MDJunction - People Helping People
 

Why wear a ribbon?

 
"For my daugher with Cp caused by CMV" (Gawadeluvr)

MDJunction to me

jackie1979"MDJ is like a family to me where I can talk to others who understand how I feel. I can as group leader help others and support them and be there
for each other for the good and bad times. MDJ has helped me come to terms with my disability and be able to live my life and be positive. I just hope that I can be there for others like my friends on MDJ have been here for me.
" (jackie1979)

more testimonials
Fibro Challenges Support Group
A community of patients, family members and friends dedicated to dealing with Fibro Challenges, together.
Join This Group
Group Home   Forums   Articles   Members (1120)   Diaries   Videos   Leaders   Guidelines
Fibro Challenges Group RSS Feed
Fibro Challenges ForumsGeneral & Support10 Things to Stop Doing To Yourself With Fibro
01/20/2012 05:52 AM
Clarita
Clarita
 
Posts: 10795
VIP Member

10 Things to STOP Doing to Yourself With Fibromyalgia & Chronic Fatigue Syndrome ~ written by Adrienne Delwoo

When you have a chronic illness like fibromyalgia and chronic fatigue syndrome, you've got enough working against you - you don't need to make things worse for yourself!

It's hard not to, because by society's definition, something (other than illness) is "wrong" with anyone who isn't go, go, go, full speed ahead, all the time. We're expected to work long hours at stressful jobs, be amazing parents, have a perfectly clean house and keep up with the Joneses. If you can't, you must be horribly flawed!

Getting out of that mindset is difficult, but it's something that can really benefit us and help us improve. It takes work, though.

The first step is recognizing the things you do in pursuit of this idealized picture of who you're "supposed" to be. Here are 10 damaging things to watch out for:

1.Overdoing it. Pacing is essential for us - we'll only get worse if we do more than our bodies can handle.

2.Criticizing yourself. You know better than anyone else that you really are sick, so give yourself a break already! When you catch yourself, try replacing the critical message with something like, "I'm doing the best I can and that's all I can do." (It sounds corny, but it works.)

3.Blaming yourself. It's not like you asked for a chronic, debilitating illness to come along and knock you right out of your life. No matter what some people may say, your illness is not your fault!

4.Believing other peoples' negative opinions. It's always going to hurt when someone says you're "lazy" or "crazy" or "worthless," but you can't afford to believe them.

Someone who keeps going, the best they can, through adversity is stronger and more capable than most. That's what you need to remember.

5.Having unrealistic positive expectations. We tend to put all of our hope and faith in whatever treatment we're trying, and all that does is set us up for a major disappointment when we're not suddenly cured. Approach treatments with the attitude that any improvement is a success, and remember that we generally need to use multiple treatments to truly make progress.

6.Having unrealistic negative expectations. On the flip side of the coin, trying treatment after treatment without success can make you feel like nothing's going to help at all, ever. That can prevent you from trying new treatments that might work, and it can also cause a reverse-placebo effect - it won't work because you expect it not to.

7.Putting yourself last. A lot of us are willing to put all our energy into the people around us, our jobs, our responsibilities ... only to have nothing left for ourselves. It doesn't work. If you don't take care of yourself first, you'll have less and less to give until there's nothing left - because you'll keep getting sicker. Taking care of yourself is survival, not selfishness.

8.Giving up too soon. When you try a new treatment or lifestyle change, it can take time for the effect to be felt. If you give up too soon, you can really miss out on long-term benefits. Give your body time to adjust to the change.

9.Letting stress overwhelm your life. Our lives are full of stressors, and being sick only adds to them. The problem is, stress just makes our symptoms worse. Find ways to reduce or manage your stress so it doesn't keep driving you into the ground.

10.Asking why. We all want to know why we're sick. Is it genetics? Your diet? Vaccines? Pesticides? Infection? Some sort of punishment? Why did it strike you and not the millions of other people like you? This line of questioning can lead to a downward spiral of self-blame, guilt feelings and increased stress. Instead of "why," we need to ask, "what's going on in my body?" That's the question that can uncover the causes of symptom clusters and lead to treatments.

* This article is particularly good for someone newly diagnosed with Fibromyalgia.

