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  "My mom suffers from Alzheimer's disease. " (cerealninja)

MDJunction to me

jaguar62"Here's a success story for you ,, there was this poor guy who all he ever did was work his butt off day in and day out, and would settle for no less than perfection which caused him to somewhat be an outcast among his peers.

But then people around him started to notice that failure wasn't an option and this guy could really get things moving in the direction they were supposed to go so when they had an issue they would hesitantly ask for assistance at first.

But as time went on more and more people started getting referred to him. Before you knew it he was recognized and he had a top executive job,Escalation Supervisor of the whole Eastern Coast of United States for a communications company was staying busy like he loved to do and helping people along the way and life was excellent, good salary and benefits ,loved going to work "everyday".

Then one day (it was a period of time ) it was over ...seemed like it disappeared in an instance (after being diagnosed with Parkinsons Disease at the age of 49) and it stayed that way forever it seemed and life was slowly deteriorating around him ..depressed , no motivation, no job, health issues getting progressively worse much faster than just Parkinson and then being told it has possibilities of being MSA (Multiple Systems Atrophy) well seeing as i wasn't working i started checking out sites online and just so happened on MDJunction and the Parkinsons Support Group and absolutely loved the forums and feed back from the GLs and found out it wasn't just poor me at all, it was lots of wonderful people who shared the same symptoms that i was and still am going thru every day but in a whole lot better more positive frame of mind . So after about a year of posting and reading the forums daily and meeting so many good people I knew i wanted to give back some of this well needed love that i had received , So I applied for a Group Leader Position and ...

I had a "new job" and its helping people as well as getting the necessary help I now require and I can do it 24 hrs a day if i want to ..HOW GOOD IS THAT .

THATS MY SUCCESS STORY/Testomonial
OH Yeah!I almost forgot the best part is the wonderful fellowship around the workplace,,

MDjunction has opened my eyes and offered me a new beginning to what was looking like a very dark end. thanks MDJ (and yes i do know where I would be without you.)
" (jaguar62)

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FMS ForumsGeneral & Supportanybody got the same problem?
08/24/2010 02:18 PM
mem187

i suposse to have fibro...got told last year i think in november.sence this year january i havent been able to work.right now i am on unpaid dissability leave.most of you know my storySad any way for the last few weeks or month's my hands and feet don't only hurt they burn like they on fire.anybody else that has fibro expirienced that?Sick
Reply

08/24/2010 02:43 PM  Top
mammy
mammy  
Posts: 7217
VIP Member

I have many symptoms for many illnesses but this is one I do not have. Sorry Sad wish I could be more helpful. You should report all new symptoms to your doctor.
Connie

I am not a doctor and do not play one on these forums so please consult your physician for actual medical advice.

08/24/2010 02:53 PM  Top
mem187

hey mammy,

thanks for your reply.i go see a rheumodoc soon,i was just wondering if any one else had that type of symptom

who has fibroPinch


08/24/2010 02:57 PM  Top
RedGirl
 
Posts: 1594
Senior Member

I don't currently have this problem but I have had it in the past. I was told it was a sign of reflex sympathetic dystrophy which, for me, was triggered by slamming my right foot into a wall. At first they thought I had broken my big toe but later I was told it was just jammed really badly. I began having the burning sensation in my foot after a few days and it hurt to have anything touch the foot. And then after some time (can't remember how long now) the other foot started having the same burning pain (was told it was nerve pain). The pain in my right foot was going up my leg to my knee. I was put on a really high dose of Lyrica for several months and that stopped the nerve pain. I don't know whether you've had any kind of injury but I know from personal experience that an injury to one extremity can trigger RSD and then it can spread to other extremities that haven't been injured. Be sure to tell your doc if you've had any injuries to any of your extremities or that may have triggered this. I'm no doctor and I want to be sure you know that but even if you've had no injury, please please mention this to your doc since it sounds a lot like nerve pain to me.

My very best wishes to you! I hope you can find something that helps.

Red

I am not a doctor or a lawyer. Any comments, posts, or responses I might make are made solely from my life experiences and are not intended in any way to be medical or legal advice so please do not take it as such.

"Nothing but heaven itself is better than a friend who is really a friend."
Plautus

"The language of friendship is not words but meanings."
Henry David Thoreau

"Life is hard. After all, it kills you."
Katharine Hepburn

08/24/2010 04:54 PM  Top
Stella77
Stella77  
Posts: 700
Member

Yes, I've have the burning on the bottoms of my feet, but not my hands. My skin used to feel like I had a severe sunburn, but that is gone now.
stella

Insanity is doing the same thing over and over and expecting a different result.

08/24/2010 10:45 PM  Top
puppymom2

I have had the burning with the tingling and numbness, mostly in my hands. The Cymbalta really helped with the burning and tingling. Good luck at the rheumy appt.

Traci


08/24/2010 10:50 PM  Top
mem187

thanks tracy,

a while ago i had the same feeling going up my neck ,one side and into my face,one side,weird feeling.is still there a little in my face,but my hands and the rest of my body is a #9 right now.Sick


08/24/2010 11:11 PM  Top
TrappedNFrustrated
TrappedNFrustrated  
Posts: 24
Member

I have the burning, tingling and numbness on the outside of my right thigh. It can feel like a there is a hot plate resting on the side of my leg that is about maybe 8 inches high to 3-4 inches across. I also get a feeling of a needle being slowly pushed through my heel. I sometimes also have the sensation of cold water running down my leg. Very strange things.

08/25/2010 04:56 AM  Top
PCG
PCG  
Posts: 2259
Senior Member

I have the burning feeling mostly on my face, neck and shoulders. And recently my feet, that have always been frozen like ice, have had very hot and tingly moments, sometimes days, then it passes Tongue

Hugs

Paula

Very funny Scotty, now beam down my clothes!
http://pcgaijin.deviantart.com/

I'm not a doctor, what I say comes from personal experience only.

Previous discussions I participated in:
pain
Happy Birthday
Let down by my husband!

08/25/2010 05:12 AM  Top
Natalia5150
Natalia5150  
Posts: 3632
VIP Member

Aww honey, I'm sorry. That must be terrible on top of everything else. my feet are almost always warmer than they ever used to be but my fingers are like ice...so I run around barefooted with hand warmers on...I wear my T shirts inside out and the lables cut off and only wear job bras because anything else is too uncomfortable...

If I were to go out in public they would take me in believing I was a senile old lady.....

my situation is funny and I share it only to bring a smile, because I can only imagine what having hot extremes would be like-went through menopause a few years ago and it was extreme,

so i can only imagine how uncomfortable you are and pray thhat this symptom passes quickly for you, in this heat who needs it?!

hugs

natty

gentle hugs and a peck on the cheek,
Natty


I am an RN with a current license since 1984....sheesh that's a long time....but that doesn't mean I am a DOCTOR
I dispense advice freely but you should take it with a grain of salt and do your homework and check with your doctor.
He gets paid more so he must know more. Right?

I am truly sorry your are reading my post, because it means you are here at MD Junction instead of out skydiving or deep sea treasure hunting or climbing Mount Kilimanjaro.......

Empyema-
Fibeomyalgia
Hashimoto's
IBS=if you have to ask you don't want to know
severe osteo arthritis, spine/neck
DJD hips r knee some fingers
hypoglycemia, which is every bit annoying as hyper
otherwise not so serious if you pay attention
too many meds to count but for our purposes here:
Lyrica is back Yay!
Cymbalta
pain meds

Previous discussions I participated in:
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Hobbies to keep my mind off pain
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