Fibro and Chronic Fatigue Support Group

JEN How 'bout it? You did a GREAT JOB!!!

I do have a theory on fm that I hope to present to our medical college...don't remember if I mentioned that before? But I do believe it is triggered in the brain. I have written a synopsis which outlines the very disease process for them. I have spent much time on it and I hope they give it careful consideration...then again, I could be totally wrong. I hope to submit it in fall. After my submission, I will post it, if you would like.

But I do care dearly for all of you and hope you have a better, brighter day tomorrow!

Huge gentle hugs to my mdj family,

Eva

Eva- bless you for being You!! The world is a better place for individuals such as your fine self that is for certain!!

Do have much fibro fog- forget stuff just said to me a few moments( sometimes even seconds ago) short term memory like a fish- like the Dory fish from the film,'Finding Nemo'.

Wouldn't it be great if they could fathom a cure for us all with Fibro?! Find the cognitive/brain fog symptoms the hardest to cope with especially as am trying to write a book!! Have much pains in body yet most days can rise up above this as am an optimist as well as v blessed with a lovely loving hubby!! Yet, the brain symptoms make me especially cross- never was dyslexic until fibro, say the opposite of what mean sometimes like say hot when mean cold and not always aware that have said the wrong word until it is pointed out to me. Concentration is not great either. Yet, the fantastic factor about this place is that we are all in the same boat plus we all support each other in such amazing ways- helps you to cope much better with the maddening brain fog symptoms/cognitive challenges, most definitely!!

Jen is a real star, too!!

Massive gentle hugs to all here, Love from the bat girl and her puppy Dalmatian Sebastian xoxooxox

Thank you for your most kind words It is only a theory though, however, I am hopeful it will be recognized by the medical college as a valued avenue to explore. And yes a cure would most definately be welcomed!!! Or at least something to stop the progression of the disease.

Thank you for your input here too! It is extremely valuable! When I was first describing my symptoms and the drs were looking at me as if I were nuts, I just loathed them. I felt victimized by the very thought of another visit with them. I DO feel that the medical profession needs to be educated as to how to better treat their patients both professionally and a good bedside manner would be appropriate for people who experience what we do.

I wish you well in writing your book Best of luck with that.

I agree with you that Jen is Awesome!

Gentle Hugs to you,

Eva

Hugs!

jen

Words can become very mixed up at times. Although it is very frustrating I have learned to laugh and others laugh too.

The pain is not so easy to laugh away but distraction and a positive attitude are helpful.

Thank you for this most encouraging article.

1. Today I go to work with shoes on of a different design and a different color!

2. I drive past my usual exit.

3. I occasionally look at the buildings I'm driving past and wonder exactly where I am along my usual route.

4. I forget the names of my co-workers and my students. (Thank goodness for endearing terms like "Friend", "Sweetie," and "Hey You.")

5. I have to hook my keys, my phone, my pens onto my purse not to lose them.

6. If I want to remember anything, I have to write it in my "book".

7. I mis-see and/or mispronounce words.

8. I look blank while trying to think of the simple word I want.

I'm sure you all can say "Amen" and come up with a list of your own.

Thanks for the info. Even though I know all those things, having all the symptoms and coping put so conscicely really helps. I am going to copy this and pin up in my office.

heather