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Sarah6588  Posts: 1
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Hi All! Just diagnosed with Fibromyalgia after 5 years of symptoms that doctors couldn't explain. I think the reality of the diagnosis really has not sunk in yet, but it also feels a little like "life as usual" since I've been dealing with it for the last 5-6 years. Putting a name to it doesn't change much. I miss life the way it was, but I know it's pointless to wish for the past, so I could use some advice. How can I help my family and co-workers understand what I'm going through without it seeming like I just want sympathy or a reason to "be lazy"?? I'm not on any prescription meds right now. I'm trying to do this without them. (Don't like all the side effects) I'm taking a great multivitamin, Vit D and Melatonin to help sleep. Aleve when I need it (usually every day  Haven't seen a lot of progress, but I'm trying to give it a chance. Does it drive anyone else crazy, when you finally can't handle it anymore and admit that you are exhausted and the person you are talking to says, "Oh, Me too!" I just want to shake them and say NO YOU AREN'T! Thanks to all for the posts on here. More than anything, it's nice to be able to vent a little and get some advice from people who understand. Because no matter how much you love them, no one really understands unless they have it too. Thanks! Sarah Post edited by: Sarah6588, at: 06/15/2010 10:13 AM |
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bittersweetlife
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Hi Sarah, welcome to the group. There are letters and articles that you can print and give to your family and friends. I'm sure one of the group leaders will be around shortly to give you the links to them. As far as the coworkers, I never thought it a great idea to get them involved with medical problems. Everyone at work has their own life, job and problems. Being too specific about medical conditions usually backfires and have negative ramifications. I'm glad you found our group. I hope once you've educated your loved ones about your condition, they are more supportive. Keep us posted. |
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naddya819 Posts: 4356
VIP Member
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Love,
Naddya, CPhT(R)
Gabapentin 1,200mg/day
Tramadol 400mg/day
Tizanidine 4mg/bedtime
Amitriptyline 10mg/bedtime
Meloxicam 7.5mg/day
Fioricet as needed for migraine
~~Please remember that I am not a doctor. I am a pharmacy technician, however that doesn't mean I know it all! This site should never substitute medical advice from a qualified medical professional. Check with your doctor before adding any over the counter products or herbal supplements!~~
!!My friends, this, too, shall pass!! |
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SarahMarie013 Posts: 24
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Does it drive anyone else crazy, when you finally can't handle it anymore and admit that you are exhausted and the person you are talking to says, "Oh, Me too!" I just want to shake them and say NO YOU AREN'T!I have no clue why it made me so happy after I read that!? I want to do that way more than I should think about! No matter how many times you say it, someone will always, almost undoubtedly say that they are tired too. In my line of employment, complaining about back aches and neck aches doesn't get you anywhere either. Nursing assistant is basically a saying for 'will start off good but will slowly cripple their body later'. I also was dealing with the symptoms long before they finally put a name on it. I'm still wondering whether or not it was worth going in to so many doctors, but as far as pain control goes, thank goodness I can get an Rx to at least help the pain. Having a place like this though, it's like gold... I couldn't find all the information that MDJ has in one place when I searched during the first year of my diagnosis! Glad you're here to keep us company! “Thousands of candles can be lit from a single candle, and the life of the candle will not be shortened. Happiness never decreases by being shared.” - Buddha |
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BKLYNGIRL Posts: 55
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Hi Sara, I have been sick a very long time and OMG I hate when I tell a friend I am to tired to do something and they say O get over it we are all tired, No one know's how tired we are with Fibro the fatigue and pain is so depressing. I have just started Cymbalta after yrs of being on zoloft I hoping this works, I take Sam-e which you can get from CVS. I have tried so many things and after all these yrs I still have not found and kind of real help, and still I am ANGRY that I have this ugly FIBRO!!!! I would love to chat more but I need to get some sleep... We can chat again if you like. GOOD LUCK TO YOU |
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Lagarto26 Posts: 147
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Hi Sara, I am glad you finally know what is wrong. That was the worst for me, not knowing, not being able to explain why if feel so tired and in pain all the time. Everyone just said it was my fault, i was lazy and didnt try hard enough. But after I was dxed I knew what to do to make myself feel better. I knew that the more info I had the more powerful I would be over my own life. You have you know what you have before you can start fixing things, and you have gotten there. Its hard when no one gets it. I have lots many friends just because i too tired to hang out, they just didnt think i cared enough. Its tough to explain how it all works. I usually tell them its like when you have a really bad flu. You know how tired you feel, like you just want to sleep forever. Thats how i feel ALL THE TIME. You know how you feel when you have worked all day phyically doing something all day, and you come home and your stiff and every part of you hurts and aches. I wake up feeling like this. Anyway I hope you get the info you need to take control of your life. We are here for you! When it comes to eating right and exercising, there is no "I'll start tomorrow." Tomorrow is disease. ~Terri Guillemets
The best way to succeed in life is to act on the advice we give to others. ~Author Unknown
There is no failure except in no longer trying. ~Elbert Hubbard |
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"This has been one of the most supportive places I have ever been. I found MDJ by mistaking looking for drs to help me with my many health issues and since that day over a year ago I have found a tight nit little family that keeps me going when the times are tough and offers me a place of retreat to share my successes and failures with others. I get to see the humor and seriousness of what I experience as well as the resources to learn about my health conditions. Thanks MDJ" (peasha)
