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MariaK Posts: 28
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Although the Savella was somewhat helpful, I begin tomorrow on a taper down and off....why? At my request....it is impossible to have an orgasm while on this drug.....at least for me...and we've tried everything...I can't climax....So this is the sacrifice I will make.~FYI I am open minded to other treatments and have a referral to see a rheumatologist....  I only allow good to enter my life...I feel wonderful everyday....Thank You & my Spirit remains close to God/Adanoi/Allah...
Always do your best & leave the rest.
I no longer criticize myself; my mind is at peace and all is well.
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jenigood1 Posts: 3313
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Hi, MariaK! Welcome! Oh, gosh, I hope that doesn't happen to me too!! I just started on Savella a couple of weeks ago.  ...and my hubby and I had just perfected a "formula" (he does this, I do that...) for making sure I get to climax too! Sometimes I still don't...but it's a lot better than it was! I sure hope Savella doesn't send me back to the drawing board!!  Jeni
Lamictal
Abilify
Cymbalta
Trazodone
Vyvanse
"Remember - when you fall on your face, you're still moving forward!"
My advice is free, completely anecdotal, and comes from my own experience. Always talk to your doctor before you change anything. |
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aTinaL  Posts: 11832
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Hey, Maria. There are a myriad of meds that may or may not help you. If you need any suggestions, just ask us! Or, you can wait and see what else your rheumy may suggest. That is truly one awful side effect btw! I don't think we've had anyone else report this one, but then, we don't have to many people who opted to stay on savella anyway. Keep us posted, will you? Tina
"Calm down! Let's cook some carrots!"
- Jim, Hell's Kitchen
"All aboard the suboxone train!"
- Tina
I'm not a doctor, but I play one on tv!
-Tina |
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MissStacey Posts: 14847
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Good Luck finding something that doesnt make you suffer in that way, we suffer enough as it is. I hope you find something that works better for you and I hope things go back to normal quickly since stopping and its not a long lasting effect. Hugs, Stacey  I suffer from Rapid Progressive MS, Lupus, Fibromyalgia, Epilepsy, Migraines, Neuropathy, IBS, Narcolepsy, Arrythmia, Arthritis and too much more complete list on profile.
"Just because we have the right to disagree with a person, does NOT give us the right to disrespect that person."
I'm not currently active due to many personal and medical issues. I will not be participating in MDJ for awhile, my thoughts and prayers are with everyone. I hope everyone is well and I appreciate all of the thoughts, kind words and messages. I have tried to respond as much as possible and apologize if I have not gotten back to everyone. Love & Hugs, Stacey |
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bittersweetlife
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Gee, when I was taking Savella, it made me sooooooo sick, sex was the last thing on my mind!! LOL Can't stay on a drug that takes away such an important part of life. Kudos to you for getting off it for that reason. I hope you find something else quickly that helps your pain that doesn't make you sacrifice anything else. I am on cymbalta. I have been on it for a while and have not had any sexual side effects. Since it is also approve for fibro, perhaps you might inquire about taking it. Good luck. |
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RedGirl Posts: 1594
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I perspired so much while I tried out Savella that I couldn't have had sex even if I'd tried. I think I'd have had a heat stroke. Your problem is one I haven't heard before with Savella. I hope it gets out of your system quickly so you can go back to enjoying your sex life! Red I am not a doctor or a lawyer. Any comments, posts, or responses I might make are made solely from my life experiences and are not intended in any way to be medical or legal advice so please do not take it as such.
"Nothing but heaven itself is better than a friend who is really a friend."
Plautus
"The language of friendship is not words but meanings."
Henry David Thoreau
"Life is hard. After all, it kills you."
Katharine Hepburn |
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bittersweetlife
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Redgirl, I had the exact same problem, but add constant nausea on top of the sweating. It was a nightmare!!LOL |
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MissStacey Posts: 14847
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How long have you been on Savella now Missa, 2 months? I suffer from Rapid Progressive MS, Lupus, Fibromyalgia, Epilepsy, Migraines, Neuropathy, IBS, Narcolepsy, Arrythmia, Arthritis and too much more complete list on profile.
"Just because we have the right to disagree with a person, does NOT give us the right to disrespect that person."
I'm not currently active due to many personal and medical issues. I will not be participating in MDJ for awhile, my thoughts and prayers are with everyone. I hope everyone is well and I appreciate all of the thoughts, kind words and messages. I have tried to respond as much as possible and apologize if I have not gotten back to everyone. Love & Hugs, Stacey |
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Seventeen Posts: 193
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I think I'm one of few people that actually likes savella lol. I didn't have any of the nasty side effects compared to when I was on lyrica. Savella has helped regulate my sleep and helped control my appetite, other antidepressants I was on just made me pig out and not sleep. I'm young so I don't know about the sexual side effects but I think that most people with fibro are going to have a hard time sexually even without meds. Adding med sex killers just makes things even harder... all I can suggest is use a lot of pillows and be patient. Autism
Food Allergies (Soy, Milk, Beef, Eggs, Peanuts)
GERD
Fibromyalgia
Hypothyroidism
IBS
Migraines
Raynaud's
TMJ
Vulvodynia
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If you have fibromyalgia and health insurance, go find an osteopath NOW to treat you. It'll be the best thing you ever do. -Amanda |
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MissStacey Posts: 14847
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lmao @ the pillows...you are too cute I suffer from Rapid Progressive MS, Lupus, Fibromyalgia, Epilepsy, Migraines, Neuropathy, IBS, Narcolepsy, Arrythmia, Arthritis and too much more complete list on profile.
"Just because we have the right to disagree with a person, does NOT give us the right to disrespect that person."
I'm not currently active due to many personal and medical issues. I will not be participating in MDJ for awhile, my thoughts and prayers are with everyone. I hope everyone is well and I appreciate all of the thoughts, kind words and messages. I have tried to respond as much as possible and apologize if I have not gotten back to everyone. Love & Hugs, Stacey |
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