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FMS ForumsGeneral & SupportSavella
04/29/2010 06:15 AM
karenmsmith77
karenmsmith77  
Posts: 186
Member

Okay so after the debate of what to try, I went to my doctor yesterday and we talked. We decided it was best I try Savella first. I took my first pill last night. So far so good. FOr anyone that had side affects with it, what were they and how long did it take for them to show up?

Also if you are on Savella what are you taking with it?

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04/29/2010 07:59 AM  Top
MissStacey
MissStacey  
Posts: 14843
VIP Member
I'm an Advocate

I have never taken Savella but not many people were able to handle it for very long due to the side effects. Type in Savella at the tope right search box of the site and you can read threads on Savella. Cymbalta has had the most positive results, I wish I was able to try it but it interacts with my meds and I am not able to. Many people have positive experience with Neurontin as well, it didnt work for me but I didnt have any negative reaction to it just crazy vivid dreams and it wasnt working so they took me off of it rather than upping the dose any further. Lyrica was very bad for me but has worked for a few people on here very well. There is even a person on here that has been taking Lyrica for 3 years now successfully, they did just add Cymbalata to make a combo and in only a couple of days she is seeing positive results as well. Good Luck with the Savella, I truly hope it works well for you! Hugs, Stacey Wink
I suffer from Rapid Progressive MS, Lupus, Fibromyalgia, Epilepsy, Migraines, Neuropathy, IBS, Narcolepsy, Arrythmia, Arthritis and too much more complete list on profile.

"Just because we have the right to disagree with a person, does NOT give us the right to disrespect that person."

I'm not currently active due to many personal and medical issues. I will not be participating in MDJ for awhile, my thoughts and prayers are with everyone. I hope everyone is well and I appreciate all of the thoughts, kind words and messages. I have tried to respond as much as possible and apologize if I have not gotten back to everyone. Love & Hugs, Stacey

04/29/2010 08:42 AM  Top
dudeybear
dudeybearPosts: 12
Member

Hey Karen :] i was recently diagnosed with fibro in december of 09. the first medication that my neurologist put me on was Savella. i was also taking Trazadone at night. i started with the titration pack, so my dose slowly went up. everything was ok the first couple of days, and then i started getting really nauseous and started throwing up. then it got to the point that i couldn't eat. just the thought of food would make me want to vomit. then i didn't eat for 5 days straight and i lost 11 pounds. so needless to say, i stopped taking the Savella. The next med the doc is trying is Cymbalta, but i haven't noticed a difference in my pain, and ive been on it for 2 months already. i went to my rheumy yesterday, and she added Flexeril to my night time meds. we'll see how that goes! good luck with the Savella, i hope it works for you! keep us updated :]

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04/29/2010 10:03 AM  Top
Sinatra45
Sinatra45  
Posts: 20
Member

Hi...I tried Savella and it seemed to take some of the pain away but the side effects were so bad I had to quit..My blood pressure went high, had heart palpitations, had hallucinatory dreams and just terrible thoughts...I feel at such a loss..I am back on oxycodone, gabapentin and sertraline..I am feeling so helpless and hopeless..I keep working 40 hrs but am dead at the end of the day and feel useless to my family..
48 F Auto accident in 2008, whiplash and spinal cord contusion injury, cervical fusion surgery (ACDFc-5) in 2009. recently dx fibro. Nerve and muscular pain, plus depression, fatigue and anxiety. Taking pain medications, cymbalta, welbutrin

04/29/2010 10:25 AM  Top
karenmsmith77
karenmsmith77  
Posts: 186
Member

I will look out for heart palpitations for sure. Dont know if I would recognize the sweats as being from this med or not though. I am on a hormone shot that make it simulate menopause. I often get night sweats already. I tried looking for a complete list of side affects on their website, but could only find a partial list. I think that is odd.

@ Sinatra hang in there hunny. I dont know how you are doing 40 hours a week. I had to quit work a long time ago. I live on disability and any other government and private assistance I can find. Though I feel like I am a drain on my parents sometime, since they help me financially a lot. Its hard to live off $650 a month.


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