MDJunction - People Helping People
 

Why wear a ribbon?

 
"I was suicidal for many years!" (katiekahr42)

MDJunction to me

1magicman"Before i found MDJ i was in the deepest darkest part of my life after my abduction. I wanted to feel safe. I wanted that sense of being a normal person.Finding MDJ and the people with in it has steered me down the correct path into the light of hope. The feeling of hope that i was not alone,the feeling of hope of understanding,and the feeling of hope to move on. I never give up hope." (1magicman)

more testimonials
Fibro and Chronic Fatigue Support Group
A community of patients, family members and friends dedicated to dealing with Fibro and Chronic Fatigue, together.
Join This Group
Group Home   Forums   Articles   Members (1139)   Diaries   Videos   Leaders   Guidelines
FMS & CFS Group RSS Feed
FMS & CFS ForumsGeneral & Supportdisability?
03/02/2010 02:18 PM
yorkandchi
 
Posts: 1
New Member

Is anybody on disability or trying at this time?
Reply

03/02/2010 11:44 PM  Top
Rainmist
Rainmist
 
Posts: 490
Member

Hi Yorkandchi

I've looked at it, but I'm not familiar with the process - I'm sure someone who is will be along shortly! Are you considering giving up work or having difficulty keeping on with work?

nice to meet you!

Rainmist

Rainmist

Previous discussions I participated in:
Sublux ???s
schools?
my 2 year old has hypermobility???

03/03/2010 01:46 PM  Top
fluffyluggage
fluffyluggage
 
Posts: 4723
VIP Member
I'm an Advocate

Hi Yorkandchi,

Welcome to the forum. I'm looking now at disability. I haven't worked for very nearly 2 years now (literally in about 3 days!), and I'm doing very poorly. A friend said to me today that since she and I met, I haven't been doing this badly, and I haven't had this many health issues or this many flares in such a short time. She is on disability, and she felt that I really need to get the ball rolling on it.

I do know that you can apply at any time, but you do have to be out of work for 1 year, and that you may or may not get it the first shot. If you are looking at applying, there is a great group of people here who can really answer a lot of questions about application process and all of that, at the SSI/SSDI forum. Please consider joining there as well. In the meantime, can you give us more information about yourself, so we can help you with what's going on with you now? It will take some time to get disability, usually at least 3 months, last I heard, and that's if you're lucky, so in the meantime, how can we help you here? What's going on with you, and how long have you had FMS/CFS? Is there something else we can help you with? How long have you been out of work? Can you just let us know a little more about yourself?

Hugs,

jen Smile

Just because it's impossible doesn't mean it can't happen.

I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help. I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!

The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days.

Something has changed within me/Something is not the same/I'm through with playing by/The rules of someone else's game/Too late for second-guessing/Too late to go back to sleep/It's time to trust my instincts/Close my eyes and leap...I'm through accepting limits/Cuz someone says they're so/Some things I can not change/But till I try I'll never know/Too long I've been afraid of/Losing love I guess I lost/Well if that's love/It comes at much too high a cost/I'd sooner buy Defying Gravity/Kiss me good-bye I'm Defying Gravity/I think I'll try Defying Gravity/And you won't bring me down...
--Defying Gravity (Glee Cast version)

Previous discussions I participated in:
May be in and out...
May be in and out...
depression

03/03/2010 02:00 PM  Top
chatterbox82
Posts: 5
New Member

hello i thougt id reply to u since i have had the issue of disability. I contacted them in june of 09 and after 4 months was told they felt i could still do light work somewhere.... so i appealed this and they said they agreed with the first opinion and they didnt wait for my next doc apt with a specialist which is next week. now if i continue i have to apply for a hearing and that could take a year to get the hearing. I currently have a lot of medical issues but they still dont wanna give disability without a fight. u may luck out who knows until u try just be prepared that it took 8 months of dealing with them and there doctors for two no's. But a family member with the same problem filed and was approved first shot so its something u can go threw just know it takes alot of time and patience. good luck

03/05/2010 11:22 AM  Top
fluffyluggage
fluffyluggage
 
Posts: 4723
VIP Member
I'm an Advocate

Hey chatterbox,

So sorry to hear you're having to go through this. It can be very difficult. That's realy why I recommend the support group on this site, as they have so many answers to so many questions--they've been through it all, and they have some great members and leaders who really know what they're talking about. I think they can help so many people that I think it's worth talking to them.

I know 2 people who've gotten disability first shot out as well, but I also know someone who was far more ill (IMHO) than they and has had to fight tooth and nail and gone through 2 appeals hearings before finally receiving her disability. Now, she's going through another appeal to receive back-pay disability, and it's been a real mess for her. She's had to hire a lawyer, and the judge who finally did approve her original claim for disability said that he was ashamed at the system for disapproving her and that it had gotten to his desk for the appeals process at a second appeal! I was proud of her having gone that far and fighting so hard.

It appears that some of it also seems to depend on your state, for some reason. As even though it goes through feds, it's also dependent upon the state to see about approval? But again, the forum here can tell you more about that as well. Some states seem to not want to approve as many, and others are kinda like, sure, you got it! LOL

Good luck on your appeal--hugs,

Jen Smile

Just because it's impossible doesn't mean it can't happen.

