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mabri"When I was diagnosed about 18 months ago with fibromyalgia, I didn't know where to turn. I got on my computer and looked for a support group where I could talk to other people with the same disease and get some help...Information, suggestions, mostly just what I can do now that I have this.....disorder/disease/syndrome...I didn't even know what to call it. I found MDJ, and yes, there was a support group for fibro. I started a post, and figured I would never get an answer. However, very quickly I was welcomed in, and became really involved in the group. I received help, support, friendship and the feeling of being truly cared about by these strangers who had become like family to me. Now, I have been here for about a year and a half...I have become a group leader, and love every minute of it. It is so wonderful to be able to help others. I still receive help and answers from the members in this group. The fibromyalgia is where I go to help, support, listen, care and even laugh. I don't know what I would do without this group." (mabri)

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FMS ForumsGeneral & SupportDirty words...and phrases
07/10/2010 05:51 PM
raynedae
raynedae
 
Posts: 8219
VIP Member

Stupid (unless you're talking about your doctor)

Crazy (I'm really guilty of using this one)

Mess (when referring to anything except your OWN house)

Dumb (see above)

Retarded

I know how you feel (no, you don't!)

That's nothing, I.... (yes, it is something!)

I know we're all guilty of using these words and phrases but they can cause reactions from anger to intense sadness. "That's nothing" is particularly a really hurtful term...it's so dismissive of another's experiences and pain.

Anytime you read something that makes you angry in this forum, feel free to write a scathing reply...but then read it to yourself several times, then DELETE IT and start again.

Remember my friends that this is a support group. We support others here, we don't tear them down. No matter how "severe" your doctor says your case or your pain is, remember the rest of the group is also in a great deal of pain--you might not believe it's as severe as yours, but it's pain nevertheless.

Play nice or take your toys and find another support group.

Yes, today I am the bad Devil cop of this support group. I'm allowed...I'm a Group Leader. If you disagree with me, feel free to PM Lori or Roy and complain.

Feel free to add the words or phrases that you find hurtful, I for one don't want to hurt anyone accidentally.

Love & hugs,

rayn

I am not a medical professional so please exercise common sense when it comes to my advice.

I am also NOT a lawyer so exercise common sense when it comes to my advice.

I was a bookseller so you can trust my advice regarding books :)

www.operationbeautiful.com
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07/10/2010 06:01 PM  Top
bittersweetlife

I appreciate you putting this post up. Frankly, I'm surprised it didn't come sooner. I think we need to be more sensitive to others feelings here because this IS a support group.

Thank you Rayne, for being bad cop!! I respect you even more for it!!


07/10/2010 06:22 PM  Top
MissStacey
MissStacey
 
Posts: 14847
VIP Member
I'm an Advocate

It's definately been awhile coming...here's two more off the top of my head.

Lazy

"Get a life"

I'm sure I will think of more, I'm kinda out of it right now.

I suffer from Rapid Progressive MS, Lupus, Fibromyalgia, Epilepsy, Migraines, Neuropathy, IBS, Narcolepsy, Arrythmia, Arthritis and too much more complete list on profile.

"Just because we have the right to disagree with a person, does NOT give us the right to disrespect that person."

I'm not currently active due to many personal and medical issues. I will not be participating in MDJ for awhile, my thoughts and prayers are with everyone. I hope everyone is well and I appreciate all of the thoughts, kind words and messages. I have tried to respond as much as possible and apologize if I have not gotten back to everyone. Love & Hugs, Stacey

07/10/2010 07:08 PM  Top
puppymom2

Thanks Rayne, bad cop is never an easy job but I appreciate the reminder to be careful of others feelings.

I think it is also good to remember that readers can't hear the tone or emotion in our voices that would be heard if we were speaking. And so I worry that something I write might be misinterpreted. I try to make sure that I write what I mean and I don't rely on my voice to make my meaning clear.


07/10/2010 08:10 PM  Top
raynedae
raynedae
 
Posts: 8219
VIP Member

That's a great reminder, Puppymom. If you're trying to be funny (and don't we all now and then?) and think you might be misunderstood, you can put j/k after your joke. I think that's an abbreviation for "just kidding".

I ought to end most of my posts with that as I'm always TRYING (emphasis on trying) to be funny Smile I'm hilarious in my own mind Laughing

rayn

I am not a medical professional so please exercise common sense when it comes to my advice.

I am also NOT a lawyer so exercise common sense when it comes to my advice.

I was a bookseller so you can trust my advice regarding books :)

www.operationbeautiful.com

Previous discussions I participated in:
gabapantin
hi
new to site

07/10/2010 08:12 PM  Top
raynedae
raynedae
 
Posts: 8219
VIP Member

Oh, but don't say something hurtful and then claim to be j/k...cruel is cruel and j/k don't make it funny!!!!
rayn

I am not a medical professional so please exercise common sense when it comes to my advice.

I am also NOT a lawyer so exercise common sense when it comes to my advice.

I was a bookseller so you can trust my advice regarding books :)

www.operationbeautiful.com

Previous discussions I participated in:
gabapantin
hi
new to site

07/11/2010 02:12 AM  Top
oroman
oroman
 
Posts: 1539
Senior Member

What a good point you have made by making us more aware of how we express our thoughts without a second thought or proof reading every thing we write.

07/11/2010 05:10 AM  Top
oregonnative
oregonnative
 
Posts: 5127
VIP Member

Good job, Rayne. Always good to be prodded to be mindful of what we are writing and who we are talking to. Thanks!
Shoot for the moon...if you miss it, reach out and grab a star.
Karen

I am not a medical professional. All comments are based on my own experience and/or from articles I have read.

07/11/2010 06:59 AM  Top
Clarita
Clarita
 
Posts: 10773
VIP Member

Rayne,totally right to put this to us all- vital that we all think carefully about our words plus how they may make others feel as we do all need to be really careful in our choice of words so that we do not upset or anger anyone as this is a support group so we all need to feel supported/be supportive of one another!! As a GL you have a responsibility to ensure the group runs smoothly too so good job Rayne!!

Big hugs to all, Love Clarita Smilexooxooxoox


07/11/2010 09:11 AM  Top
HAMPTON7026
HAMPTON7026
 
Posts: 1366
VIP Member
I'm an Advocate

Thank you rayne!! I agree with you 100%!! Now for those of you that don't know who Lori is, well that would be me and I play bad cop everyday and have been for many years now. So play nice and don't complain to me because I can and will hit the button.

This is a simple request and a reminder to all to choose your words carefully when posting. We are a family here and don't want anyone to get there feelings hurt. Keep supporting and caring for each other and everything will be fine.

Hugs to all,

Lori

I'm not a dr, anything stated in my post are from my own personal experiences.

I am a Herbalife distributor and have been trained in nutrition and weightloss. If you have any questions please send me a pm.

Never give up the fight we are all in this together.

Lori
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