Fibromyalgia Support Group

I ended my other post with those words but wanted to make it a title too because it's so blatant right now. Stress X 100 and heat over 100 degrees is making me worse than ever. The one friend I have can't understand why I can't stay at her house (no A.C.) for long because I'm suffering so much. My financial stresses are so bad I don't know what to do and I have the slumlord from hell that's constantly demanding things from me and my hubby to do around the house or he'll raise our rent which he knows we can't afford - in other words evict us. He's just a SLIME BALL! He knows we're both sick and he doesn't care. I FEEL SO ALONE IN THIS. I never have any friends because they can't take me almost in tears all the time "for no apparent reason." It's like the INVISIBLE DISEASE like someone else put it. There's just so much pain I feel like I can't take it for one more day/hour/second. Please tell me I'm not crazy or alone in this. I wish they had a smiley face bawling in tears.

Wolfpack

Believe me you are not alone. I also suffer form Fibro and have degerative arthritis in my spine. This disease is something that unless you have it no one understands it. After all if they dont see any blood how can you be in constant pain?? I use to get that all the time from so called friends and family. We as Fibro suffers know the difference. Go one day at a time and we will continue on Pat

As snowleopard said, you are definitely not alone. I have fibro, degenerative disc disease of which nothing can be done for it, spinal stenosis, degenerative arthritis in my back and neck and spondylolesthesis. No one can "see " my pain, so some ppl think I am just lazy or "out of shape" You just have to get a bit thicker skin when you have what we all have and just ignore those that are ignorant.

I think there are times when we all feel alone. Fibro effects us all in ways that we wish it didn't. It seems to weave itself into all areas of our lives whether we like it or not. For me, I wax & wane with how I feel about having FM since I have experienced it now for 17yrs. There are times when I feel strong & can battle anything that comes my way. Other times I feel like the slightest comment from a friend can push me over the edge. I have learned that I am my best advocate since nobody can see or feel the pain that I feel. I have learned (like mammanordy said) to have tougher skin and not worry about what others may be thinking about me. After all, it's THEIR problem how they react to the FM, not mine as long as I am advocating appropriately for myself.

I have also learned to be grateful for it in ways that I never thought possible. I am grateful that it has forced me to slow my life down and really appreciate what I have. My motto is "an attitude of gratitude", meaning you can't always choose your circumstances, but you CAN choose your attitude. ~ It's a lesson I am always teaching to my girls as well.

So, when you are feeling alone, find your computer and post away. We are here for you and know what the pain is like, so there's no need to explain. Post away and we'll be here to support you.

Wishing everyone a painfree day with lots of sunshine!!

Wow! From the title of the post I thought it was going to be kinda negative, but props to you girl! I have said repeatedly laughter ans positive attitudes are the best medicine!When my son had cancer and I lived at the hospital for a year with him,I was always going to blockbuster to rent all the comedies I could find. Laughter releases endorphins in the brain and therefore help relieve pain.My son is alive and still in remission 8 years later and I know that prayer andsupport were what got us through.As for my own fibro,well, all i have to do is look in those little faces that may not be here a year or even a week from today and I know I am truly blessed.Thanks for the post I know it will lift the spirits of those who read it!

Debbie

Hello and welcome wolfpack!

As everyone has already said, your not alone and WE understand! I've had this illness for 21 years and I to still have my ups and downs with my emotions. I have learned to not let others 'get' to me. I know how I feel and have gotten to the point that I will not allow others to make me feel guilty for having something I have no control over.

I can't handle the heat and humidity either. I have to have my AC on all the time thru the summers and even the spring at times. I try not to go anywhere that there is no AC, it makes me feel so crummy and wears me out. Actually, I try not to go anywhere lol! It's so hard to 'act' like I'm feeling alright when all I want to do is go home and get away in my PJs. Sad but true...and that can at times makes me feel guilty! What a life, eh?

I hope you keep coming back to the forum cause you do get the support and encouragemnent that we all need dealing with this invisible illness!

Take care and anytime you want to vent or talk, feel free to PM me, ok?

Your pal in pain,

Spruce

Post edited by: spruce1, at: 06/10/2008 08:11

Wolfpack we have felt alone at one time or another, just remember you are not alone you have a big caring understanding family of fibromites here any time you need to vent, cry, scream or whatever. I don't think you are crazy, but then maybe I am and just can't tell whether you are or not.