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Lynnette1212 Posts: 1167
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Last night I was at a friends house and I was driving home, she lives about 8 miles away, and I made a turn and ended up at a dead end, with gravel, suddenly. I freaked out, thinking I was going to die, then realized that I freaking got lost...I had no idea where I was. I started to cry and realized that this disease is REAL. I was so upset I cried all the way home and into my husbands arms. I was humiliated and sad....to say the least I am still sad this morning. I just hate this disease and don't want any part of it.
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mandr2220  Posts: 279
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Lynette, don't get discouraged. I know it is tough to accept. Took me a while to accept it too. Still not fully excepting of it, but better. Take one day at a time and look at the good things when you get upset. I had a hard time coping with knowing I have to change my life style and listen to my body when I want to do something and can't. Hang in there honey! No one wants what we have been given, but we are here to support you! |
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grammyinPA
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Lynette, It's a day at a time kind of situation with fibro. On good days we have to accomplish necessary things or things that just please us as there are so many days we have to lay low with our meds and/or heating pad and wait to recuperate. It's not fair, it's not nice but it is what it is!  Hang in there, you'll figure out what you have to do to cope. Connie |
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faerie Posts: 1439
Senior Member
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Oh Sweetie, I am sorry! Like the pain, there are good days and bad days. I have had this 'damn thing' for decades, and there are times that I still DON'T accept it!!!! Yes I know that I am expected to - - but dammit - - I am only human. I expect to be able to 'do' everything I want to, everything that my so called brain says I could and should be capable of doing, - - but the body tells me another story. That is when I go into five minute mode! It is the only way I stay sane! Don't think about the past - - don't think about the future - - just get through the next five minutes! Yes, we have to be strong! Yes we have to positive! Yes we have to accept! But hey, at the end of the day we are allowed to crack every now and again! Hang in there hon. At least we have this wonderful group who 'understand' - otherwise we would really lose it! Lots of gentle hugs and much love, Faerie |
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Stella77 Posts: 700
Member
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Oh Lynette, I'm SO sorry to hear this. I have been through the same thing as you. My husband had to do the driving for me for 2 years while I went through getting lost and disoriented while driving. It's gone away now. I don't know if it's the meds that made it better or what. But I hope that you will come out of this too. Don't feel alone, as there are many people on here who have had the same problem while driving. We had a thread on it about a year go. I want to give you a group hug, ok everyone? Let's do it. stella
Insanity is doing the same thing over and over and expecting a different result. |
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mammy Posts: 7217
VIP Member
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Count me in on the group hug. I'm really sorry for the trauma you went through, I can imagine how awful it must have been and how scary. Thank God you had you hubby's loving arms to fall into when all was said and done. You're not alone, we're all here for you. I can't say I've been through the same exact thing so I won't pretend to know how you feel, I do know however how this illness can make us feel like it's stripping away our life a little at a time. That is not the case though!!!!! We are too strong for that and we will win, just know the bad days are really, really bad but the good days are amazing. Connie
I am not a doctor and do not play one on these forums so please consult your physician for actual medical advice. |
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Adewyn Posts: 4975
Group Leader
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phew i know that feeling.... i just cryed reading you post.... hugs... dont give up.... at least you can still drive... so you get lost occassionally... hugs... we all do it lol.. wipes my tears..glad you are ok... and big hugs.. |
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MissStacey Posts: 14847
VIP Member
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Lynette, I'm soo sorry for what you endured last night. I know you are going through so much lately with the Fibro and your newest dx but you are so strong and remember even though you hit a bump YOU got yourself out of it and into hubbys arms last night. You are so strong and are such a warrior. Don't forget that ever! Don't be too hard on yourself, we are here for you. Love ya girl. Big hugs, Stacey  I suffer from Rapid Progressive MS, Lupus, Fibromyalgia, Epilepsy, Migraines, Neuropathy, IBS, Narcolepsy, Arrythmia, Arthritis and too much more complete list on profile.
"Just because we have the right to disagree with a person, does NOT give us the right to disrespect that person."
I'm not currently active due to many personal and medical issues. I will not be participating in MDJ for awhile, my thoughts and prayers are with everyone. I hope everyone is well and I appreciate all of the thoughts, kind words and messages. I have tried to respond as much as possible and apologize if I have not gotten back to everyone. Love & Hugs, Stacey |
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broken Posts: 9257
Group Leader
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Im sorry you went through that I have doen it myself and it scared me from driving for awhile, cause I was affraid I would get lost and not know how to get home.. learning to laugh at ourselves becomes a nessasaty..hope you are feeling better we all have alot to give if one gets the help then some of this suffering is worth it..
remeber I am not a doctor I just say what I think |
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Natalia5150 Posts: 3632
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Lynnette, Try looking at the situations you find yourself in in a slightly different fashion. Perhaps as a learning experience. Perhaps this is a sign trhat you should have a navigational device for your car? Or perhaps it means you shouldn't be driving at all? Only you can possibly know the answer, but a navigational device might be the easiest answer. The harder you fight against yourself the harder it will continue to be. But taking a more light hearted approach may make things more bearable. Besides all the drama and stress jut makes things that much harder , and more painful. Dont feel humiliated, there is nothing humiliating about getting lost. If you didn't have fibro and you got lost you would laugh at yourself. fibro is like this drama queen living inside of each of us wanting to get us all worked up and hysterical so that she can feed on us all the more. Don't let her. You got home OK. Now let it go. and figure out ways so that the fibro monster in you can't get away with that little trick again. You are a Fibro Warrior! don't you forget it. hugs and kisses. natty gentle hugs and a peck on the cheek,
Natty
I am an RN with a current license since 1984....sheesh that's a long time....but that doesn't mean I am a DOCTOR
I dispense advice freely but you should take it with a grain of salt and do your homework and check with your doctor.
He gets paid more so he must know more. Right?
I am truly sorry your are reading my post, because it means you are here at MD Junction instead of out skydiving or deep sea treasure hunting or climbing Mount Kilimanjaro.......
Empyema-
Fibeomyalgia
Hashimoto's
IBS=if you have to ask you don't want to know
severe osteo arthritis, spine/neck
DJD hips r knee some fingers
hypoglycemia, which is every bit annoying as hyper
otherwise not so serious if you pay attention
too many meds to count but for our purposes here:
Lyrica is back Yay!
Cymbalta
pain meds |
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