MDJunction - People Helping People
 

Why wear a ribbon?

 
"fibro.,lupus,r.a.,pain," (bamabred)

MDJunction to me

Claire138"It's been a year since I joined the Parkinson's Disease Support Group on MDJunction and all I can say is thank you all for the support, compassion and friendship I've received and been able to give as well. It was a lonely night when I came upon this site, but the nights aren't that lonely anymore...
With gratitude to all...
Claire138 (aka Bonnie)
" (Claire138)

more testimonials
Fibromyalgia Online Support Group
A community of patients, family members and friends dedicated to dealing with Fibromyalgia, together.
Join This Group
Group Home   Forums   Articles   Members (7583)   Diaries   Videos   Leaders   Guidelines
FMS Group RSS Feed
FMS ForumsGeneral & SupportHospice has been called
01/05/2010 12:27 PM
mammy
mammy
 
Posts: 7217
VIP Member

for Steve's mom. She is obviously not doing well and they are not sure how long it will be. For those that pray, could you please include us in your prayers? I don't want her to suffer any longer but that is not my call...I just want her to have peace and no pain and when her time does come, that she goes peacefully, maybe in her sleep. I could be asking to much, I don't know but Steve is having a hard time with this as he will have to make a decision on what to do very soon. I was never close to his mother, she never liked me cause I took her "baby" from her. We always gave each other mutual respect though and I have spent some time with her recently when Steve couldn't due to his illness. He only has one brother and he is not being supportive for Steve at all, he only cares about himself. Anyway, I just wanted you all to know what was going on since I consider you my family....thank you for the support that I know you will give. I love you guys Unsure
Connie

I am not a doctor and do not play one on these forums so please consult your physician for actual medical advice.
Reply

01/05/2010 12:42 PM  Top
MissStacey
MissStacey
 
Posts: 14847
VIP Member
I'm an Advocate

I am so sorry for you and your family from the bottom of my heart, that is avery tough thing to go through. My thoughts and prayers are with you all. Love you, Stacey
I suffer from Rapid Progressive MS, Lupus, Fibromyalgia, Epilepsy, Migraines, Neuropathy, IBS, Narcolepsy, Arrythmia, Arthritis and too much more complete list on profile.

"Just because we have the right to disagree with a person, does NOT give us the right to disrespect that person."

I'm not currently active due to many personal and medical issues. I will not be participating in MDJ for awhile, my thoughts and prayers are with everyone. I hope everyone is well and I appreciate all of the thoughts, kind words and messages. I have tried to respond as much as possible and apologize if I have not gotten back to everyone. Love & Hugs, Stacey

Previous discussions I participated in:
update
Hey everyone
BICKERING

01/05/2010 12:56 PM  Top
bits
bits
 
Posts: 10312
VIP Member

Yes dear mammy,

I will pray for you and family.

I am sorry for all the pain that is felt during a time such as this.

Do you mean Steve will have to decide whether to keep his mom on life support or not?

Awhile back, I and hubby visited our attorny and had papers drawn up, for me, instructing not to keep me alive.

My hubby and family knew my wishes but I figured it would be easier on them if I had the last say on this subject.

In other words, they could not interfere with the documents and would not ever have to feel the least bit of guilt.

Please know all of you are in my thoughts.

bits

When I stand before God at the end of my life, I would hope that I would not have a single bit of talent left, and I could say, "I used everything you gave me." ~ Erma Bombeck
bits

01/05/2010 01:03 PM  Top
Moo22Q
Moo22Q
 
Posts: 335
Member

Mammy I will keep you and the whole family in prayers! May God let all of you have peace and rest. I am so sorry you all have to go thru this.

01/05/2010 01:19 PM  Top
TaraT
TaraT
 
Posts: 4164
VIP Member

Yes my dear mammy...Peace to you both.
With Him we "live" no matter the circumstances. At His feet peace of mind can be found. Peace that passes all understanding is my quest now and forever.

Numbers 6:24-26
"The LORD bless you and keep you;the LORD make his face shine upon you and be gracious to you; the LORD turn his face toward you and give you peace."

01/05/2010 02:01 PM  Top
raynedae
raynedae
 
Posts: 8219
VIP Member

I'm keeping you all in my thoughts, Connie. This has got to be so hard for poor Steve and you too.