Which of these do you struggle with? What ones have you been able to stop, and how'd you do it?

Reply

01/21/2012 12:18 PM  Top
ushie
 
Posts: 1928
Senior Member

Excellent article!

01/21/2012 12:20 PM  Top
PrincessButterfly


01/21/2012 01:49 PM  Top
LilyRose4
LilyRose4
 
Posts: 261
Member

Thank you! I am going to print this out and read it everyday before I get out of bed! Smile

01/21/2012 03:32 PM  Top
stillhopeful
stillhopeful
 
Posts: 4723
Group Leader
I'm an Advocate

Clarita~As usual, excellent material and advice. We are so blessed to have you. Much love and gentle hugs~

Christine

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Christine

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
I am not a doctor, but I sure do make a lot of visits to them. Any information discussed with you, is just my personal experience or information givn to me. I am not your doctor, please call him/her if you are having problems.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
When you get to the end of your rope, tie a knot in iit and hold on tightly. You will get through your problems, because we are all here for you.

01/21/2012 06:29 PM  Top
anitafolkers
anitafolkers
 
Posts: 305
Member

I really enjoyed the info. I'm going to read this again. I relate to all of it.
~mama fockers~
call my hubby gaylord lol
--------
cymbalta 60mg
xanax 0.5mg
flexeril
dicfluenec??
fioricet 50/325/40mg
propranolol 80mg
omperazole 40-60mg
imitrix 100mg
Pro air inhaler
hot baths
and a partridge in a freaking pear tree...
~im no dr and have no means of dx anyone. i say whats on me mind. i may offer suggestions on what may work for you if ive tried it and it works for me. not everyone responds the same. so on that not..~ ..~blessed be~ :-)

01/21/2012 06:44 PM  Top
PrincessButterfly

anitafolkers,

Hello! I am not sure if I have welcomed you but I am glad that you posted.

Make yourself at home and just know that you are not alone. Wink


01/21/2012 07:13 PM  Top
anitafolkers
anitafolkers
 
Posts: 305
Member

thanks princess butterfly
~mama fockers~
call my hubby gaylord lol
--------
cymbalta 60mg
xanax 0.5mg
flexeril
dicfluenec??
fioricet 50/325/40mg
propranolol 80mg
omperazole 40-60mg
imitrix 100mg
Pro air inhaler
hot baths
and a partridge in a freaking pear tree...
~im no dr and have no means of dx anyone. i say whats on me mind. i may offer suggestions on what may work for you if ive tried it and it works for me. not everyone responds the same. so on that not..~ ..~blessed be~ :-)

01/21/2012 07:16 PM  Top
PrincessButterfly


01/21/2012 08:23 PM  Top
stillhopeful
stillhopeful
 
Posts: 4723
Group Leader
I'm an Advocate

Welcome anitafolkers~

How wonderful that you have found us. We are here to support you in any way we can. I am so sorry though that you have to suffer from this illness called fibro.

I am a group leader and please feel free to pm me anytime you have any questions that maybe you don't want to ask in front of everyone, maybe a little embarassing or something. Just know that I am here for you always.

Another very supportive group leader is Clarita, she lives in the UK and is very supportive. We also have another group leader and her name is Pearl. We may have another coming aboard soon. We usually have 4 group leaders because this is usually a very busy place.

Please sit back relax, and pull up a chair and feel free to add to a post or start one of your own. I look forward to getting to know you better.

Warm welcome hugs~

Christine

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Christine

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
I am not a doctor, but I sure do make a lot of visits to them. Any information discussed with you, is just my personal experience or information givn to me. I am not your doctor, please call him/her if you are having problems.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
When you get to the end of your rope, tie a knot in iit and hold on tightly. You will get through your problems, because we are all here for you.
Reply

Share this discussion with your friends:
Members who viewed this page also read:
<< Start < Prev 1 2 3 Next > End >>

Fibro ChallengesFibro Challenges ForumsGeneral & Support10 Things to Stop Doing To Yourself With Fibro

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.
Contact Us | Bookmark Us | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | MDJ Advocates | Advertise
Copyright (c) 2006-2013 MDJunction.com All Rights Reserved