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FMS ForumsGeneral & SupportMy fibro research makes me depressed
09/08/2010 10:03 AM
linds27
linds27
 
Posts: 69
Member

I have been doing A LOT of research on fibro and treatments of it. I have learned a lot about it but it seems like the more I find out, the more it depresses me. I was just wondering if anyone else felt the same?
Reply

09/08/2010 10:09 AM  Top
PCG
PCG
 
Posts: 2259
Senior Member

I did... then I found this place, and left some of the statistics behind and talked to real people about it. It didn't change or denied any of the facts I had learned researching but it put them on a human perspective. People here showed me you can live with this, you don't have t disappear because of this, you can be strong enough.

And looking up at them is how I try to deal with things Smile

i hope it made any sense and helped,

Hugs

Paula

Very funny Scotty, now beam down my clothes!
http://pcgaijin.deviantart.com/

I'm not a doctor, what I say comes from personal experience only.

09/08/2010 10:18 AM  Top
Natalia5150
Natalia5150
 
Posts: 3632
VIP Member

Remember a lot of the places you will see on the web are out to sell you something, so they will try to make things sound worse.!!!

When you go to the medical sites things are not so depressing because you see that research IS being done.

You have to be careful where you go and what they say.

gentle hugs and a peck on the cheek,
Natty


I am an RN with a current license since 1984....sheesh that's a long time....but that doesn't mean I am a DOCTOR
I dispense advice freely but you should take it with a grain of salt and do your homework and check with your doctor.
He gets paid more so he must know more. Right?

I am truly sorry your are reading my post, because it means you are here at MD Junction instead of out skydiving or deep sea treasure hunting or climbing Mount Kilimanjaro.......

Empyema-
Fibeomyalgia
Hashimoto's
IBS=if you have to ask you don't want to know
severe osteo arthritis, spine/neck
DJD hips r knee some fingers
hypoglycemia, which is every bit annoying as hyper
otherwise not so serious if you pay attention
too many meds to count but for our purposes here:
Lyrica is back Yay!
Cymbalta
pain meds

09/08/2010 10:21 AM  Top
mammy
mammy
 
Posts: 7217
VIP Member

Paula is right, chatting with real people is better then just the research you read. Being here shows you the positive side of things, yes, there is a positive to having a chronic illness...it may be different for everyone but it does exitst. Getting depressed is perfectly normal though. Are you on an anti-depressant or have any counseling? If not, you might want to talk to your doctor about it, it really helps. In the meantime, know that we are all here for you and you can come to us for any support you may need, vent away if it will help. You are not alone!!!!!!!!!
Connie

I am not a doctor and do not play one on these forums so please consult your physician for actual medical advice.

09/08/2010 10:33 AM  Top
linds27
linds27
 
Posts: 69
Member

Thanks for the help. This site has completly helped me to see that we can still live Smile

Previous discussions I participated in:
My New Dog!
Sleep Schedule?
Dirty words...and phrases

09/08/2010 11:01 AM  Top
Nitalynn
Nitalynn
 
Posts: 1404
Senior Member

I have done a lot of research online the last ten years but I have been very strict with myself about how I look at it applying to me. I fully realize that if research were to find a definitive cause and come up with a possible cure very soon that it is possible that at 55 I might not live to see something come out of it. I may be wrong but I think I read somewhere that from application to hitting the shelves the average time for a new medication to go through the process is 7 years. Sure some are shorter. But by virtue of that some are are longer also.

My reason for research therefor is not in hope of finding some magical cure that will effect my life today but two fold.

1) Know your enemy. I want to know the monster that has ruined my life! It gives me some illusion of gaining control. It might not be real but pretend is good enough for someone who had always been independent and self assured if that is all I can get.

2) I feel it is my responsibility as a patient to be informed about my condition so I know what my doctor is talking about and also know when he/she is trying to smokescreen me. I also feel it is my responsibility to advocate for myself with both my doctor and the medical field in general. If I'm not willing to why should I expect others to?

