MDJunction - People Helping People
 
Ask a Question
10/12/2008 03:55 PM

Does fibro continue to get worse?

joyousmom2
joyousmom2Posts: 46
Member

My fibro started with pain in my upper back and as time has gone by it has invaded my entire lower body. Recently it developed in my neck and jaws and occasionally in my hands. Is fibro defined to progress and get worse and worse? I know I can't work and have applied for social security but I do want to work. Honestly, this disease or disorder has unraveled my life. Has anyone every gotten better?
Reply

10/12/2008 04:14 PM
Janilee

Welcome to our fibro family jouousmom2. There are many different kinds of fibro going around. Me, I have the traveling kind. One day it'll be in my back, then it'll go away and the next day it'll be someplace else. We have remission times when it seems that it's gone away but it'll always come back. I've been good from May until now. However, I can feel the little twinges coming back. It's getting colder out and damp too. That's what trigers mine. RIght now it's in my shoulders. I applied for SSDI in Oct 2006, course I was turned down twice. Now we are waiting for the appointment with the judge or whatever he's called. They said it could take up to 2 years just to get a hearing date. That's in the state of Ohio. Hang in there. We're here for you.

10/12/2008 05:47 PM
Starr
Starr  
Posts: 3358
Senior Member

Welcome, joyous. I wish I knew the answer to that question. I have had fibro for about 5 years. It has definitely gotten much worse for me over the past year. But I believe that's because of the schedule I have put myslef into.

I moved here (Texas) in March of 2007. In April of 2007, I auditioned for a summer musical in a local theatre. Since then, I have been in rehearsals or performances, or sometimes both at the same time between two different theatres. And neither theatre is in the town I live in, so I drive anywhere from 30 to 60 minutes one way to get to them.I have had only two weeks off this entire year.

I do it because I love it, and it is what I was intended to do. I also do it to keep me "alive".

I suffer badly from fibro fog and permanent short-term memory problems from an accident I had many years ago. I feel that the rehearsal and memorization process helps keep my mind active.

I also feel that the schedule is reminiscent of the times when I was working. I had to be somewhere by a certain time, and I had to be dressed appropriately. If I did not have this, I think I would quickly find myself depressed and feeling sorry for myself. So I push myself to keep going and keep doing it.

My directors are aware of my condition. They know that when I show up at rehearsal on a cane, I'm having a bad day. They also know that when I show up on a performance night with a cane, I over-medicate myself to get through the performance. But it keeps me ALIVE!

I'm rambling, sorry. What I'm trying to say is I think my condition has been worsened by this schedule. When I finish the show I'm rehearsing for now, I'm going to take a badly-needed break and see if my condition improves at all or not.


10/12/2008 05:47 PM
asianmom
asianmom  
Posts: 435
Member

Mine was right after I had my second child...difficult pregnancy, too. That was 2 years ago... I couldn't figure why I wasn't getting back into things. I was getting worse...pain at 7 most days. Bad days 10+. Just outta nowhere...I noticed some changes with me when I was eating. Slowly, one by one, I decided to make some changes with my diet. I just found out a couple of months ago that ...now this is gonna sound strange....I just found out that orange cheese was the culprit! If I eat anything with orange cheese in it....flare!!!! My back and hip are at a 10+...the very next day!! Now..I still have aches and pains here and there just like Janilee. But, no where near a 10...or a 7..or a 5...or a 3! I'm at a 2 if that. I don't know how long this will last...I thank god every day for no pain. But, right now, I'm doing what I can. My mom has had this for 20 years. She is my rock in all this now. She has endured many, many doctors...and so called cures. I believe there are different levels and types of Fibro...it's different for many of us..all of us. But, we are all the same...suffering through this pain and what it does to us, our families and friends. Just like what Janilee said...you may even go into remission and not have any pain. Do as much research as you can. Come on here and talk with everyone and get more info and support you need. Just hang in there....meet some people here and share your story. You are not alone in all this. Trust me.

((((((((HUGS))))))))


10/12/2008 08:55 PM
Cori

I was diagnosed in March of this year. Since them my fibro has yes gotten much worse. I don't know if it progresses or not. Maybe it could be something else. Try to keep a journal and see if certain situations or food make things worse.

10/12/2008 09:07 PM
sleepwalking
sleepwalking  
Posts: 654
Member

For me yes, it get's worse every year. But everyone is different. Some do not progress beyond a certain stage.

They say that FM is not a progressive disease like cancer eating away at your tissue. But that doesn't mean we don't get progressively worse every year.

Here is some interesting information about the different levels of FM, researched by Dr. Pellegrino.

http://journals.aol.com/kmc528/Lifeasweknowit/entries/2007/ 08/26/dr.-pellegrino-and-dr.-yunus-on-fibromyalgia/1652


10/12/2008 09:09 PM
chowgirl
chowgirl  
Posts: 80
Member

Welcome JoyousMom2. I was diagonsed May of '07. Had to quit my very stressful job. The literature I have read about fibro says it is not progressive. Sorry to tell you that mine has gotten much worse since diagnosis. Maybe you'll be one of the lucky ones who doesn't get worse. Good luck and I hope being a member of the website will answer questions for you and help you in your struggle with this horrid condition.

10/13/2008 05:23 PM
joyousmom2
joyousmom2Posts: 46
Member

Thank you so much for your empathy and kind support. Today is a horrible fibro day. It woke me up this morning and is currently very strong in the area under my breasts. My hips almost stop me when I walk. I have terrible gastro issues. The other day I must have drank too much orange juice at my nephew's "Family Day" and promptly projetile vomited. Unfortunately, that's not a one-time occurence. On Friday I will see my primary doc and we're going to have a very serious talk about specialists and other possible aids to this. Like all of us, this condition has just put my "normal" life in the shredder. Again, thank you all for you kindness!

10/14/2008 08:34 AM
broken
broken  
Posts: 11033
Group Leader

I to have something going wrong with my neck arms hands shoulder and horrible eye headaches we are looking into thoracic outlet syndrom or at least I am I dont know what my doctor is doing exsept writting perscriptions I dont want and more bill I dont need

10/14/2008 08:46 AM
Starr
Starr  
Posts: 3358
Senior Member

What kind of doctor are you seeing?

Educating yourself is always good, but one bad thing about FM is that is has so many symptoms that could easily imply something else. It mimics many other conditions. Self-education is wise. Self-diagnosis is not advisable.

Have you been diagnosed with FM?

Reply

Share this discussion with your friends:
<< Start < Prev 1 Next > End >>


Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.
Contact Us | About Us
Copyright (c) 2006-2014 MDJunction.com All Rights Reserved