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Fibro Challenges Support Group
A community of patients, family members and friends dedicated to dealing with Fibro Challenges, together.
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Fibro Challenges ForumsGeneral & Supportnew to Discussions
07/14/2009 08:27 PM
torando62
 
Posts: 1
New Member

Hi, Im new here,hopeful to find some good support,can not talk to my own family about this they either are in denile,or can't beleive fibro, hurts that bad.W00t W00t we know different don't we

hope to hear from some one.I'm married 62 yrs. old and have 2 childern. and 4 grandchildern.I have fibro along with memory loss. and bone problems,spine and back problems. looking forward to hearing from others with simmler problems. signed torando

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07/14/2009 09:52 PM  Top
Jodi78
Jodi78
 
Posts: 129
Member

Welcome to the group, torando! We all definitely know what you're going through. A lot of us are going through the same thing with our families not being able to accept fibro.

I am 30 years old and was only married for 9 months when I was diagnosed with fibro this past March. I am fortunate in that my parents and siblings understand, or at least try to, but unfortunately, it is not so easy for my husband and his parents. Because I don't 'look sick', they don't think anything is wrong with me. Despite the fact, that I can't stand or walk for more than 10 minutes!! My mother-in-law is even convinced that I'm 'faking for attention' or that it is just 'in my head'.

That's what brought me to this group in the first place. And though I've only been active for not even 2 weeks, I feel more at ease and comfortable with my disease knowing that I am not alone.

YOU are not alone. We are all here to help each other through the day-to-day struggles and issues of fibro. If you ever need to talk, feel free to PM me anytime.

~Pain-free Hugs~

Jodi

"Life is not about waiting for the storm to pass, it is about learning to dance in the rain."

07/14/2009 10:02 PM  Top
Sonni
Sonni
 
Posts: 1944
VIP Member
I'm an Advocate

Hi Toronado!

Welcome to The Fibro Challenges Group! Its true, we can all relate about someone we love that can't understand what we are going through because it doesn't show.

You've come to the right place to find support and help with whatever you're struggling with as far as fibro is concerned!

Hoping you feel better soon and keep posting so we can all get to know you and you can get to know us!

W00t


07/14/2009 10:52 PM  Top
suni19
 
Posts: 230
Member

Welcome to the Fmily!! We can relate to the challenges you describe. For some of us, our family members just will never fully understand what all we go through. And since we don't always look sick....a lot of people just think we are making excuses...etc.

We know they are wrong! Be strong, try to stay positive! I believe attitude makes a lot of difference!!

Hugs,

~Tammy~

file:///C:/Users/Olsen/Pictures/GIFs.gif

07/15/2009 06:20 AM  Top
mammy
mammy
 
Posts: 7217
VIP Member

Welcome to our family, we're glad you joined us. I have all of the symptoms that you speak of so I know how you feel.

I no longer have the energy or care enough to deal with ignorant people that don't "get it". That's their problem, not mine. I have to focus on myself and those close to me that do support me. It's very hard for people to believe in something they can't see.

I have a sweatshirt that says:"you can't see fibromyalgia" underneath that is says, "you can't see God either"

We will be here for you anytime you need us. This is the best place to be, with people that understand you and can help you through struggles through personal experiences. Please let me know if I can help with anything.

Connie

Connie

I am not a doctor and do not play one on these forums so please consult your physician for actual medical advice.

07/19/2009 04:24 PM  Top
Auriel
Auriel
 
Posts: 181
Member

Smile Welcome to the family. We are glad that you found us and that you are willing to share. You should be able to find a lot of support here and we are priveleged to be able to help one another.

luv yaSideways

All comments are based on personal experience. You should always consult your PHYSICIAN before changing anything.
Blessed be
Auriel

Previous discussions I participated in:
Marriage and Fibro
quick question
I have a theory...

07/19/2009 07:59 PM  Top
TEMA
TEMA
 
Posts: 538
Member

Welcome Torando... welcome to the group - sorry we can't meet under better circumstances...

Yeah! We relate...

I'm lucky because my dh has worked long and hard to understand what has happened to me. It was very hard for him at first and now it's even harder for him, but in a different way... he misses me...

I'm so sorry that your MIL is thinking of you in the way you describe... as time goes by, perhaps you will be able to educate her and your dh about what fibro is and isn't... what you can and cannot do...

It is best, I'm sure, if your dh is completely on your side but you have to give him a break... he's a guy and guys always think they should be able to fix what's wrong... and they just can't fix fibro...

My dh got a quick lesson shortly after I was first diagnosed. I woke up one morning and was completley crippled... couldn't even stand up...

I'm 64... have two kids and 5 grandchildren..

I'm damned healthy for a 90 year old... LOL!

A little fibro humour there... better to laugh or even get mad rather than cry is how I feel about it.

Take care of yourself - listen to your body and get lots of sleep...

Dr TEMA at your service... Wink

TEMA


07/19/2009 08:01 PM  Top
TEMA
TEMA
 
Posts: 538
Member

Oooops... the MIL part was meant for Jodi... sorry about that!

TEMA


07/20/2009 05:39 PM  Top
kristi1578
 
Posts: 10
Member

Welcome to the group. I am 30 and have just been diagnosed with fibro. Luckily I have a very supportive husband and parents, but even they can't totally understand what we are going through. I have only been part of this group for a few weeks and have already found answers to many of my questions. I also feel very comforted to know that I am not crazy and this is not all in my head. I hope this group helps you as much as it has helped me.

07/21/2009 05:35 PM  Top
tracy6878
tracy6878
 
Posts: 574
VIP Member

hello and welcome to the group...i am 31 and can definitly understand pain...i wish there was something i can do for you...take care!!!

Post edited by: tracy6878, at: 07/21/2009 05:36 PM

Look me up: www.facebook.com/tracys_in_love

Love, Liberty, & R[̲̅ə̲̅٨̲̅٥̲̅٦̲̅]ution to everyone!!! Ron Paul 2012!!!

Managing Chronic Pain:
Your Basic Rights:
People with chronic pain are often “people pleasers.” We find it hard to express our needs and require that others respect them. And when our needs are not met, tension is increased and our pain seems worse. But you do have the same basic rights that you grant to others.

You have the right to:
1.Act in a way that promotes dignity and self-respect.
2.Be treated with respect.
3.Make mistakes.
4.Do less than you are humanly capable of doing.
5.Change your mind.
6.Ask for what you want.
7.Take time to slow down and think before you act.
8.Ask for information.
9.Ask for help or assistance.
10.Feel good about yourself.
11.Disagree.
12.Not have to explain everything you do and think.
13.Say "no" and not feel guilty.
14.Ask why.
15.Be listened to and taken seriously when expressing your feelings.

Read and reread these rights so that you not only know them by heart, but so that they become part of your daily life.


Success is not final, failure is not fatal: it is the courage to continue that counts.
~Winston Churchill

Love and many hugs, dear friends ~tracy
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