Fibromyalgia Support Group

I think my family forgets at times that I'm sick. They forget that I hurt. I am taking Savella, Methadone, Valium... everyday, twice a day to stay "normal". So most days, I "appear" normal while my arms hurt, my legs ache, I'm tired because I don't sleep well. And then if anything comes out of my mouth... perhaps a bit snippy or not cheerful, they jump out at me, and make me feel horrible for even muttering a word. I'm sorry I don't say the right thing every moment of every day, but I'm miserable. I try to keep a positive attitude, but some days are better than others (as we all know) and if it's a bad day for me, I just keep my thoughts to myself because I feel like if I say anything, it will be wrong. I feel like I'm walking on egg shells, and it's certainly not the stress I need in addition to all my health concerns, my inability to work, etc.

*sigh* just needed to vent...

Karen

Karen, It's OK for you to vent, we all do it. I know exactly what you are saying. My family could care less of how I'm feeling. My sister says I should get off all my meds and stop listening to my Rheumy, things will get better for me once my system is cleaned out from all the meds Or my Mom hurts worse than you and she has Fibro all over her body. Little does she know, Fibro is not all over your body, just in certain spots. No one can hurt worse than my MOther. All of us have to let her be the center of attention. Heaven forbid I am worse than she is.

I am about to go through a heart cath and some other test that they are going to do to make my heart rhythm go Crazy. This surgery has 5 spots that they are going to cut me and insert a wire in my veins, the spots are my neck, wrist, arm, chest and groin, All of these will go to my heart. The closer it gets to having this done, The scarer I get.

So you see, you are not alone when it coems to family. If you ever need someone to talk to who really understands, feel free to PM me anytime. Hang in there, Only we know how much pain you are in and how much you can and can't do. We are your family. PM me with anything. I completely understand. God Bless You. shortstuff

My family is the same way. Especially my grandma. She would rather not even talk about it. When I say I'm in pain it's like it's not real so it's not there. Kind of sweep it under the rug. I've dealt with it with my mental illness now it's trying to inform them about Fibro.

Don't worry about venting. Like shortstuff said...we all do it.

~Barbara

I think it's good to vent and get it out. My parents are very understanding but my sister in law is impossible. I never mention how I'm feeling or what procedure I've had done because the next thing you know she has the exact same thing as me.

Karen, welcome to our family. We are always here to listen so feel free to vent anytime you need. You won't find a better group of people and they all understand what you are going through.

I am blessed for the most part with an understanding family and supportive friends but I do have this one person....I want to strangle him, at times I just can't stand the thought of being around him. I swear no matter what you have, he has it worse,if you have to have surgery, he's had that surgery twice over. It's so annoying. He's actually been kicked out of hospitals, that's pretty bad. I hope that made you laugh cause you know it's bad when you get kicked out of a hospital lol

I hope you stick around so we can get to know you bettter and again, anything we can do, just let us know.

Connie

Karen, you are definitely not alone, as you can see. My mom is diagnosed as Borderline Personality,('won't get help,--cause 'she's not crazy, eveyone else is'--So it is all about her, and she is being particularly difficult at the moment, even 2,000 miles away. Sigh...

I thank god for my hubby, in-laws, Dad and sisters, and friends both on and off the boards, everyday. Please hold on, there is always hope for better times to come. Debs

Karen, welcome. We are always glad to see new faces, unfortunately you have to be ill to have found us.

My family could be a lot more supportive, I feel anyway. It is like the illness does not exist to them. I no longer work as well, and it seems like I do so much more than when I worked a full time job. Sigh! Here lately my ankles and feet are swollen and they hurt so bad when I walk.

Please continue to vent when needed, no one here judges anyone, they only open their hearts with understanding and empathy. I know because in the beginning I was a bit timid since this is the first forum I have ever been to, much less share my intimate details with. Each and every post or vent I have submitted has always comforted me or gave me a broader perspective of how things really are.

See, it is easy to vent or get carried away when you are here.

Welcome Again,

Elizabeth

Post edited by: emendoza23, at: 06/22/2009 08:16 PM

Shortstuff sweetie, I do have you in my daily thoughts, do not forget we are all holding your hand. I know you are scared and my heart is with you every day. I have marked my calendar with a big heart indicating your important day.

"This too shall pass"

Elizabeth

Karen, I know that it is hard dealing with family members. I know that I have the same issues. I most of the time, would rather not talk to them because the only thing they want to talk about is how I feel and then go into a speach about what I should do and how they feel and how their doc said .... I am at the point though that I don't care if I am rude, they know I do not feel good and if they would like to call and talk about other things than good for them. I guess what I am trying to say is don't worry about how you come accross, alot,many, of us with fibro have discovered that we are not as social as we were before. Good luck and don't worry.

Karen, Since we don't 'look sick' sometimes our loved ones forget what we are going through. I have a sister-in-law that just doesn't get it. She points out all the little things in my house that really just doesn't matter. Like dust under the dining room table, the dark bottoms of my cooking pots. just things that really doesn't matter. We have to pick and choose what needs to be done in our home. We just have to let go of the old ways and do what we can. Don't sweat the small stuff.

When I die I am not going to say "boy, I really had a shiny floor." Ha Ha.

Hang in there, Christine