Hospice care is a wonderful thing. They'll keep her comfortable until the end.

bless you all,

rayn

I am not a medical professional so please exercise common sense when it comes to my advice.

I am also NOT a lawyer so exercise common sense when it comes to my advice.

I was a bookseller so you can trust my advice regarding books :)

www.operationbeautiful.com

01/05/2010 03:03 PM  Top
hatbox121
hatbox121
 
Posts: 10493
Group Leader

Of course Connie. I'm sorry y'all are having to go through this. A long drawn out death is horrible. I saw it with my uncle and grandpa and it's something I never want for myself.
Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt

Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).

I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences.

Previous discussions I participated in:
my story
N-E-G-A-T-I-V-E!!!!!!!!!
me

01/05/2010 03:05 PM  Top
FriedBrainNuggets
FriedBrainNuggets
 
Posts: 758
Member

Sad peace and blessings
bipolar 1
geodon 160 mg at bed
effexor 75 mg in am
klonopin as needed up to 5mg
use marijuana in place of klonopin

01/05/2010 05:23 PM  Top
Katwoman
Katwoman
 
Posts: 25
Member

I just went thru thus w/ my dad. He had end stage Parkinsons disease & in an assisted living ctr. They let me keep hom there as long as I stayed with him. Hosparus was a GodSend....they have answers to questions to questions before u ask & their main goal is to ensure the pt is comfortable as possible. Make sure u use all the services they offer that they need.

I had to do all this alone as my 3 brothers jst wntd $$$ which they wern't going to get so they weren't arnd much. This played hell on my fibro bit u do wht u have to do. You & ur family will be in my thoughts & prayers.


Previous discussions I participated in:
Newbie
Over Sensitive
Found a miracle - - - Vitamin D !!!

01/05/2010 05:58 PM  Top
stillhopeful
stillhopeful
 
Posts: 4720
VIP Member
I'm an Advocate

Connie~

I am so sorry to hear about Steve's mom. I will keep all of you in my prayers. It's sad to hear this. Hospice is a wonderful thing. We had it with my dad when he passed and when my father in law passed. They were wonderful. I can't say enough about them. If she has to go, I hope she does not linger and suffer in pain. It is hard for the patient and all family when that happens. My dad hung on and did not want to leave us. We finally reassured him that we would be okay without him, that he must let go, that we did not want him to continue to suffer. I hope that doesn't sound terrible to you, and I apologize if it does, but it is so terribly hard for all involved when they linger for so long.

Connie, I know you believe in the power of prayer and have your faith. You have all of us also. Please PM me anytime you want to talk to someone alone. I sure have enough experience in dealing with hospice.

May God watch over all of you and give you the strength you need to get through this very difficult time.

Connie I am worried about you. Please do not get involved in caring for her. Patient care for someone that ill, is extremely difficult, especially for someone that has so many health issues such as you do. I worry about your health, so please take my advice. Hospice will do anything you want. They will do your shopping, watch children so adults can spend some alone time with the patient without children, in case they have something they want to express to the loved one that might not be appropriate in front of a child. Take full advantage of them Connie. I don't want you to have problems because you are trying to help too much. You have become very special to me and I am concerned about your well being, hon.

Again Connie, I will hold you and Steve and his mom in my prayers and ask my close friends to pray for her too. Can you tell me her first name so we can pray for her by name?

Take care sweetie, I am here for you. Keep in touch and let us know what transpires each day.

Lots of Love, Prayers and warm gentle hugs~

Christine

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Christine

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
I am not a doctor, but I sure do make a lot of visits to them. Any information discussed with you, is just my personal experience or information givn to me. I am not your doctor, please call him/her if you are having problems.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
When you get to the end of your rope, tie a knot in iit and hold on tightly. You will get through your problems, because we are all here for you.
Reply

Share this discussion with your friends:
Members who viewed this page also read:
<< Start < Prev 1 2 3 4 Next > End >>

FMSFMS ForumsGeneral & SupportHospice has been called

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.
Contact Us | Bookmark Us | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | MDJ Advocates | Advertise
Copyright (c) 2006-2013 MDJunction.com All Rights Reserved