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"Chronic pain. sister-in-law suffers from Chrohn's Disease" (tking1170)

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jenniferdiva"MDJunction has been just an amazing support for me. The people who are on mdj are so nice! Unlike the many other support sites that I have been on. I have made several friends on mdj who are so supportive and so educated about mental illness. Of course non of us are doctors, but we certainly offer each other hugs, opinions, and advice. I have learned a great deal from my friends on mdjunction. I am also encouraging other people who suffer from mental illness to come on to MDJ. It can be a life line." (jenniferdiva)

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Fibromyalgia Online Support Group
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06/05/2008 05:09 PM
rosequeen
rosequeen
 
Posts: 8
Member

I am brand new to this,( both having to live with CFS/Fibromyalgia and to talking with others online)so please bare with me.Smile I live in a small village in upstate NY and have found about a dozen people in our village alone who are living with CFS/FM. The nearest "local" support group is over 1 1/2 hour drive away.My stepsister(who also has CFS/FM)and I are thinking of starting a support group here at our community center...but...we have no idea how to start one. Does anyone know where we may be able to send for some info. on how to start a group? We really would appreciate any help. Thanks and God Bless to all.
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06/05/2008 06:50 PM  Top
Fletch2ya
Fletch2ya
 
Posts: 3183
VIP Member
I'm an Advocate

HI... and welcome to the group/family..

I think you will find a lot of awesome people here...

I also hope you just jump right in and post ..... fill out a profile so we all will be able to know you a little better....

This is a great group of people....

welcome

Craig


Previous discussions I participated in:
scared
Healing Prayer
My roses

06/05/2008 07:18 PM  Top
Mydragonfly
Mydragonfly
 
Posts: 1123
Senior Member

first I think that you need to be involved in an on going support group like this one. That way you can get your footing. then you can look up places like the Fibromyalgia network.

dragonfly

The Dragonfly brings the light and color of transformation into your life.
To learn more about Fibromyalgia
www.fmaware.org ***
www.webmd.com/fibromyalgia *** www.niams.nih.gov/hi/topics/fibromyalgia/fffibro.htm ***
www.painfoundation.org *** www.rheumatology.org/public/factsheets/fibromya_new.asp ***

Previous discussions I participated in:
is it just me?
newby
Healing Prayer

06/05/2008 07:36 PM  Top
BLB
BLB
 
Posts: 374
Member

Yes welcome to our family like Craig said!! Just jump in and ask a question or look at some of the posts.....
Hugs,
Barb
God will never give you more than you can handle!!
Meditation helps stress...so Meditate daily...
www.myspace.com/eloquentangel09

http://groups.myspace.com/livingwellwithfibro
http://www.facebook.com/EloquentAngel?ref=profile
http://groups.myspace.com/hospicenurse

MY CHIROPRACTOR HE IS IN EDMOND, OKLAHOMA
HE DEALS WITH PEOPLE WITH FIBROMYALGIA...
http://drbrantkoenig.com/index.php


We all have time on our hands...be productive and help others!

Previous discussions I participated in:
newby
Healing Prayer
fentanyl patch, anyone use it?

06/05/2008 07:37 PM  Top
rosequeen
rosequeen
 
Posts: 8
Member

Thank you for the welcome I appreciate your thoughts. I will take your advice and get my feet wet a bit first before starting a group myself. It sounds like my stepsister has decided to take the bull by the horns, so to speak and start one up herself. She has been living with CFS/FM for over 15 years. So I will just support her in anyway I can. I hope being a part of this group online will help me to cope with this pain as well as the group my stepsister is starting up. Thank you again.

06/05/2008 07:43 PM  Top
Mydragonfly
Mydragonfly
 
Posts: 1123
Senior Member

There are a lot of people here willing to help in any way they can. so set up your profile and just start looking around. if you need any help, just send me a message and I will be happy to help you out.

dragonfly

The Dragonfly brings the light and color of transformation into your life.
To learn more about Fibromyalgia
www.fmaware.org ***
www.webmd.com/fibromyalgia *** www.niams.nih.gov/hi/topics/fibromyalgia/fffibro.htm ***
www.painfoundation.org *** www.rheumatology.org/public/factsheets/fibromya_new.asp ***

Previous discussions I participated in:
is it just me?
newby
Healing Prayer

06/07/2008 07:29 PM  Top
PDW
PDW
 
Posts: 223
Member

Welcome to the group. If you have the need for a group start one. It could be just a few of you sitting around and talking. It's still a wonderful thing. I went to a support group for parents with disabled children when my son was younger. Just find a place to met like your home or others and chat about the same things we do here. It's actually very nice. You've got a wonderful Idea to act on.

Trisha

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