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roy Posts: 5188
Admin
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Hello, Welcome to the Fibro and Chronic Fatigue Support Group. This Support Group is a comfort place for family members and friends to share and ask questions regarding FMS & CFS. Feel free to introduce yourself, ask your questions and be around people who are in your spot. We'll be happy to hear your thoughts on how to make this Fibro and Chronic Fatigue Support Group better. Best, roy first they ignore you
then they laugh at you
then they fight you
then you win.
- Ghandi
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MegT Posts: 2
New Member
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 Hi Roy and thank you for the welcome email 2 the group ... Meg |
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achyten Posts: 22
Member
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Hi Roy! Thankyou for having me here. I"m looking for a group of people who suffer with similar things that I suffer from... so we can share our days with each other.. also to maybe find some good friends. A person doesn't feel so alone when you can amongst others, who have FMS/CFS/ME,Bipolar depression,SAD, TMJ, IBS, and so many other things that keep adding it seems year after year. Not to mention the everyday pain we go through..It's just gonna be so nice to meet others,,I spend my days home alone. yes i'm housebound..Yikes! What i'd give to have a friend sitting right here with me,, yah! Here's a coffee! cream and sugar?. Help yourself! LOL. I can get pretty goofy. when I want to.. Again! Ty Ty Ty Roy!!!! Love your group! Now to git going to find some friends! LOL. Hugzzzzzzzz, achyten/Jennie |
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achyten Posts: 22
Member
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Oh yah! was gonna say, that quote you have there by Ghandi,,, WELL, it sounds like my family....... lol. |
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fluffyluggage Posts: 4723
VIP Member
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Hey Meg and Jennie, I just wanted to welcome you really quick and let you know that Roy and Alon are our moderators for the entire MDJ. They're awesome and do great things for us. They monitor our boards, but I'm not sure how soon an answer will come. They count on our GL's (group leaders) here to take care of each individual group. For us here, that's Debi and me (Jen). So if you need anything, you can always find them or ask them, but if it pertains to our particular group, Debi and I can usually resolve an issue faster for you, cuz we have less to do, and that's what Roy and Alon trust us to do! Hope you enjoy your stay with us, and I hope it'll be long and fruitful! Many hugs to you both! Jen Just because it's impossible doesn't mean it can't happen.
I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help. I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!
The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days.
Something has changed within me/Something is not the same/I'm through with playing by/The rules of someone else's game/Too late for second-guessing/Too late to go back to sleep/It's time to trust my instincts/Close my eyes and leap...I'm through accepting limits/Cuz someone says they're so/Some things I can not change/But till I try I'll never know/Too long I've been afraid of/Losing love I guess I lost/Well if that's love/It comes at much too high a cost/I'd sooner buy Defying Gravity/Kiss me good-bye I'm Defying Gravity/I think I'll try Defying Gravity/And you won't bring me down...
--Defying Gravity (Glee Cast version) |
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sandye Posts: 9
New Member
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Thank you to everyone who is responsible for this website! I'm new to the sight, but not new to FMS and chronic fatigue. A little bit about me: I am 62 years old, married and raising 3 of our grandchildren. We adopted 2 of them when I was 48; then, 4 years ago, we adopted their full sister. The children are 12,13 and 14 years old. I was diagnosed with fibro when I was 31 years old by a rheumatologist. Since then, as I was seeking help for my pain, my diagnosis has be reaffirmed by 3 internists and 2 more rheumatologists. No that many years ago, I was a type A personality, a business owner and a "go getter", even though I had fibro, I was strong willed and just lived with it. But, about 7 years ago, fibro and chronic fatigue really started taking a tole on me. I no longer work, tried working part time and couldn't do it. I'm here to continue learning, looking for different treatments and to be of help to others. The fibromyalgia and chronic fatigue has turned me into a totally different person than I was. I would give anything to have that person back. Gentle hugs and wishes for "good days" to everyone. Sandye |
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happygranny Posts: 163
Member
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hello sandye, happy granny here, i know how you feel with not being able to work anymore, but really i think you have plenty of work by raising your grandchildren. they are lucky they have someone like you, i think its great your doing this. as for feeling like a different person i agree with that too, sometimes i do things that i never would have done or felt something so much more emotionally. i must say i actually had a brief meltdown once just because i couldn't finish a quilt i was working on for a new baby to a good friend. the thing is i never had a meltdown over anything being a type a personality, but now...lookout! hehe oh well all you can do is just try and accept who you have become and try and find ways to help yourself. if you ever need to talk feel free to look me up, i try to ck in fairly reg. nice to meet you and welcome |
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purpleribbon Posts: 1
New Member
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Hello, I'm new to group and this site. I've had fibro for 20 years plus it had progressivly getting worse. Do to this and other medical issues I'm on disablity. Its no fun ,and I really miss my work as anurse. I have 2 older boys and one little girl of 8. Even though I'M 46 I feel like I've been through it all and mentally at least 120. Great to be here at my ripe age. |
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hedap Posts: 2009
Senior Member
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Hey all, Meg, Achyten, Sandye and Purple Ribbon, It's wonderful to hear from all of you. I just love this group and hope you have the same experience that I've had. The members are kind, considerate, sharing and great listeners. We all bring our life challenges here and it helps so much to hear others opinions or just have a hug sometimes. I've had fibro a long time and wanted to tell you just a little about my time here with the fibro groups. It wasn't until I began to interact with the members here that I was finally able to accept my/our condition. I know that's not the end of my journey, but I can't even express what a huge step that was for me. I hope to hear from all of you and look forward to chatting. If anyone wants to talk further you can send me a personal message (PM) anytime. I try to check my messages daily and would be glad to hear from you. hugs, heather Savella 50 mg 2x daily
Lortab 10's 4x day
Tramadol 50 mg 4x day
Nuvigil 123 mg day
Klonopin o.5 mg 4 doses daily
Aplenzin 348 mg 2x day
Abilify 5 mg day
Lamictal 50 mg 2x day
Misc.
Levothyroxine 150 mcg 1x day
Vitamin D 50000 IU's 1x weekly
Pravastatin 10 mg day |
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ladybug50 Posts: 2
New Member
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HiI just wanna ask anybody out there about skin being so tender to touch is anyone having that, also I'd like to know about weird rashes and burning toung and something different everyday swelling so bad cannot make a fist. legs and feet also and it's hard to wear shoes. I'm sorry I am not sure how to post but I found this and thought I'd give it a go !! HELP !! Previous discussions I participated in: New |
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"MDJunction means to me the freedom to express my feelings without being interrupted and knowing there are others that can share their experience too. As a Leader it is a to show compassion and give support to all the members and always listen to each one's needs. Sometimes I may not be able to relate, so I view the responses that do relate and happy to see the results. I am proud to be a member of MDJunction and share it with all I meet that need support. I am glad to be an advocate for many different areas that MDJunction fills." (cappymuir)
