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FMS ForumsGeneral & SupportFibro & the flu
10/10/2008 12:33 AM
emma1980
emma1980
 
Posts: 691
Senior Member

To get a flu shot or not to get a flu shot – that’s the question all we FM patients face every winter. If we take the shot, we risk triggering an FM flare relapse. But if we don’t take the shot and get the flu, the effects can be severe and long lasting. What are we to do? I currently have the worse cold i have ever had, the idea of the flu is making me worry. I found this on a website while trying to work out whether getting the flu jab would be a good idea or not...what do you think?

***For patients with Fibromyalgia or ME/CFS, catching a cold is fraught with dire risks. Consequences can include cold symptoms that are far more severe and last longer than in non-patients, but the scariest risk is that a cold can lead to an FM flare or full blown ME/CFS relapse.

Secondary bacterial infections are also of special concern to patients, and these frequently cause more trouble than the cold itself, often necessitating medical treatment to help deal with the ensuing chronic bronchitis, sinusitis, tonsillitis, or pharyngitis. The usual course of action is prescription antibiotics, and although frequently effective in killing the bacterial culprit, antibiotics can exacerbate the digestive problems that already affect an estimated 80% of FM/ME/CFS patients who suffer from irritable bowel syndrome - IBS.

One can therefore easily understand the fear and anxiety a patient experiences at the first sign of an oncoming cold. To a patient, it means the possibility of several months of suffering.

Patients need to exercise extra caution in order to reduce this risk, and fortunately, there are some amazingly effective things you can do to stop a cold and prevent a relapse.

Hand-to-Hand Combat

It is helpful to be aware of a very important fact: The cold you catch will almost certainly come via the person you least suspect - you. Research has shown that cold viruses are usually spread by touching something that an infected person has recently touched. To reduce your chances of becoming infected, wash your hands frequently, and never touch your hands to your mouth, nose, or eyes - unless your hands are sparkling clean.

The first thing you should do when you arrive home is wash your hands with soap and water, particularly if you have been out in public. This should become your ritual, and I think it is the single most important thing patients can do to improve their health. Ask family members and guests to do the same, and they will respect you for it. Your house is your sanctuary, and you need to keep it virus free.

Cold bugs can also hitch their way into your house on items that you have touched while you were out in public, including your cell phone and keys. Prevent this from happening by wiping these items down with a sanitizing hand wipe such as those made by Clorox and Lysol. It takes only 30 seconds, and this ounce of prevention is worth many pounds of cure.

But what if a cold virus penetrates this incredibly effective defense network? Here are some tricks of the trade - insights I believe I am qualified to share as an ME/CFS patient and owner of ProHealth and ImmuneSupport.com.

Three Weapons in Your Drugstore or Grocery

Your arsenal requires only three weapons, all of which can be purchased at most major drugstores for about $10 each. And since a cold is like a wildfire - easy to deal with at first, but once it spreads, it’s probably too late - you will want to keep a supply of these on hand. If you think there is even the slightest possibility that you may be catching a cold, you need to employ all three immediately. Once the fuse is burning, you'll have a very short time to act, but if you hit it hard and fast within a few hours, in my experience you'll be able to stop it about 80% of the time.

Your first big gun is ZicamR Cold Remedy Nasal Gel (or Gel Swabs) - backed by impressive double blind research studies showing that it dramatically reduced the severity and duration of the common cold. It is hypothesized that the product’s ionic zinc disables common cold viruses (generally rhinoviruses) by preventing their ability to infect and re-infect cells. Regardless of the mechanism, the product is worth its weight in gold.

Zicam is sprayed or swabbed directly into each nostril at the first sign of a cold. Although it may cause a mild burning sensation for a minute of two, this is a good indication that a virus is indeed infecting your nose and making it more sensitive. Zicam does not cause this burning sensation unless the nasal tissue is raw.

A word of warning is in order: A small number of individuals have complained that Zicam has affected their sense of smell. My friends, family members, and I have used it with great success over the years and we have never experienced any problems. And research studies have not supported this claim. Nevertheless, if you are the cautious type, you should look into it.

Your second weapon is Zicam ‘Rapid Melts’, or Cold-EezeR throat lozenges. These products can be found in most drugstores in the cold care section, and provide ionic zinc in a very pleasant tasting form. Although both are backed by five or six published medical studies that prove their efficacy, I prefer the Rapid Melts because the lozenge dissolves and coats the mouth and throat in about two minutes; Cold-Eeze takes about 10 minutes.

Your third weapon, AirborneR, is available at most drug and grocery stores for about $9 and works as a potent immune stimulant. Although surprisingly effective at stopping a cold dead in its tracks, Airborne is not without at least some risks: Patients should be aware that immune system stimulants may cause a temporary worsening of FM/ME/CFS symptoms. Although this is temporary, Airborne may also cause wakefulness if taken late at night; patients should exercise caution and take the product only in the morning or afternoon.

I recommend prophylactic use of these products when the risk of catching a cold is high. Examples of these situations are air travel, social plans with someone who may have a cold, and living in a household where one of the family members is fighting a cold. I never fly without a quick application of Zicam, and it has served me well.

