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Ashley0121 Posts: 2
Member
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Hi I am new to this online support group stuff. So if someone can kind of give me an idea of how it works I would appreciate it very much.
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mehlisue Posts: 519
Senior Member
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Greetings Ashely, The groups and how they work? Just reguard us as friends that you have questions for, or a place you can vent or discuss your issues and treatment with. No one here will judge anything you have to say about your illness as long as it is in a manner that the conversation is not rude or vulgar. We discuss medical treatments we recieve and how it is working for us. We talk about new findings of our disorder. We share humor and tears. Most of the time it is just connecting to others who know what we are going threw and not being alone is a great help. Glad you found us. Mehlisue |
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Ashley0121 Posts: 2
Member
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Thank you very much. I think that I have needed something like this. I talk with my family and they are there for me but no one knows what I am going through and what I went through to finally hear what I have. It is nice to know there is somewhere I can go and talk about it. Ashley |
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Lynnette1212 Posts: 1167
Senior Member
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I love it. A bit addicting like facebook. LOL. Hope you enjoy it too. It's nice to have someone lift you up when your down and then pick someone else up when they are down. Plus, you can get others opinion and ideas for treatments and stuff. Hope you like it. Lynnette |
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hatbox121 Posts: 10493
Group Leader
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Hi there. Welcome to the group. As for the technical stuff, you know how to do that since you put this one here. If you want to join in on another post just scroll down to the post reply box, put that in and hit submit. Once you get the hang of it play around a little and you'll figure out gifs and faces. If not, just ask and somebody will help with that too. We talk about everything here FM related plus on the off topic board a little of everything else. There's several forums, like family and fibro, relationships, medicine and treatments, etc. Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt
Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).
I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences. |
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MissStacey Posts: 14847
VIP Member
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Welcome to the Fibro Family Ashley! I am confident you will like it here, it is very supportive here. Everyone is so caring and understanding. We all can truly relate to how you feel so just keep posting and feel free to jump in on any discussion that peeks your interest. There is no judgement here we are all just here to support one another, you are not alone. Talk, vent, laugh or cry we are here for you. Take care! Stacey  I suffer from Rapid Progressive MS, Lupus, Fibromyalgia, Epilepsy, Migraines, Neuropathy, IBS, Narcolepsy, Arrythmia, Arthritis and too much more complete list on profile.
"Just because we have the right to disagree with a person, does NOT give us the right to disrespect that person."
I'm not currently active due to many personal and medical issues. I will not be participating in MDJ for awhile, my thoughts and prayers are with everyone. I hope everyone is well and I appreciate all of the thoughts, kind words and messages. I have tried to respond as much as possible and apologize if I have not gotten back to everyone. Love & Hugs, Stacey |
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Natalia5150 Posts: 3632
VIP Member
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Hi Ashley, the beauty is its like girls scouts or a slumber party except we all have the same problems! Bad teachers,(doctors), We don't get picked for the cheer leading squad (because we hurt all the time, and nobody understand us, (because fibro is an invisible condition) and so on..... So welcome to the slumber party, get your pillow, and get ready to put with bad spelling and disjointed thoughts, (fibrofog not MJ brownies) but basically we haven't changed since high school. Its just the heart ache and pains are bigger and realer and sometimes all we need to give and receive is an encouraging word on the range....and some cute pictures of deer and antelope playing..... Love Natalia Post edited by: Natalia5150, at: 02/15/2010 06:37 PM gentle hugs and a peck on the cheek,
Natty
I am an RN with a current license since 1984....sheesh that's a long time....but that doesn't mean I am a DOCTOR
I dispense advice freely but you should take it with a grain of salt and do your homework and check with your doctor.
He gets paid more so he must know more. Right?
I am truly sorry your are reading my post, because it means you are here at MD Junction instead of out skydiving or deep sea treasure hunting or climbing Mount Kilimanjaro.......
Empyema-
Fibeomyalgia
Hashimoto's
IBS=if you have to ask you don't want to know
severe osteo arthritis, spine/neck
DJD hips r knee some fingers
hypoglycemia, which is every bit annoying as hyper
otherwise not so serious if you pay attention
too many meds to count but for our purposes here:
Lyrica is back Yay!
Cymbalta
pain meds |
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jenigood1 Posts: 3313
Senior Member
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Natalia, you spoke of bad spelling, and I just happened to see a T-shirt that I think is so funny, and fits us so well (the saying, not the T-shirt, lol)  Jeni
Lamictal
Abilify
Cymbalta
Trazodone
Vyvanse
"Remember - when you fall on your face, you're still moving forward!"
My advice is free, completely anecdotal, and comes from my own experience. Always talk to your doctor before you change anything. |
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jenigood1 Posts: 3313
Senior Member
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Ashley, welcome! So glad to have you here! You get your very own GIF (just right-click and save to your computer...then, to post one, hit REPLY, then write your message, then hit BROWSE, find your GIF where you saved it on your computer, SELECT, OPEN, hit ADD, and it will show up on your post! Easier than it looks, you'll see the prompts.) See you in the posts!  Post edited by: jenigood1, at: 02/15/2010 11:07 PM Jeni
Lamictal
Abilify
Cymbalta
Trazodone
Vyvanse
"Remember - when you fall on your face, you're still moving forward!"
My advice is free, completely anecdotal, and comes from my own experience. Always talk to your doctor before you change anything. |
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bittersweetlife
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Missa, I thought you were worried about your job???? What if you get caught??? Don't care anymore??? |
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