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Mrsdeh Posts: 2
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How do you make your family understand FMS? I am always exhausted and in pain,all I want to do is stay at home and rest. I have to push myself in order to go to work. My family is important to me, but I don't enjoy being around friends and other family members because i don't feel well.
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MissStacey Posts: 14847
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I suffer from Rapid Progressive MS, Lupus, Fibromyalgia, Epilepsy, Migraines, Neuropathy, IBS, Narcolepsy, Arrythmia, Arthritis and too much more complete list on profile.
"Just because we have the right to disagree with a person, does NOT give us the right to disrespect that person."
I'm not currently active due to many personal and medical issues. I will not be participating in MDJ for awhile, my thoughts and prayers are with everyone. I hope everyone is well and I appreciate all of the thoughts, kind words and messages. I have tried to respond as much as possible and apologize if I have not gotten back to everyone. Love & Hugs, Stacey |
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RedGirl Posts: 1594
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It is very very difficult to explain fibromyalgia to anyone, including family members. Miss Stacey (I think -- fibrofog) has some really good articles explaining fibro. Maybe you can get some of your family members to read those. I finally figured out that unless people have fibro, they are going to have a very difficult time understanding how you feel. But your family, who truly loves you, will eventually figure out why you feel so bad. I'm so sorry you are going through this and hope things get easier for you soon! Many hugs and best wishes! Red I am not a doctor or a lawyer. Any comments, posts, or responses I might make are made solely from my life experiences and are not intended in any way to be medical or legal advice so please do not take it as such.
"Nothing but heaven itself is better than a friend who is really a friend."
Plautus
"The language of friendship is not words but meanings."
Henry David Thoreau
"Life is hard. After all, it kills you."
Katharine Hepburn |
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Natalia5150 Posts: 3632
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awww honey, sounds you don't have sufficient pain control, or you are in one continual unenduringly painful flare. Also sounds like your doctor isn't working with you. Have you told your doc what's going on? Re: Your family, it is one of the biggest dilemmas that fibro folk struggle with. There are articles and books that can be given to family if you think they would read them. We will have suggestions for you in the regular area, but you are not alone. A lot of our members have problems with family, because , we don't look sick and most of those people cannot tell the diffferances in the eyes between normal and pain. You have lots of friends to meet and lots of support to get, know that you are welcome and we are happy you are here! hugs Natalia  gentle hugs and a peck on the cheek,
Natty
I am an RN with a current license since 1984....sheesh that's a long time....but that doesn't mean I am a DOCTOR
I dispense advice freely but you should take it with a grain of salt and do your homework and check with your doctor.
He gets paid more so he must know more. Right?
I am truly sorry your are reading my post, because it means you are here at MD Junction instead of out skydiving or deep sea treasure hunting or climbing Mount Kilimanjaro.......
Empyema-
Fibeomyalgia
Hashimoto's
IBS=if you have to ask you don't want to know
severe osteo arthritis, spine/neck
DJD hips r knee some fingers
hypoglycemia, which is every bit annoying as hyper
otherwise not so serious if you pay attention
too many meds to count but for our purposes here:
Lyrica is back Yay!
Cymbalta
pain meds |
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MissStacey Posts: 14847
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Red lol we posted at the exact same time!  I suffer from Rapid Progressive MS, Lupus, Fibromyalgia, Epilepsy, Migraines, Neuropathy, IBS, Narcolepsy, Arrythmia, Arthritis and too much more complete list on profile.
"Just because we have the right to disagree with a person, does NOT give us the right to disrespect that person."
I'm not currently active due to many personal and medical issues. I will not be participating in MDJ for awhile, my thoughts and prayers are with everyone. I hope everyone is well and I appreciate all of the thoughts, kind words and messages. I have tried to respond as much as possible and apologize if I have not gotten back to everyone. Love & Hugs, Stacey |
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Auntie3285 Posts: 9086
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Hello Mrs., Welcome to our group ~~~ I, too, have a problem getting family members (hubby in particular) to understand that I am feeling so badly and that I sometimes just don t want to be around other people at all. I want peace and quiet and to relax. I am around people all day at work and sometimes other functions after work so when I come home, I want to pace myself and totally relax (not necessarily sleep or go to bed or anything like that) ... Kinda just leave me alone for awhile while I regroup !!! Glad you re here and looking forward to getting to know you better soon ~~~ Marilyn |
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Mooky Posts: 96
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It's almost as hard on our family as it is on us. My hubby is sympothetic most of the time but he gets really frustrated if I can't do things around the house because he works two jobs (I do too) and he has to do alot of things around the house as well. I try not to complain too much but if I don't say anything, he doesn't know how bad I'm hurting. It's an ongoing struggle. |
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jess998 Posts: 130
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So true. It would be a lot easier if we looked sick. My aunt is the only person that can tell how I feel just by looking at my eyes. She has trigeminal neuralgia and really understands our pain. Be patient. It took my people awhile to get used to this. Jess998 |
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RedGirl Posts: 1594
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I agree it would be much easier if we actually looked sick. How many times have we all heard, "Well, you look just fine!" grrrrrrrr  Afraid that ticks me off! My daughter is very understanding -- unfortunately because of all her own health problems -- and I have one cousin who is understanding. One of my brothers constantly tries to come up with a way to "fix me" but at least I know he believes I have health issues. My dad is pretty understanding too. My mom tries but really doesn't get it. So some of the family are coming around, some not. Just takes time I think for us to accept what we have and then more time for others to do the accepting part. Hugs, Red I am not a doctor or a lawyer. Any comments, posts, or responses I might make are made solely from my life experiences and are not intended in any way to be medical or legal advice so please do not take it as such.
"Nothing but heaven itself is better than a friend who is really a friend."
Plautus
"The language of friendship is not words but meanings."
Henry David Thoreau
"Life is hard. After all, it kills you."
Katharine Hepburn |
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jess998 Posts: 130
Member
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I totally agree. It took me so long to accept that I can only be patient with others to understand. At least they are trying to understand, Red. Sometimes it makes me laugh when people try to "fix" us. It is very sweet and I do appreciate the concern, but most of us know more about fibro than our own docs do. Jess998 |
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"MDJunction to me has been the helping friends of understanding that I have needed. I feel now as if someone else it the world understands the things that I am going through. I feel less alone and happier. Here I can let out all my emotions and get support from many people who have been in similar situations. It really has been a life saver for me!" (Amanda78)
