Fibromyalgia Support Group

Hi Dana,

Welcome to our group ~~~ We re glad you ve found us !!!

I am sorry to hear that you feel your family and friends aren t ""listening"" and don t understand what you suffer thru is Fibro. I, too, was in that position when I was first dx d but it does seem to have gotten better over time. I think, because my husband (for one) FINALLY realizes I truly cannot do a lot of the things I used to and am much more tired 99% of the time.

I will add your friends and family to my prayers that they may begin to understand what you are going thru.

Don t forget ~~~ WE are here for you anytime ~~~ Laugh, cry, vent, complain or just plain chat when you feel the need ...

Marilyn

Welcome Dana,

You`re in good company here !

Depending on the person, having fibro has really taught me who my friends are.....and this is a good thing! I haven`t the energy for toxic relationships..and can focus more on healthy ones.

you all are so sweet..it's so great to "meet" people who aren't judgemental!

Welcome, DanaW! I, too, am new this group, though I've been diagnosed with FMS for over 25 years. I am lucky to have good friends and doctors who support and help me. I don't have any family left, so I am on my own in that regard. I came here for an exchange of info and to find folks who shared my diagnosis. It seems to be a good community!

hi again Teabutterfly, actually that thread was from when I first came snooping around here..back in Feb. It's funny to see how far I've come in those months in respect to dealing with my fibro. Since then, my dad's become very supportive, my best friend is the best and my brothers, well they avoid health discussions but are very much my sweet brothers.

thanks to everyone here who made it where I dn't worry so much about what other people think and gave me a place where I can talk about my stuff without being afraid someone will say "your just lazy" "oh you are overreacting" or "pull up your bootstraps" (that last one was for my dear friend MO)

Welcome to the group DanaW. I am also new to this group. I am sorry that you have no support. I am the same way. I have lost a lot of relationships over this illness. No one beleives that I hurt all the time and that I cannot make plans ahead because I don't know what I will feel like. They think I am lazy when I lay around so exhausted that breathing is a job. They don't understand. They think I am just depressed and that I should just get over it. It is very hard and frustrating to have this disease and it makes it even harder when no one gives you any support or comfort. I have distanced myself from a lot of my friends because it is just too exhausting to keep fighting with them and trying to explain this illness. I hope you find support here with this group, they are wonderful.Some days are good some days are bad, some are terrible, but we have to just get through them together.

NewGirl, welcome to the group and I'm sorry that you have such a hard time finding support. But that's what we're here for... this is a support group, and we help each other, even if it's just words of encouragement.

Welcome new girl! I hope that you will jump right in and tell us more about yourself. We have all had to fight with family members to try to make them understand what we go through. Some are willing to learn about fibro, others just wave us off as lazy, depressed, and whiny. We have found that sometimes you just have to let those that scoff at you and make you feel worse, go on their own way. Either they will come around or they wont. The best thing to do is to try to educate them that fibro is real and that it is possible to hurt like we do, and be exhausted like we are, etc. Just don't let them make you feel like you are at fault, cuz you are not. You did not ask for this, neither did the rest of us.

Anyways, hope to see you around, and let us know how we can help you. If you have questions, or just need someone to listen, we are here. Welcome to the fibro family!! HUGS

thank for the encouragement. Most of my friends don't understand. They get mad when I can't make future plans with them or I have to cancel plans with them a lot. They think I am avoiding them and don't understand. I have lost alot of friends and jobs with supervisor's saying Im faking it. I get so angry and frustrated becuase I used to be able to work 12 hours a day and come home and work around the house a few more hours and kept everything perfect, now I have a hard time even getting out of bed some days, I have been trying to move lately. I had 23 years in a house that I had to move from (not by my choice) and it is heart breaking.It has made me depressed and I just got a full time job, also recently engaged, so moving quickly was just not an option with the fibro. I was working 12 hours days and trying to move and the stress of it all made the fibro worse. My fiance didnt understand any of it and got really mad becuase I couldn't get things moved fast enough. It is 4 months later and I am still moving. It is driving me crazy. I don't have much help with the move and the fibro seems to kick up in overdrive every weekend. Every day seems to be a challenge. I hope it gets better soon. The fiance couldn't deal and left. He runs around 16 hours a day and doesn't need sleep and thinks I should be able to do the same. I feel ashamed that I cannot do the things I used to be able to or as much as I used to do.

oh, honeychild... don't be ashamed! You didn't ask for this disease! There is aboslutely no reason to feel ashamed you can't do things you used to do. If this was cancer or some other equally "bad" disease, you wouldn't feel ashamed. This is the same way, it's chronic and has no cure only treatments, that sometimes help (and sometimes don't).

I'm sorry that your boyfriend left because he couldn't deal with you not being up to running around with him all hours of the day and night. He sounds pretty shallow, only concerned about himself. You didn't need someone like that. You'll find someone who will love you in spite of your condition one day. And when you do, you'll just be amazed!

I'm also very sorry that you had to leave your house. I recently (last year) lost my home to foreclosure. Stupid economy. I wish you had someone who could help you get your stuff moved. Do you not have friends? Co-workers? Check with Uhaul, they usually have a list of local movers who can help. I paid $100 and had 2 guys for 3 hours to help with anything, packing, loading or unloading when we boxed everything up and put it in storage.

I hope things get easier for you. (((hugs)))