Fibromyalgia Support Group

Hi. I've been recently diagnosed with this and I've been feeling really depressed. It feels like now I know that there is this something about me that will never be "normal" again, I've been feeling a lot worse which is really wearing on me emotionally.

I am sorry to hear that you have this nasty little complaint,and that you are depressed,don't leave the depression get some help if it is starting to get on top of you.How long have you had the symptoms of fibro before you were diagnosed? Hope you start to feel better soon. malaluka.

Well, after the birth of my daughter, I thought it was all just normal, but then things didn't get better. My orthopedic specialist was telling me I had carpal tunnel, cubital tunnel, dequervein's tenosinovitus and dot, dot, dot. I had surgery on both wrists in January. It never seemed to get much better. I had asked him if he thought it was strange and he didn't think so, but I did. My G.P. thought so too and began testing me for Lyme Disease (which I had hoped was true), and all other auto-immune diseases. Anyhow, I got the diagnosis in June, and I think its just staring to hit me now that this isn't just going to go away. It's a lot to deal with.

Do you have Fibromyalgia as well?

Dear Hotep360,

Most tests for Lyme Disease are inaccurate. My experience has been this. I was diagnosed with Fibro and suffer all the symptoms (including terrible depression) as everybody else. I followed the advice of a post here to get my blood checked for Lyme at IGeneX Labs in CA, a Lyme Literate Lab. If your doctor has suspected Lyme, but has sent the blood to the wrong lab, you may be misdiagnosed. You may have Fibro too, but it may be being caused by Lyme Disease. Since your Dr. was smart enough to even think of Lyme, consider getting tested by IGeneX Labs which does not go by CDC guidelines. Those tests are somewhere around 30% accurate if that. IGeneX usually pegs it on the head. They did with me.

Hi Hotep yes I have fibro and also auto immune thyroid disease,some of the symptoms overlap,I have had both for about 6 years,I now know my limitations in what I can do and though I don't like it I have accepted it and am getting on with this new life of mine.I wish you all the best.

malaluka

I to have Fibro. I have had it for about 14 years now. Here is how I was diagnosid. You know they say it is usually from a tramatic episode or an accident. My tramatic episode was when my third child was borne with a very rare genetic disease that I didn't know my family carried till I was already pregnant with him. I had my second child,Cassandra, when my first born was 20 months old, Brenton. We thought Brenton was a normal little boy. He had no signs of anything except he had a bad case of jaundice & I had to leave him in the hospital for a few extra days after birth. When I was pregnant for my daughter I was very sick and had no energy at all. When she was born she was very sick and we let her go after a day because we didn't want her to suffer. It took 5 months to get her autopsy results and by then I just found out I was pregnant for my youngest, Dustin. At this time I had Brenton tested because he was always getting black & blue marks. I found out he had ITP and had to start him on IV treatments 10hrs a day 2 days in a row. The meds would last about 6 weeks and then we would do it all again. It was hard to go thru this with him because I was very sick thru my pregnancy again with Dustin. Dustin was taken out 9 weeks early because he was dieing in me. After 6 weeks in NICU they decided he needed a liver transplant. Within 24 hours Dustin and I headed out to Nebraska for his transplant. They told me a transplant would fix him. Little did I know it would just cause a hole load of other problems. When I got back home 3 months later I had an ICU set up in my house because I was determined to keep him out of the hospital. After my first month home I finally got some nursing help. When Dustin finally came off oxygen, when he was three, I lost my nursing help and I fell appart. Dustin was still a failure to thrive and needed alot of attention and physical therapy, etc. That is just the short version of what I went thru. Oh I forgot to say my husband hit the bottle so he wasn't much help with the boys especially Dustin's medical needs. That is when I finally was diagnosed with depression and a little later with fibro. I'm not telling you all of this for any sympathy. I did what I had to do and Dustin and Brenton are still with me today. Brenton is a year ahead in school and even though we had to have him have a spleenectomy he is the healthiest in the house, and probably the smartest. I never would have thought my 14 year out would be a sophmore taking honors classes and getting mostly A's. Dustin on the other hand is a little slow and has ADD/ADHD so I have my hands full with him but he has the biggest heart in the world. I'm very lucky to have them. I just get very overwhelmed when I have them ask me to do things with or for them and I hurt so much or don't have the energy. I know they wish I was like other Mom's but I try to explain to them that it is the disease. I don't know if this helps anyone but I have to say it helped me to get this off of my chest. The good news is that I am still married and I have my husband back. He has been sober for over 7 years now. Thankyou for listening.

You know, my acupuncturist was saying that from the beginning, that I should request a retest for Lyme. Silly me, I was embarrassed to ask my doc. I felt like he'd be offended at my "questioning his expertise". Unfortunately, my doctor , G.P., just switched practices. Now I'm searching for a good G.P., but many doctors won't take my State assisted insurance. I could really use a great doctor, but how do I find one? Also, I know we're all in pain and if a medication helps, GREAT. But I've always been more of an Earthy spirit, and I'd love to be free from all these side effects & I truly just hate pills! I'm on Lyrica right now, but it really isn't doing much. Acupuncture helps, but I'd love to learn some holistic methods for pain management that ACTUALLY work...

I am SO, SO sorry to hear your story. I think that its inevitable that those who suffer most are closest to god. I'm not speaking of a particular faith, just in general. I think there's something to that. It's been a long road for you, but obviously your boys are a blessing. Thank you for sharing.

hoter360, I have to agree with you. My boys are definately a gift from God. They are my miracle boys. Lee