sat. and I have been down every since just wore out and my legs are SOOOOOOOO tender that I can't even stand for my 3 lb, puppy to jump up on me. How in the heck am I suppose to work if I work one day then have to take a week off to recover? Is there a magic word to make your dr's relize you can't do it anymore or are you suppose to ask for them to claim you disabled??
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04/29/2008 03:21
Enya4me
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 I struggled for 8 years until my body just had enough. I was actually fired from my job of 7 years but it probably was a blessing. My back, neck, and muscles have been screaming for 8 years to give them a rest-let alone the CFIDS which is something I have been learning more about lately. My Dr. of 22 years was on the board of meds so he would just switch me around on them all.

I feel like a experiement, we all are. FMS/CFIDS is something that isn't easily recognized/treatable. We are in the the era of the medical community learning about it. One day there will be a specific test to confirm FMS but until then try working with your doctor. Mayo Clinic had a good article on how to talk to your doctor I will try to find that in the next few days and post iton my site.

Take Care
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04/29/2008 03:31
Barbkubacki
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Posts: 606
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 I have been going to the same doctor for 21 years. I started by going in to complain about PMS which was so out of character. The put me on Prozac, then I couldn't wake or get out of bed for days and sometimes month. I had to force myself to shower. I just keep saying five more minutes. Just five more minutes and before I knew it bed times. I will do it tomorrow. Sometimes it was days. Every part of my body hurt. I kept going back and they finally said it was severe depression. I told them depression doesn't hurt this bad. So they put me out of work and we started sending me to rhumys. Until finally got the one I like. He said the I have a soft tissue disease. Then Fibromyalgia. I have gone in to see him in tears and he didn't know what to do but he knew I couldn't work. He told me that I have a bad bad case of fibro. He stated that in the SSD forms. I think my magic words were actually tears and jumping everytime he touch one of the right trigger points. I hope this helps.
Kindness is the only investment that never fails.
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05/04/2008 14:32
janetlynn64
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 I forgot to mention that I waited it out, getting approved in the first place and then my back pay. It took a couple of years and I was down to almost nothing because I had to take most of my kinda valuable stuff to the pawn shop. Luckily I had friends help me out because I tried, but I could not hold down a normal job....with the bouts of being sick at the toilet for hours on end and then lasting a few days). Flu-like symtoms my eye!! haha

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    Lyrica?
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05/04/2008 16:04
spruce1
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 It takes a lot a patience to wait for SSI. It took me a total of 4 hearings (the first was just the usual no from SSI). I know I tried so hard to work and I just couldn't do! I feel for those who have to work and what they must feel like.

Barbkubacki, I know how you feel and how exhausting just taking a shower is. I have to keep trying to talk to myself to get one in and that even fails! Then when I'm in the shower, I have to tell myself 'just a little longer' then when I'm out I have to convince myself to put lotion on and do my hair. It's like a do things in increments to keep myself going. It's like a job just to take a shower....sometimes I want to cry!

Take care

Spruce


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    Hello Everyone
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05/04/2008 16:15
Janilee
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Posts: 1031
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 It took me 3 days and numerous starts and stops but I finally did it. Because of the osteoarthritis in my hands and fingers, my hand writing isn't very legible. Who am I kidding it never was legible from the time I was a child. The nuns failed me in penmanship every semester and notes would go to my parents to teach me how to write properly. I just have spastic handwriting. Back to the subject. Not only did I hand write the appeal, I typed it too. I was so mentally exhausted and my hands hurt so bad I can't bend them anymore. I'll take it to SSA tomorrow and get this going again. I'm not going to let this setback get me down. I'm a fighter.

Jan ;0

May your troubles be less,
Your blessing be more,
And nothing but happiness come through your door!


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    today is so hard
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05/04/2008 16:39
spruce1
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 BRAVO!!!! It takes a while and I hope for the very best for you Janilee!

Spruce




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05/04/2008 19:50
faieriemama
Silver Ribbon
Posts: 624
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 I am going to get ahold of SSI tomorrow myself to set up an appointment. I have been kidding myself that I don't need to. I had to quit working in November of 07 due to black out spells,which turned out to be not such a bad thing. I know what Barbkubacki and spruce1 mean about talking yourself through the day with "Just a little bit longer,or more" until finally its bedtime. Sometimes spruce1 it's ok to cry over how hard everything is now. We have to hang in there even it is sometimes just by the skin of our teeth.
May the sun bring you new energies by day,
May the moon softly restore you by night ,
May the rain wash away any worries you may have,
And the breeze blow new strength into your being,
And then,all the days of your life,
May you walk gently through the world,and know it’s beauty and yours.
A Native American Blessing

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05/10/2008 15:57
jsrace
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Posts: 32
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 I applied over a year ago and I am still fighting. Waiting now for the hearing to be scheduled. It took my sister 3 years and my neice 6 months - who knows what they are doing?
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05/10/2008 15:59
jsrace
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 I just asked my dr if he would support my claim for disability and he said of course! I'm using Binder and Binder, they do all the paperwork, you just answer their questions. Of course, when you get your money (and you will) you'll have to pay them up to $5300.
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