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08/23/2008 03:56 PM

Remissions

raynedae
raynedae  
Posts: 8219
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Now I haven't been diagnosed all that long but I know I've had fibro since at least 1986. It's gotten progressively worse over the years.

This present flare started this spring and my diagnosis soon followed. Thinking back I know that I had the nerve pain that lead to my diagnosis at least twice prior to this. The last time I reported it to my doctor and she told me it was anatomically impossible to have nerve pain concurrently in my arms and legs--at the time I thought it was coming from the pain in my neck. I was under a lot of stress then from some serious health problems and a bad marriage. I left the man and my pain got better--it didn't go away but it subsided to my usual aches & pains, mostly muscular but only maybe a "two". (Useless pain scaleAngry )

Anyway, I would call this a remission. I felt great compared to how I feel today and everyday since March. How about you? Have you ever experienced a remission? Do you think it can happen again?

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08/23/2008 04:07 PM
Janilee

Rayne, Last year this time we were getting ready to go on vacation. I had the worst fibro pain you could imagine and it seemed to all settle in my left leg and foot. After coming home from vacation, our rainy fall and winter set in. There were days I didn't get out of bed except to go to the bathroom or get something to eat. Then all of a sudden I woke up one morning and nothing hurt. I've been that way with just a few exception days of aches and pains when I overdid myself since this spring. I'm dreading the rainy weather ahead.

08/23/2008 04:28 PM
tsage
tsage  
Posts: 708
Member

Wow...I sure hope I go into remission at some point. I'd be thankful for any extended periods of pain relief.

I'm so sorry your pain returned and hope you go into remission again soon.


08/24/2008 10:02 AM
raynedae
raynedae  
Posts: 8219
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Our weather was all over the place the last couple of weeks--we had 100+ weather then 60s & wet. It's been the weirdest summer in OR. When it was really hot my hands and feet swelled like I was back on Lyrica and of course I couldn't sleep--very few people have a/c here. Then when the monsoon returned, it was suddenly October in August, cold, wet & windy and my poor body didn't know what to do. I was hurting and very, very tired. Now the weather is perfect, warm but not hot and clear blue skies and I'm feeling pretty good. I'm reminded of what my Grandma always called her "rheumatism"...she could tell the weather based on her body pain. I'll bet it was fibromyalgia. I guess we're now weathervanes Smile

08/26/2008 11:09 AM
Tiredoftired
Tiredoftired  
Posts: 158
Member

Hi Raynedae,

I would call right now being in remission for me. I haven't had any severe pain for about a month now. Aches and pains here and there, but nothing compaired to how it's been in the past. I'm hoping it lasts for a while! When it finally goes away, I hope it comes back very soon. Smile


08/26/2008 05:44 PM
griffygirl
griffygirlPosts: 470
Member

Rayn, I was in remission for over twenty years! During that time, I was very physically active, even over- active. I started off swimming- I was so weak I couldn't make it from one end of the pool to the other, but I kept it up. Eventually, I was swimming several laps. My MD said if I kept my muscles extremely toned, the FM would stay away. Worked as long as I could stay active. Not sure if it was the activity, or just plain luck.

08/28/2008 10:06 PM
raynedae
raynedae  
Posts: 8219
VIP Member

Remissions! I was starting to think they were a myth Smile That gives me hope that someday I might feel normal again. Any idea what caused your remission to end, Griffygirl?

08/29/2008 08:24 AM
Janilee

Hi rayne, Remissions just show up. Other than a few normal aches and pains this summer, I was doing good. I'm still with the fatigue though but atleast I don't hurt. Now my knees are hurting but only when I try to get up.

I was in pain last year to the point of using a cane. Then one day, I woke up and nothing hurt. Been that way since the beginning of summer.


08/29/2008 09:09 AM
Jeerie
Jeerie  
Posts: 706
Member

I would LOVE to have a remission. My pain has been constant unless I take the percocet. I am still fighting to find the balance between what I should do/can do and what is overdoing it. Right now, I know I'm overdoing it but when I dont' the place looks like a bomb landed! It causes me more stress to see it that way. Plus I have to keep the house clean since my daughter is becoming more mobile by the day!

08/29/2008 09:43 AM
griffygirl
griffygirlPosts: 470
Member

Rayne, my remission came on very slowly; one week, I might be feeling a little better, gradually I began to trust that I wouldn't have to pay for any activity with pain & exhaustion. I had gone to a trial clinic in a hosp., where they forced me to get up at a 7:00, eat at a certain time, then excercise. There were specialists who showed us (about 10 people) hoe to stretch, we did t'ai chi, then went to relaxation specialist one-on-one where I did biofeedback to learn to relax my muscles at will. I think some counciling was also involved. The first week was pure hell- all I wanted was to sleep & be left alone! I even fell asleep while doing some sit-ups! Luckily, they had a massage therapist to gently rub me down every evening, and a hot hydro thrapy tub. After two weeks, I noticed an improvement. after 8 wks, I was nearly normal. I don't know if there are any programs like this one now, it was many yrs. ago. has anyone else heard of a similar program?
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