Fibromyalgia Support Group

Just wondering why upbeat posts are either rarely commented upon or fall off the front page here quicker than it takes to drink a cup of tea or coffee? Are they read? Is is that no one can be bothered to comment? Or is it, hope this is not the case, that people prefer to be negative instead of positive so inspirational or uplifting posts are considered not your cup of tea or coffee?!

Am an optimist- most people know this. Take time to be there for others when could easily choose not to do anything,yet, take the time as care about others. Also, take time to try to uplift as well as encourage plus to help people to be more positive in their outlook. Take the time even though am v challenged with a myriad of health problems plus high pains- take the time as care about you guys here. Yet, sometimes wonder why spend the time typing out my uplifting quotes or encouraging others to read inspirational diary entries or posts from other posters as often feels like nobody or only a handfull of you guys are listening.

Yes, sure you need to vent from time to time- we all do, including bat girl, yet, would it not help you also to appreciate the time it takes for others to share some inspirational as well as to open up these posts to see if they can lift your spirits?!!

Am venting here as it frustrates as well as angers me that some people here refuse to support positive posts or even try to be positive. We all have many challenges yet we can choose to be a fibro victim or a fibro survivor!!

Not wanting acknowledgement of my posts as such just want some participation plus to feel that there are some fellow upbeat fibromites here even with severe challenges like myself.

Lori our amazing GL put a phenomenally good post here called 'Something To Think About'yet either only a handful have seen it or only a handful have commented on it- makes me very annoyed to be honest with You!!

There are plenty of lovely posters here just wish more posters would take the time to make a little comment/just a few words to add something extra positive or to simply say Thanks on a positive post so it does not slip off the board quicker than it takes to drink a cup of tea or coffee.

Everything in this life is about balance. If these boards do not become more positive soon even this optimistic mostly philosophical bat girl will leave this SG that is for sure!!

Had a ghastly night with much pains so to see all these positive posts with no comment( both mine as well as others here) has made me most unhappy with this place!!

Clarita- bat girl from UK

I don't know about anyone else, but I have treaured and valued the positive and uplifting post I have read on this site. I can tell you that I often want to gush Oh, thank you, thank you, thank you. Being new to this community it just felt like too little for so much. And I have had the fear of becoming redundent.

With my big move underway and proving to myself I will never work full time again, the pain I've been is the worse I've endured since before I was diagnosed. It is the many Inspirational and humorus (sp?) posts that have kept me going.

When I"ve pushed myself until I can't move or burst into tears I take a wee bit of time to read the posts. Often I have thought I need to come back and tell them thank you.

Clarita, I look forward to your cheerful "voice" as well as others who endevor to delight and enlighten us. It may be a few days before I can get online again, but know that what will get me through are the Joyful things I keep in my heart that I get from here.

I dont have fancy graphics but ....THANK YOU, THANK YOU, THANK YOU !!!!!!

I don't know what your talking about because I've always seen very many replies to your posts, at times more than to an actual general discussion. That does bring up another point these posts it has been mentioned before not just to you but also to you. Any thread being started must be put in the correct category because that ensures it's not going to drop off so quickly. Topics such as this should always be in Lounge Off Topic you can make a thread specifically for Positive Posts and it will bump each time you post. Just my thought. Love youuuu!

um, could it be that sometimes a lot of us don't feel "up to it" when it comes to positive posts?

I don't know. I haven't been here for quite a while and I'm indecisive on whether or not this is my best sharing option on the web here. My general goal is to spend a lot less time online and a lot more time exercising and doing some deep relaxation exercises, besides quality time with good people in my life and a little work. But I do know positive support and understanding of my condition is something hard to come by so that's why I'm still lookin' around here, wondering whether or not to start a diary, wonderin' if anyone would read it.

Anyway, know that there's always good in life no matter how bad it seems or looks. It's a matter of always remembering the good is inside us and around us when we remain open to it.

Hugs,

Jazzineva

Post edited by: Jazzineva, at: 08/29/2010 06:51 AM

Clarita darling you know I love you, and I understand your hurt feeling where this is concern..

I think some days the positive does go by the way side but its because of the struggles people face.. i think there are days people myself included love to read positive post but then there are days they dont..

