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Barbkubacki
Posts: 1213
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My grandmother was so loving and kind,caring, funny. I don't remember her picking me up. We were so poor that every year when it was my grandfathers birthday she would give us back the card from the year before and he never knew. She would put change in a jar each year and at christmas she would give it to us so that we could buy presents. Halloween we always used the front door and she would act surprised. She had our bags ready with candy corn and a $1. Those are the good memories of my grandmother. That is what we need to do is be creative with little things. I loved my grandmother with all my heart. |
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tsage
Posts: 665
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I overexhert myself often. Most of us seem to be "type A" personalities, so it's difficult for us to let go and ask for help. My parents are thinking about buying a condo, so I went with my mom to speak with a real estate agent yesterday afternoon. During the conversation she called me "disabled". I was in shock and felt so weird. The guy was probably wondering what the heck was wrong with me because I don't look disabled. UGH!! tsage May God heal your body and soul. May your pain cease, May your strength increase, May your fears be released, May blessings, love, and joy surround you. www.fmaware.org |
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Debi
Posts: 137
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i over exert too. My husband is really good about keeping me under control when he's with me. I understand about the steering wheel too. Mine is in the lowest position that it can go because my arms get so tired trying to hold them up. My husband also bought me a big fuzzy cover for it when my hands hurt so bad that I can't grip the steering wheel. I also have trouble when it gets too hot or too cold. The extreme temperatures hurt my hands. I have Raynaud's disease as well. I'm also getting better at asking for help. My boys try to anticipate what I may need and help me a lot. |
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griffygirl
 Posts: 131
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I have seen that dreaded "you don't look sick" expression on strangers faces, as well. But I have begun to be very good at asking for help, regardless. When I'm feeling poorly, I ask the clerks to please put my bags in the cart for me, and that I will be needing someone to load my car. As to the funny looks, I don't care what a total stranger thinks--they don't have all the facts, and I don't owe them any explanation; certainly not my private health history! |
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mamalama
Posts: 108
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tsage----you've got the personality thing right. But i think of it like this--if i as a mother don't take care of myself then what good am i too my kids. Yes it's been very, very hard to realize that i can't clean the house all in 1 day anymore but ya know--i'm enjoying alot of other things now. Just on a side not---my son turned 13 yesterday and we found out today that he has to have his tonsils and adnoids removed |
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mamalama
Posts: 108
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it's hard though too when you have teenage children that are active in after school activities you can't always take the time you need to rest. |
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broken
Posts: 660
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I always know Im not alone in this group and this subject proves my point,from grandmas, young moms ,to older moms, and not moms yet,and I wont for get our men,we have all struggled in our lives to come to grips what is happening I agree you have to find joy in your way and maybe you cant be the energenic person you want to be,or the fun mom I thought about that today with my children from 19-6 (today)5 of them) I am the only me there is for them their mom one day grandma,I dont want to have a pitty party and that I think is part of the problem I feel robbed of the life I should have,I had told a friend one time who has rsd that we need to have a funeral for our selfs we both had our career in elderly care taken away with seperate injuries and honestly that was the worst part of this I lost myself I lost the job that was more rewarding then words could say I lost the mother and wife I wanted to be,but I've really thought about it today and Im going to find a new me even if Im "broken" thank you all for your understanding |
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DEE30
Posts: 119
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oh my , i know how everyone feels,i was diagnosed when i was 26, now am 30. after being diagnosed my life has been an uphill battle. i swear that every ache and diagnosis that comes with fibro i have been diagnosed with.i have had to switch career paths.my husband has been wonderful and tries to understand. my mother however i dont think will ever understand. trying to explain to her that i'm not lazy, i'm tired is just pointless. everytime i get a new symptom i feel discouraged as well. every time my meds get upped i cry. today my lyrica was just upped 75mg and i often wonder what my future has to hold as far as my health. my husband is 43 and in wonderful health and i am 30 and i have the health of a 50 year old. i HATE the word diabled, it makes me feel like i'm not the person i use to be.( which is true, i'm not). i told my husband about 3 weeks ago, i want to stop all of these meds and go back to my normal life, then realizing this is my life and fibromyalgia will be a part of me for the rest of my life. with the fibro,tmj,ibs,over active bladder and interstitial cystitis, it is difficult to lead a normal life. my husband and i have decided no to have children due to my fibro and not knowing what the future has to hold with it. i feel as though i am missing so much of a normal life , however i keep trying and never give up. i feel for those of you that have similar issues. its hard and i am so sorry you have to go through this, i dont wish fibro on anyone. everyone please keep your chin up and never give up, this is your life!!!!  prayers to everyone |
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griffygirl
Posts: 131
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"Dee30", I couldn't have said it better! None of us set out to have this in our lives; we all had much different ideas of what our lives would be like. But a wise person once said, " you can't control the cards that are dealt you--you can only control how you play the hand." |
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DEE30
Posts: 119
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griifygirl, thanks i will try to keep in mind your quote. |
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"In the 3 months I have been with MDJunction I have developed a sense of calmness. I now friends who do not judge me because I have been a mental mess at times. It is such a good feeling to have friends I can tell my deepest thoughts and always get back to me with their support. I have never seen a therapist for long periods of time. Right or wrong, this is the best therapy possible for me. Thanks Roy for getting this up and running and making such a difference in my life. Sara" (saralaurie)