Even the best laid plans sometimes fail, and if you eventually succumb to a rare cold, you can delight in knowing that the vast majority of colds have passed you by and your health is all the better for it. In that case, get lots of rest and drink lots of fluids, use Zicam, Cold Eeze, and Airborne (which are not ProHealth products), eat lots of chicken noodle soup, and get to bed early.***

Courtesy of http://www.medhelp.org/user_journals/show/601

"When things go wrong and they sometimes will,
When the road you're trudging seems all uphill,
When the funds are low and the debts are high,
And you want to smile but you have to sigh,
When care is pressing you down a bit
Rest if you must, but dont you quit.

Success is failure turned inside out,
The silver tint of the clouds of doubt,
And you can never tell how close you are,
It may be near when it seems afar.
So, stick to the fight when you're hardest hit,
Its when things go wrong when you mustn't quit"
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10/10/2008 12:42 AM  Top
fibroforever
fibroforever
 
Posts: 3549
VIP Member

Great Flu Shot information for us Fibros! Thanks!

I don't get a flu shot any more. Several years back I did- and Youza!- you can imagine what happened. So now, I just suffer with the colds and flus. Great to now know the things to have on hand that will help though.

"When you feel like giving up, remember why you held on for so long in the first place." ~Unknown

10/10/2008 12:49 AM  Top
emma1980
emma1980
 
Posts: 691
Senior Member

Your welcome! Shame i live in England & cant find that stuff over here Laughing

Im torn with what to do, some people ive spoken to say the same as you, that they get flu after the shot others say they dont! I have no idea what to do. At the mo i have the cold from hell, im aching from top to toe & just generally feel like death. The big question is do i chance the shot? Dizzy

"When things go wrong and they sometimes will,
When the road you're trudging seems all uphill,
When the funds are low and the debts are high,
And you want to smile but you have to sigh,
When care is pressing you down a bit
Rest if you must, but dont you quit.

Success is failure turned inside out,
The silver tint of the clouds of doubt,
And you can never tell how close you are,
It may be near when it seems afar.
So, stick to the fight when you're hardest hit,
Its when things go wrong when you mustn't quit"

Previous discussions I participated in:
Hi
A favour...
PCOS/PCOD Group

10/10/2008 12:57 AM  Top
fibroforever
fibroforever
 
Posts: 3549
VIP Member

I wouldn't get it (obviously). But, it's a 'personal' decision, and a hard one at that.

Let us know what you decide. And we'll be thinking about ya.

"When you feel like giving up, remember why you held on for so long in the first place." ~Unknown

10/10/2008 05:34 AM  Top
Auntie3285
Auntie3285
 
Posts: 9086
VIP Member
I'm an Advocate

I have never had a flu shot. Hubby gets one every year and feels pretty miserable for about 3 days after.

Now with this Fibro mess, I m thinking a little more seriously about whether or not to get the shot but still leaning more toward ""no"".

Thanks for that information, Emma ...we keep Zicam in the med chest just for the reason in your article. I m sorry it isn t available where you are.

In answer to your dilemma of ""shot or not"" ...could you ask your dr. or PCP whether or not you should get the shot?


Previous discussions I participated in:
How to talk to another Mother
Hi
One question

10/10/2008 06:09 AM  Top
Barbkubacki

My husband Ron will NOT let me get a flu shot. Not after what it is has caused me in the past. I will not get one. Devil Devil

Post edited by: Barbkubacki, at: 10/10/2008 06:16


10/10/2008 06:31 AM  Top
Jeerie
Jeerie
 
Posts: 706
Member

I'm getting one despite the fibro. And I know that it affected me somehow in the past because I have days when I can still feel the spot in my arm muscle where I got it.

My problem is that two winters ago, I got a terrible case of chronic bronchitis. They had to keep putting me on stronger and stronger antibiotics. I have asthmas, so this can be serious for me. And I've gotten bronchitis and tonsilitis already and it's only Oct!! I would rather risk a fibro flare and feel crappy in that way (hay, I feel like crap already!) than risk a hospital visit for my breathing.

One word of warning about zinc losenges. I don't use them unless I have to because the labels will warn of stomach upset. With my IBS I sometimes don't want to add something else that can cause problems.

Also, the taste of cold-eeze itself makes me sick! ICK!! Halls Defense have drops that have vitamin C, zinc and echinasea (not sure how to spell it) and they taste really good. Just for those of you who might be a baby like me when it comes to the taste! Tongue


10/10/2008 06:33 AM  Top
Jeerie
Jeerie
 
Posts: 706
Member

One more thing...my hubby won't get a flu shot. He likes to think it makes him "get the flu" which I don't believe. Because he works in a school, he has a huge chance of bringing stuff home, so that's the other reason why both the baby and I will be getting the flu shot...but I will be asking about the mercury-free one for the baby. I really trust my pediatrician...he's great and easy to talk to, so I'll see what he says about it.

10/10/2008 07:36 AM  Top
Cori

That article was wonderful. I put Zicam on my Wal*Mart list. thank you so much as I am just getting over the icky cold and I have one little one in daycare, one in public school, my hubby in college, and I work with Inmates. So I think it's safe to say that we will get exposed to every single cold bug this year! Not good odds. Smile
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