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FMS Community FMS Support Forums General & Support UP3 Surgery for Sleep Apnea?
 

UP3 Surgery for Sleep Apnea?


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10/14/2007 21:22
bshapiro
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 speaking of CPAP's my daughter is considering UP3 surgery

because she's not getting good results with her CPAP

anybody had one?
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10/15/2007 05:59
lzbeth2001
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 Whats UP3 surgery

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10/15/2007 07:02
Snoopy30
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 How long has your daughter had her CPAP. It took me a couple months to really get used to it. I kept pulling it off during the night. I also am very Clostophobic (excuse spelling if it's wrong) and couldn't use the mask. Mine is a tubing very similar to oxygen tubing only thicker. It was much easier for me to adjust to that. If she's only had it a short time tell her to keep trying. I know there are surgical procedures and at the time I was diagnosed they said the success rate wasn't that good. Of course that was 6 years ago and tech. changes rapidly

Karen
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10/15/2007 07:50
bshapiro
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 surgical solutions are still not good but she is getting pretting desprate. as she's an adult the decision will be hers alone.

she's getting used to the device but not getting good results. she has mild apnea but really bad symptoms.

she hasn't been able to live a normal life because her sleep cycle is reversed (night is day for her)

and even with the cpap she often can slep for 20-27 hours at a streach unable to wake up. she really wants a normal life where she dosn't have to live with us.

so she's pondering more surgery
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10/15/2007 08:05
kychick
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 When I was working at the doctor's office, I knew a guy that had surgery for the same condition. He had tried everthing else and even though it sounded pretty scary, he finally went on and had it done(not sure if it's the same surgery,just same condition).He said it was the best thing he ever had done, and got along great afterward. My oldest daughter will be 29 on the 23rd,and I know it's so hard to watch them going through medical difficulties. It doesn't matter how old they are they're still our babies aren't they? My daughter suffers from chronic reoccuring pancreatits and NASH. She may have to have surgery to correct her pancreatic problems, and a special diet for the NASH, so I know how you feel. You seem like the type of guy Mr.B that you have probably been reseaching this surgery with her. It's just nice to know people that may have had this done.
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10/15/2007 08:10
bshapiro
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 ouch - I've had pancretitis - one of the few things that make fibro seem like a cold. what is NASH?
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10/15/2007 09:07
kychick
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 Non Alcoholic Stenosis Hepatitis. I hope I got that right. Basically she had a liver biopsy(very painful)and her doc said she had a 100% fatty liver. Went to a new specialist who couldn't help medically but got her hooked up with two places she needed to go to. One is an endochronologist for her thyroid and possible diabetic issues. The second is a clinic in Indianapolis, Indiana that specialises in pancreas illnesses. She may have to have surgery to unblock the duct that doesn't work right. Thanks for asking.......It's hard being sick, but it's harder watching one of your kids sick.

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10/15/2007 13:35
bshapiro
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 any idea how he is now (your patient who had the surgery) - we hear that the results initially ae good but things grow back

I'm with you on the part about sick kids.......

my big worry is that one or both of mine will end up like us ( my mom had fibro & lupus, my wife has reynaulds & her dad had sever Juvinile/adult RA).

esecially concerned about my daughter who already has very bad reynaulds (naturally she insists on snowboarding)

Post edited by: bshapiro, at: 10/15/2007 15:39
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10/15/2007 14:58
Snoopy30
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 A little off the subject. But I gotta tell you Shapiro I love how you post about your daughter. She sounds alot like mine. Mine is 19 and "is an adult" who will not let anyone tell her how to do things. Not in a bad way mind you but in a very "I want to be my own person" way. I know that's a quality that will get her far in life however as a parent it is very frustrating at times. Mmmm I wonder where she got it from.
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10/15/2007 15:06
lzbeth2001
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 Well as someone in their 20's it is something we all share. I like doing things on my own and making my own decisions but dad still thinks he can make my decisions for me. Guess I'm setting myself up since I moved back home last November. Although I have to say I do want my mom to come to drs appointments with me for support. Just like knowing shes there. Its helpful when the parents are supportive.

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