Having said that I wanted to mention something I found recently that I'm thinking about joining. It is more directly related to Chronic Fatigue Syndrome than Fibromyalgia but further research into CFS can only help clarify the relationship between the two conditions as either being the same condition, a some how related condition or totally different entities.

http://www.forums.aboutmecfs.org/showthread.php?7427- Bedroom-Video-Campaign-quot-Dear-Sec-Sebelius-Dear-Dir.- Collins-quot&p=120215&viewfull=1


09/08/2010 11:51 AM  Top
Natalia5150
Natalia5150
 
Posts: 3632
VIP Member

Many of the sites make fibro sound worse because they have an agenda, they want you do to their treatment plan or buy their products.

When you go to the bonafide medical sites you see that a lot of research IS being done!

Just be careful how much you believe on the web....I do not believe Fibro is a death sentence. You hurt because you hurt, that's fibro. However your muscles shorten because you dont use them , you don't use them because it hurts, but they can be re-stretched, and re-strengthened.

No actual damage is taking place no matter how much we hurt IF and this is a big IF we continue walking, exercising, and keep our bodies moving.

If we choose to live our lives in bed or on the couch so that we dont hurt we will have the damage that comes from joints not working and muscles not being stretched with use.

We do have choices, and the choice to keep as healthy as we can is a painful one, but medically speaking if we dont we can ruin our chances at a normal life when we do find the right answer for our fibro condition.

gentle hugs and a peck on the cheek,
Natty


I am an RN with a current license since 1984....sheesh that's a long time....but that doesn't mean I am a DOCTOR
I dispense advice freely but you should take it with a grain of salt and do your homework and check with your doctor.
He gets paid more so he must know more. Right?

I am truly sorry your are reading my post, because it means you are here at MD Junction instead of out skydiving or deep sea treasure hunting or climbing Mount Kilimanjaro.......

Empyema-
Fibeomyalgia
Hashimoto's
IBS=if you have to ask you don't want to know
severe osteo arthritis, spine/neck
DJD hips r knee some fingers
hypoglycemia, which is every bit annoying as hyper
otherwise not so serious if you pay attention
too many meds to count but for our purposes here:
Lyrica is back Yay!
Cymbalta
pain meds

09/08/2010 12:05 PM  Top
LadyTee69
LadyTee69
 
Posts: 34
Member

Well said Natalia!

09/08/2010 02:51 PM  Top
fibromite
fibromitePosts: 654
Member

I so agree. I was thankful for a diagnosis after years of feeling just horrible. Now I know what I am up against and no what I NEED to do or not do to feel good. It takes time to figure out what causes your flares and how to avoid them. I know now it's o.k. to say no to people. It's o.k. to nap in the afternoon. It's o.k. to cry if I need to. I am also grateful it is not going to kill me. That in itself is a blessing. We need to look on the bright side. I "try" everyday to stay positive and on those "trying" days turn here for support and everyone here is so supportive. I'd turn here more for answers than googling fibromyalgia, honestly.

Previous discussions I participated in:
Pain, pain go away!
Family
Just out of curiosity.....

09/08/2010 05:14 PM  Top
Natalia5150
Natalia5150
 
Posts: 3632
VIP Member

Nitalynn

I applaud both your reasons for doing research,

I can see nothing at all wrong with your logic and reasoning.

I do worry about our new Warriors getting the research bug and then becoming depressed by the sites that do have agendas. In my mind, depression lets the devil himself win, and Fibro

Chronic Fatigue and Fibro share so many symptoms that even some doctors that many lump them together, and I can certainly understand this.

I dont know enough about CFS and haven't researched it, but I really hope you will share what you learn with us, because you may learn things, especially coping skills that will help us all.

Two thumbs up!!

hugs

natty

gentle hugs and a peck on the cheek,
Natty


I am an RN with a current license since 1984....sheesh that's a long time....but that doesn't mean I am a DOCTOR
I dispense advice freely but you should take it with a grain of salt and do your homework and check with your doctor.
He gets paid more so he must know more. Right?

I am truly sorry your are reading my post, because it means you are here at MD Junction instead of out skydiving or deep sea treasure hunting or climbing Mount Kilimanjaro.......

Empyema-
Fibeomyalgia
Hashimoto's
IBS=if you have to ask you don't want to know
severe osteo arthritis, spine/neck
DJD hips r knee some fingers
hypoglycemia, which is every bit annoying as hyper
otherwise not so serious if you pay attention
too many meds to count but for our purposes here:
Lyrica is back Yay!
Cymbalta
pain meds
Reply

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