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FMS Forums › General & Support › My HLA genetic test was negative
09/16/2010 02:31 PM
My HLA genetic test was negative
raynedae
raynedae  
Posts: 8219
VIP Member
I had to call the VA to find out why I hadn't heard about the results. The blood draw was on August 13th. The bruise has finally faded.

Since the results are negative chances are I do NOT have Ankylosing Sponylosis, psoriatic arthritis or any of the other spondys...TG! I do still have several swollen finger joints a lot of pain in my fingers and my feet are still kind of dusky purple, although they are not swollen. My SED and WBC are ALWAYS elevated so I'm guessing the next test will be for rheumatoid factor. I was told on the AS forum that we Indians have a higher than normal Reactive Arthritis rate. I know I've had more than one bout with E Coli so I wouldn't be surprised to learn I have Reactive Arthritis.

I've always attributed my high SED rate and WBC to losing my spleen but apparently those rates go down within months of losing your spleen. Mine has continued to climb and my former airhead PCP kept ordering ultrasounds of my non-existent spleen & lymphoma and leukemia tests. She never tested me for RF even after my osteo diagnosis. I could make a blonde joke here but I won't...

I hope my new PCP's next move is to refer me to the rheumatology dept. I'd like some answers!

rayn

I am not a medical professional so please exercise common sense when it comes to my advice.

I am also NOT a lawyer so exercise common sense when it comes to my advice.

I was a bookseller so you can trust my advice regarding books :)

www.operationbeautiful.com
Reply

09/16/2010 02:41 PM  Top
Adewyn
Adewyn  
Posts: 5026
Group Leader
so frustrating but at least the test was negative andthey can go from there.... i hope you can get a rheumy appt pretty quick...good luck... and i will be watching for updates Smile Love ya !!

09/16/2010 02:49 PM  Top
Natalia5150
Natalia5150  
Posts: 3632
VIP Member
Wow Bobbie, well, some answers, and those were positive, and Rheumatology is where you should go next, and AND I think if you could get some answers no matter what they are you will feel better. Also if they could relieve some of the hand pain your life would be more fun and interesting.

Rheumy

Praying for a fast visit to the rheummy hon

natty

gentle hugs and a peck on the cheek,
Natty


I am an RN with a current license since 1984....sheesh that's a long time....but that doesn't mean I am a DOCTOR
I dispense advice freely but you should take it with a grain of salt and do your homework and check with your doctor.
He gets paid more so he must know more. Right?

I am truly sorry your are reading my post, because it means you are here at MD Junction instead of out skydiving or deep sea treasure hunting or climbing Mount Kilimanjaro.......

Empyema-
Fibeomyalgia
Hashimoto's
IBS=if you have to ask you don't want to know
severe osteo arthritis, spine/neck
DJD hips r knee some fingers
hypoglycemia, which is every bit annoying as hyper
otherwise not so serious if you pay attention
too many meds to count but for our purposes here:
Lyrica is back Yay!
Cymbalta
pain meds

09/16/2010 03:49 PM  Top
annamarie180
annamarie180  
Posts: 1697
Senior Member
Bobbi - I have my fingers crossed that everything comes back normal, and you start feeling better soon.

I too have swollen fingers and such, so I'm currently getting tested for PA. Although, instead of testing me, they just put me on medication for it. I don't know if it's because they think I have it, or just didn't want to do the tests...

Anyways, this is about you! Good luck my dear! I will be thinking of you!

*i believe in the good*
*Learn from yesterday, live for today, hope for tomorrow*

I am not a doctor, lawyer, or psychiatric professional, so any advice I give is from personal experience. It's issued with a good heart, but should not be mistaken for a professional opinion.

Previous discussions I participated in:
car on empty again
Finally!
New here

09/16/2010 04:07 PM  Top
RedGirl
 
Posts: 1594
Senior Member
Wow Bobbi! I'm truly happy to hear you tested negative for ankylosing spondylosis. My uncle had that from his very early 20s and had a very rough time with it.

Can't say that I blame you one bit for wanting some answers. I hope you get to see a rheumatologist very soon to find out what's going on.

Good luck and keep us updated. Pretty please.

Sending you loads of hugs!

Red

I am not a doctor or a lawyer. Any comments, posts, or responses I might make are made solely from my life experiences and are not intended in any way to be medical or legal advice so please do not take it as such.

"Nothing but heaven itself is better than a friend who is really a friend."
Plautus

"The language of friendship is not words but meanings."
Henry David Thoreau

"Life is hard. After all, it kills you."
Katharine Hepburn

09/17/2010 11:52 PM  Top
faieriemama
faieriemama  
Posts: 3345
VIP Member
I'm an Advocate
so happy to hear your test results were negative, now hopefully your PCP sends you to a rheumy. Praying for the white-light of healing to surround you.
I'm not a medical professional, I can only offer advice,if you need medical attention please see a medical professional.

Don’t compare your path with anybody else’s.
Your path is unique to you.
— Baba Ram Das
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Health Topics: Ankylosing Spondylosis
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FMS › FMS Forums › General & Support › My HLA genetic test was negative

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