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Fibro Challenges ForumsGeneral & SupportWaiting for "real" diagnosis and morning scare.
02/26/2011 09:50 PM
nkier

Sad I had a major problem this morning and I am so glad I am seeing the doc on Tues for my results and see if he can give me an idea of what is wrong with me.

I woke up in SEVERE PAIN in the front hip and I could not move my legs. I am so stiff when I wake up I just screamed in pain for about 30 minutes as I tried to get my legs to move. Even my good leg wouldn't budge and I had to get the bad leg out of the position and deal with the pain that woke me up. I finally sat up in so much pain. I knew I needed to sit for a bit before I could try and stand up. I positioned my walker but once I got to it, I couldn't stand up. I was able to reach the door and open it. Russ had been sleeping from the crazy plow hours and never heard me screaming. I called his name and he woke up. He helped me get into the seat of my walker and I didn't know what to do. Russ gave me my socks and it was all I could do to get them on. I kept move my legs as much as I could to relieve any stiffness. I finally tried to head to the bathroom and I went really slow. Thank goodness we have a high toilet. I could not get off the toilet so I leaned forward holding onto the seat of the walker and then I was able to sit up. I have been recovering all day. I just am looking forward to Tuesday and I know this may take time to get some real answers and now I need to believe and accept what I just said . I want a diagnosis now. I want physical therapy to teach me what to do when this happens because Russ will be working full time sooner than later. I need to be able to care for myself without extra help.

Your prayers for my acceptance of the course of figuring out what is wrong would be greatly appreciated. Of course I want answers on Tuesday but I don't want to be disappointed by hearing, I don't know what is wrong. I do have a benefit of the three years of weakness. It is not like I am going to him as soon as it started. There is more of a chance of something showing up on the MRI if it has been going on for a long time. W00t Hugs...Nickie

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02/27/2011 07:13 AM  Top
happycampc

Hi Nickie, That must have been very scary for you. I understand your feelings and hope and pray that on Tues they will be able to give you some answers and a diagnosis so that way you know what you are dealing with. Keeping you in my thoughts and prayers. Hugs, Ann

02/27/2011 07:20 AM  Top
grammyinPA

Nickie

I'm so sorry you are having such a rough time. Hopefully, Tues. you will get some answers and treatment options. Try to stay strong and hopeful.


02/27/2011 07:34 AM  Top
Kimbaskicks
Kimbaskicks
 
Posts: 743
Member

Oh Nickie!!! I feel for you, sweetie!!! Only two more days....praying they have some answers for you!!

Big {Hugs}

~Pain is inevitable, suffering is optional!~

02/27/2011 08:17 AM  Top
oregonnative
oregonnative
 
Posts: 5127
Group Leader

Oh my goodness Nickie! That had to be so scary. I hope that doesn't repeat itself today and very soon Smile you will hopefully have some answers and then some relief and treatment.

Hopeful hugs,

Karen

Post edited by: oregonnative, at: 02/27/2011 08:19 AM

Shoot for the moon...if you miss it, reach out and grab a star.
Karen

I am not a medical professional. All comments are based on my own experience and/or from articles I have read.

02/27/2011 09:29 AM  Top
nkier

As you can well imagine, I am scared. I can lean on each one of you and stop the stress inside my body unless I really think about it. I want to thank everyone for their support and carrying this burden for me so I don't get too stressed out. I woke up with some pain this morning and it scared me. I don't remember where it was but I moved around my legs and removed all the heating pads and went back to sleep know I was actually ok. I demanded that my husband leave the door open when he gets up and I still couldn't go to sleep last night. I listened to a piano CD and I still did not go to sleep. Devil Finally I must have fell off shortly after that and slept very well. I stretched A LOT before I attempted to get up and I still had a difficult time and my legs feel so odd as they have for a long time (3 yrs)as they only continued to get worse. I love Zoom Zoom but I prefer to walk on my own without a walker at 45. I will wait patiently as I have two days left to find out if three hours in a MRI machine and all the blood works assists the doc in a diagnosis. I pray I can get a diagnosis so I can get treatment or at least learn about the illness I have. There is a great possibility that I have Fibro too so I'm not leaving BECAUSE I NEED MY SUPPORT SYSTEM. THANKS AGAIN. BIG HUGS....Nickie Silly

Post edited by: nkier, at: 02/27/2011 09:34 AM


02/27/2011 10:45 AM  Top
gz55

it's so hard not to know what's causing such pain and i'll be praying for a diagnosis for you, nickie, and also for treatment. hold on and find comfort in prayer and your friends here.

much love and many hugs,

gail


02/27/2011 01:29 PM  Top
nkier

I am quite calm and that "is not me". I feel the support I get from here and prayer has taken it out of my hands and I am trust as it feels like everyone is holding my hands. I wouldn't be so concerned about the pain as I am about the inability to move my legs and I try my hardest to tell them to move. I am in moderate pain today but by the time I take my shower and recover, it will be time for bed. I can take meds at 5 p.m. and then I will undertake my shower.

Thanks. Hugs....Nickie Silly


02/28/2011 06:57 AM  Top
oregonnative
oregonnative
 
Posts: 5127
Group Leader

I hope you slept well last night Nickie and that your legs worked for you this morning.

Only 1 more day !! Then some answers. Smile Hold on to our hands and the day will fly by. In fact I am heading into the kitchen now for an apple fritter, so now it will really whiz by!! Laughing

Fluffy Marshmallow Hugs

Shoot for the moon...if you miss it, reach out and grab a star.
Karen

I am not a medical professional. All comments are based on my own experience and/or from articles I have read.

02/28/2011 11:45 AM  Top
nkier

Thanks. I did sleep well but the morning was difficult. My weak leg did not work and it was not a pretty picture try to get to the bathroom like most people need to in the morning. I hate to say it but I couldn't get up after I got there. I pushed our shower doors open and I leaned forward grabbing the tub pulling myself up. I have to learn to take care of myself and I really need help from a physical therapist for some training. I'm excited reading about how much a physcial therpist can help. I made it to my meds with somethig to drink and stayed put until my husband got home. So I really need to see what the doc says and even if there is no diagnosis yet, I need some instructions on what to do. I have it wrapped in a heating pad right now but need to get up and things are getting better as the day continues. Thanks for your encouragement Smile I couldn't do this with the same attitude without all of your support.

Thanks. Enjoy your day and so will I. My eyelids are dropping. Hugs....Nickie

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