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"my mum has copd " (KT1982)

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neshama48"Having Crohn's Disease for over 26 years, in the first few years, it lonely and isolating.
Though now my disease is in a near perfect remission, my friends and family are sympathetic to me, but I can not talk to them about this disease. When I stumbled across MD Junction, and met others who had the same disease I was not alone in battling the disease. MD Junction is like a second family, without the judgement or guilt of having Crohn's Disease, but they do give you love and support.
" (neshama48)

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Fibro Challenges ForumsGeneral & SupportMy diary and profile on the internet
02/27/2011 09:27 PM
nonakaye
nonakaye
 
Posts: 55
Member

I googled my profile name and there was my profile and my diary entries on the internet. Wow. No privacy. So everyone do not use your name. Sick
Reply

02/27/2011 10:08 PM  Top
happycampc

Ouch, that hurts. I knew that the diary here was open but I thought only to the people here or on your friends list. Yes, we better all be careful of that.

02/27/2011 10:28 PM  Top
nkier

very good to know

my husband was worried about thisW00t

Nickie Silly


02/28/2011 06:44 AM  Top
oregonnative
oregonnative
 
Posts: 5127
Group Leader

The main thing is to keep your username safe. The likelyhood of anyone who knows you running across your entries here would be astronomical unless they know what name you use here and try to see it. And yes, never use your real name in anything but a PM.
Shoot for the moon...if you miss it, reach out and grab a star.
Karen

I am not a medical professional. All comments are based on my own experience and/or from articles I have read.
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Health Topics: No privacy
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