Its wonderful that you can stay positive in in that alone is an insperation, your positive helps more then you know but please understand its a balance of both.. people are just trying for answers and guidence or just to get things out, for that reason I belive is why MDJ works..it has to be both..I think its hard for someone who is so positive as your self to be brought down by others who arent..just keep on being you we need insperational post even when we think we dont..

Clarita, I'm sorry you are in so much pain and on top of that, angry! I can remember seeing many answers to lots of your wonderful, positive posts, perhaps not always but definitely more often than not. Speaking for myself, I have been going through alot personally and I will often come on and just read, if I answer, it will be to people reaching out for help. I'm very sorry if that offends you but I do hope you will stay and contiune with your positive outlook and posts!

love and hugs,

Thanks everyone for your replies, truly. Still feel v disillusioned with this group as a whole right now, to be honest with you all! Am severely affected with fibro plus other health challenges for over 13 yearsyet always find the time to support others plus try to inspire. Some of my posts do not recieve a single reply like my post yesterday Sublime Saturday Quotes- took time to choose these especially for you all- therefore it hurts to have zero comments. Not just me yet other posters here put up inspirational posts yet are rarely commented upon- too easily dismissed! Understand many people have a great many struggles that is why take time to try to support as many as can as well as inspire. Life is full of a myriad of challenges for me yet still take time to be dynamic as well as show appreciation to others. Just wish there was more respect here- just a simple Thank You or some positive comments. Yes, it is about balance yet feel there is not a good kind of balance here. Yes, not everyone is in the place to read something positive or make a comment yet there are a great many members here- cannot believe there are at least a handful who could take the time to say thanks or add something else positive to post. Feeling hurt as well as deeply frustrated.Care about others yet sometimes feel need to be where appreciated like on the Self Esteem & Positive Thinking Support Group.

Yes, people need answers as well as guidance yet for a positive post to be totally ignored amongst the others is not right- not just for me yet for others who try to help by being upbeat or posting some inspirational story- especially whilst we make the effort whilst fightiing tough battles too.

May feel differently after vacation, yet, may just leave here altogehter!! May just stick to my other group here plus keep in contact regularly with all the fibro friends by pms/hugs only.

Just ask you to show thanks to others when you can plus realise that people who post positive posts are also v challenged yet make the effort to be dynamic plus try to help others even with myriad of health challenges.

Will post where like when like also- as far too much of a rebel to do otherwise. Bat girl sees the world differently !

Love, Clarita( bat girl holding on v tightly- dolphin smiles too as have a v good hubby plus a wonder dog in Sebastian) xooxooxoox

For everyone here who has been genuinely kind- heartfelt thanks!! For everyone who appreciates me heartfelt thanks. For everyone who genuinely wants me to keep on being me without trying to mould me into anything else- heartfelt thanks.

Clarita, I'm so sorry. I didn't see the post that you did yesterday. Ill have to look back & find it. I do understand where you're coming from. I tried posting positively in another group for a while, but never got a response. Ill pay more attention to the positives as well!

Lots of love to you!

Awwww Bat Girl,

just sent you a PM on this very subject so wont go through it all again, but you are missing the big picture love....go back to the table of contents where they list all the posts and see how many people READ your posts, it is always triple to quadruple how many people comment.

You dont get to know this, only God does, but the very person you were meant to help just might be the so-sad-she-cannot-write-a-word-little-lady that heard and resonated with everything you wrote and was able to pull herself back from the brink of an act of suicidal elimination of all her problems.

Think about that.

Yes it is hard. I can take an hour to write a post, and sometimes longer. Because i re-read over and over and analyze how it might come across to an angry person, to a sad person, to a suicidal person. I know it is hard and very tiring....and when you dont know you can feel soul weary.

But honey, do what you do best, just do it in smaller doses, so that you dont get soo worn out, and trust that even if you never know, that your uplifting remarks helped the person they were meant to help!

We dont always get to know this, but we do get to have faith.

Love you so much!!!!

TT

Oh Clarita, you sweet and wonderful bat girl, sending you an extra, extra big hug today for being so uplifting here. I am a very quiet person so don't talk much, but I appreciate your wonderful positive thoughts every time, and fail to say thank you. I apologize for that. Not everyone here can be as "verbally" loving, giving, and positive as you are. You are very special in that way and we need you! Like Natty said, you are reaching more people than you probably realize. They read your posts and undoubtedly feel much better afterwards but fail to stop and say thank you. Thank you for sharing, and thank you most for being here for me and everyone else.

Hugs and love.