I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help. I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!

The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days.

Something has changed within me/Something is not the same/I'm through with playing by/The rules of someone else's game/Too late for second-guessing/Too late to go back to sleep/It's time to trust my instincts/Close my eyes and leap...I'm through accepting limits/Cuz someone says they're so/Some things I can not change/But till I try I'll never know/Too long I've been afraid of/Losing love I guess I lost/Well if that's love/It comes at much too high a cost/I'd sooner buy Defying Gravity/Kiss me good-bye I'm Defying Gravity/I think I'll try Defying Gravity/And you won't bring me down...
--Defying Gravity (Glee Cast version)

Previous discussions I participated in:
May be in and out...
May be in and out...
depression

03/17/2010 08:29 PM  Top
khibdon
 
Posts: 215
Member

Hi Everyone. I was lucky to be approved for Postal disability. I think the fact that my doctor was VERY familiar with the disability process had much to do with my approval. She had to write and write again her OPINION and prove it with medical data and my history.

My sister had to file and refile and go to hearing after hearing. She hired a Social Security lawyer, however, NOT UNTIL I got involved did she finally get it.

I had her collect ALL medical data from every doctor she had been to in the last 2 yrs, which included a number of times to the Emergency Room. She attends a govn't day center for citizens with mental problems. Her case worker submitted a report at our request and the manager of the facility also submitted a letter in her behalf. We submitted every piece of medical history we could find. Then finally armed with all this evidence, she was approved.

A yr or two later, they required her to attend another hearing to see if she needed to CONTINUE ON SSI. By this time her physical and mental conditions were so obvious, they immediately granted it.

I sure hope she doesn't have to waste time fighting for it again.

I think the more overwhelming the volume of medical data and evidence presented, the better your chances. An attorney may be able to help, but he will let hearing after hearing go by. YOU have to take control, gather the evidence, submit letters from as many degrees professionals that you can testifying to documented symptoms/medical test/disabilities, etc. Attend the hearings, if you can.

They make you do all this paper work and wait and wait, all in the hopes that you'll be too sick to see it thru and give up, ....or maybe you'll die before you're approved. It's NO ACCIDENT disability is set up this way. If I was being denied, I would CALL MY U.S. SENATOR OR REPRESENTATIVE and ask for help. (They may say they can't help, but I don't believe this.) Good Luck.

Post edited by: khibdon, at: 03/17/2010 08:33 PM


03/18/2010 07:21 AM  Top
willowpersian
 
Posts: 14
New Member

Hi York.. I am on disability, but I couldn't get it for my Chronic Fatigue Syndrome. I also have Clinical Depression and have just been diagnosed with Fibromyalgia.. what do you have going on? I'm sorry that you are so ill that you need to be on disability too... HUGS, Lisa
Lisa

Previous discussions I participated in:
Introduction
Introduction

03/18/2010 05:07 PM  Top
fluffyluggage
fluffyluggage
 
Posts: 4723
VIP Member
I'm an Advocate

Please, please, please, if you are considering disability, and this goes for anyone considering it, join the SSDI/SSI forum here on MDJ. It's so important to get as much info as you possibly can, and the folks on that forum are really there to answer as many questions as you have. I can't stress enough how much help they can be. We're here to help as much as we can with what we've all been through, but they're also there to help with many of the other issues that people deal with, and they have a lot of resources we may NOT have.

Hope that helps some, for everyone looking for help with disability.

Hugs,

jen Smile

Just because it's impossible doesn't mean it can't happen.

I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help. I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!

The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days.

Something has changed within me/Something is not the same/I'm through with playing by/The rules of someone else's game/Too late for second-guessing/Too late to go back to sleep/It's time to trust my instincts/Close my eyes and leap...I'm through accepting limits/Cuz someone says they're so/Some things I can not change/But till I try I'll never know/Too long I've been afraid of/Losing love I guess I lost/Well if that's love/It comes at much too high a cost/I'd sooner buy Defying Gravity/Kiss me good-bye I'm Defying Gravity/I think I'll try Defying Gravity/And you won't bring me down...
--Defying Gravity (Glee Cast version)

Previous discussions I participated in:
May be in and out...
May be in and out...
depression

04/17/2010 06:23 AM  Top
JannyPi
 
Posts: 7
New Member

I was denied disability the first time, and then the decision was reversed with the appeal that was made through a lawyer. The lawyer got the case pushed through a lot faster, and had a clear file of medical records to support the claim.

04/17/2010 01:53 PM  Top
danah3862
 
Posts: 11
New Member

I was denied first round but got an attorney right away and go to court in May. Haven't worked in 2 years, and my attorney says I have good chance of winning. Have degenerative disc disease, ptsd, and fibro. I have panic attacks thinking about talking to the judge!! Ahhh!

Previous discussions I participated in:
newly dx
fms
Reply

Share this discussion with your friends:
Members who viewed this page also read:
<< Start < Prev 1 2 Next > End >>

FMS & CFSFMS & CFS ForumsGeneral & Supportdisability?

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.
Contact Us | Bookmark Us | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | MDJ Advocates | Advertise
Copyright (c) 2006-2013 MDJunction.com All Rights Reserved