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07/05/2008 09:19
bethm
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I'm new to the group and just 2 months ago diagnosed with fibro. I don't know anything about it except the info which I received from my doctor and read some websites. Can anyone recommend some good information on diet, exercise, sleep, pain management....

I was in the military when first diagnosed (after the Gulf War)in the early 90's but not a lot was known so the doctors never did follow up. My life has gone down hill and now I can hardly function some days and I've had to miss work. The VA diagnosed me again in April this year after many tests. They currently have me rated at 30% disability for 3 separate diagnosis, GI, back pain, hip pain. However, after reading the symptoms of fibro I think they are all the same problem??

They did find that I have the ANA titer for arthritis but negative for symptoms. I just don't know where to begin, I'm 39 and feel like I'm 69 most days.

Before I was diagnosed I tried everything to help my pain of unknown origin. I bought a different car because my current one was killing my back, I bought a new bed because I couldn't sleep and could hardly get out of bed in the morning, and I thought I was going through menopause because of my horrible night sweats for the last 2 years.

I take Tramadol for pain and Cyclobenzaprine to help me sleep.

Thank you in advance for any recommendations.

I still feel some days like I must be crazy.

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07/05/2008 09:50
jls1021
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Welcome to the group! I will try and find some of my links and put them here for you, the internet is so full of information if you go to webmd.com or other medical related websites you can find some pretty good information there. Fibro fog prevents me from knowing the other sites!

But again welcome! Many of the leaders and member here are very very helpful!

I am Jill, THIS is not all in my head, and NO I am not crazy!

the bra seems to be my mortal enemy, a weird 19th century torture device most obviously designed by a man!
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07/05/2008 10:03
mcbeth
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Welcome to the FMily Beth. I am happy to say.....nope you're not crazy. Sometimes with the fibro fog and fatigue we may act like we are, but we're not.

I was just diagnosed in August 2007, so I'm still learning about fibro and all of the "little" symptoms that make up the whole ball. I have picked up several books on fibro and they are helpful. One that is mentioned here is "Fibromyalgia....the First Year" I do not have the book but the other that do have it swear by it. They say it is very helpfulo and easy to read. They also like Fibromyalgia for Dummies. I am going to order the Frist Year book.

I do think that exercise is good. Some can't do it because of the pain.

But if you can do some form of exercise you do feel better, helps with the mental aspect too.

Diet, I don't think that there is a specific diet. But I am trying very hard to eat healthy, cut the salt, no pop, more fruits and veggies. Just typical healthy eating.

As to the sleep, I take a melatonin and a 5-HTP at night and I sleep much better. I do wake up someitmes when I hurt, but I change position and go right back to sleep.

Can't help you on the pain management. Right now I take Cymbalta and 2 Aleve in the morning and 2 at night and right now that is doing it for me.

I am no expert this is just what I am doing right now. I know that others will be along to welcome you and give you their ideas.

You have found a very compassionate group here.

*♥´¨)
¸.•♥ ´¸.•*♥´¨ ♥•*¨)
(¸.•´ ; (¸ ;.♥•Mary Beth♥


Fibromyalgia is not an invisible diease, I'm right here!






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07/05/2008 10:52
kitkatkmm
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I have the Fibromyalgia: The first year book, and it is unbelievably helpful. It's amazing how informative it is. It's definitely written by someone that knows what FMS is.

A good website: http://www.fmaware.org

Another good one: http://fmnetnews.com/index.php

Good luck!!!

Kristin

I may have fibromyalgia, but fibromyalgia is not me.
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07/05/2008 14:12
TeainTN
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the book Inside Fibromyalgia is a great book and there are several by a woman dr. ohhh I can't remember her name. Devin something. they are very informative and helpful. Beware of some of the "cures" out there. people will take avantage of people who are in pain. Iv'e tried a lot of the natural treatments. The things that help all of us are a healthy diet and vitamin/mineral supplements and mild excercise. then it's finding the right drugs and treaments to help your body. I take tramadol for pain and Soma when needed. I had several drs prescribe a boat load of drugs for me but the side effects and zombie effect where not worth it for me. I think just knowing your not alone and having other people understand what your going through is soooo helpful.
There is a light at the end of the tunnel -- but it's a train about to run over you.
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07/05/2008 14:26
cinnamon
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you are diffenitly in the right group, I was DX back in 1998 but I know I have had it longer than that. as for myself I was given Neurontin and percocets for my pain. I try alot of diffrent things and go with what helps and not with what dosent. I hate to tell you this but its just going to get worse the only good thing is it will not kill you. you will get lots of encouragement here, and alot of these ladies are very fun to be around so when your down and out come here we will try our darndest to get you back up. Cinnamon
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07/05/2008 14:34
Debi
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This is another great site http://fibromyalgia.lifetips.com/

It gives a lot of helpful hints for day to day living. The best thing I can tell you is to do research, just be aware that there are people out there who have far out ideas and some that just try to take advantage of you. This is a great site to learn about current treatments and meds. Everyone is still looking for what helps them. Everyone is different. What is great for one, may not help you. That's normal for this disease. You have to find what helps you.




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07/05/2008 16:14
Barbkubacki
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Once again Welcome! If you go to Woman's Day Magazine on the internet they have many articles of Fibromyalgia.
Kindness is the only investment that never fails.
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07/05/2008 16:32
JanfromTN
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I am Jan and I have been diagnosed about 10 years with fibro, but I was diagnosed with rheumatoid arthritis first. The dr. now tells me I have more pain from the fibro than the RA. This sight is very informative and will give you loads of ideas about ways to still live your life with fibro. I take Darvocet N-100 for the pain, cyclobenzaprine 2 times a day, antidepressants twice a day, Mobic twice a day, hormone replacement therapy, metoprolol to regulate my heart beatand multi-vitamins everyday. I have tried other meds. and right now this is working for me, except that I need to see the dr. and get different pain meds. because the darv. is not working as well as it did in the beginning.

You will just have to work with your dr. and find out what helps you. As for exercise, I have never been one to exercise but I do try to stay busy and as active as possible when I feel like it. There are days I also can't get out of bed and days I stay in because I can't stand the thought of getting out and doing stuff.

I have found that stress makes the pain worse. Any worrying can put me in bed for days., so I try to live as stress free as possible. Although, it doesn't always work out that way.

One of the things I think all of us have had to deal with is explaining it to friends and relatives that we hurt without there being any reason for it. I just tell people it hurts to live in my own skin and that if they have ever had the flu, this is like that except we live with it 24/7. There are some commercials on tv now about Lyrica, a new drug approved by the FDA for fibro, but some of us can't take it because of the side effects.

Just post any questions you have here and we will try to answer them as best we can.

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07/05/2008 19:51
eve
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what does the cyclobenzaprine do? is it in the class of benzodiazapines (a "downer" like valium???) I take neurontin, i've maxed out at 3600mg (1200mg 3x), lodine for pain (600mg 2x), estradial (.5mg) and cymbalta (90mg). aside from the fibromyalgia i have restless leg syndrome, and have battled endomitriosis for years. if youdon't mind i'd like to talk more about meds . . . i'm always looking for answers . . .

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