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05/16/2010 08:16 PM
KJ71
Posts: 19
Member

I was diagnosed about a year ago. I have been on lyrica since then. I don't feel it is working for me. I am taking 200mg a day. I do not want pain medication. i would like something to block the nerve pain. I will be making an appointment to go back in to see what we can do. Any suggestions? I have tried cymbalta but it made me sick to my stomach. Thank you
Reply

05/16/2010 09:40 PM  Top
raynedae
raynedae  
Posts: 8219
VIP Member

I couldn't tolerate Lyrica, after about 6 weeks it made my hands & feet swell & made the pain worse. So my doc switched me to Cymbalta which I've never had any problems with.

I lost my insurance and my doc switched me to Celexa (citalprom) which I could get at Walmart for $4. It worked nearly as well as the Cymbalta and again I had no side effects from it.

I finally got the VA to supply me with Cymbalta, but it was a hard fight and I was flaring pretty bad by the time I got it. The nerve pain was back so my doc put me on Neurontin (gabapentin). It's only a couple of molecules different from Lyrica, but I haven't had any bad side effects in the 4 months or so I've been on it.

I also take flexeril for muscle spasms, klonopin for anxiety and meloxicam (Mobic) for osteo arthritis. I ran out for about 5 days and discovered that it did help with the muscle pain.

rayn

I am not a medical professional so please exercise common sense when it comes to my advice.

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05/17/2010 05:46 AM  Top
Auntie3285
Auntie3285  
Posts: 9112
VIP Member
I'm an Advocate

Hello KJ,

Welcome to our group ~~ Smile

I seem to be one of the few that can tolerate Lyrica (I ve been taking it for 3 years now). Sorry you weren t able to continue it.

Just last month, my PCP added Cymbalta and it has improved my exhaustion as well as energy levels to a noticable degree .

Finding the right combination of meds for our pain requires cooperation between patient and dr. as well as good communication in being able to get the point thru to the dr. as to what helps and doesn t help us as well as the side effects for some but not others.

I wish you luck in finding that combination .

Glad you re here ~~~ Smile

Marilyn


05/17/2010 06:02 AM  Top
Adewyn
Adewyn  
Posts: 5027
Group Leader

ask your doc to increasing the dose you have of lyrica i had to go from 150 a day to 300 mg a day and that sseems to be the majic number of the moment.. I have plenty of romm to still increase on lyrica if needed I also take flexril at bedtime to relax the muscles....

good luck let us know what the doc says Smile


05/20/2010 07:02 PM  Top
KJ71
Posts: 19
Member

I do not know if I will be able to take 300mg during the day. I am still trying to work doing home health care.Sometimes the lyrica makes me really tired and I dont feel safe driving...well with all those texting drivers who does lol. Thank you all for your support & I will post again as soon as I find out anything from the doctor.

Previous discussions I participated in:
does the doc know?

05/21/2010 12:30 PM  Top
RedGirl
 
Posts: 1594
Senior Member

I found that higher doses of Lyrica cause me to retain fluid much more which increases my pain. I think we all have to find out "magic number" with Lyrica. It can be a difficult balancing act with this medication.

Good luck,

Red

I am not a doctor or a lawyer. Any comments, posts, or responses I might make are made solely from my life experiences and are not intended in any way to be medical or legal advice so please do not take it as such.

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05/21/2010 01:26 PM  Top
KJ71
Posts: 19
Member

Thank you all for the information. I talked to my doctor today & he put me on neurontin.I will be starting at 900mg a day. I really hope this one will work Smile

Previous discussions I participated in:
does the doc know?
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