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03/27/2009 09:41 AM

Is it really a silent disease?

shasta
Posts: 7
New Member

I have had severe pain in upper shoulder with bouts of nausa so went to the Dr. I had a gall bladder scan which showed normal. However, found fatty liver. She told me to loose weight and referred me to a GI specializing in liver disease. I go Monday to see him. The pain has moved down into my lower back and is very painful. I have a hard time sleeping so I started taking Advil PM. I have had GERD and a hietal hernia since I was 16 years old (and thin) I have taken medicines for years for acid reflux which nothing seems to help. I am always gassy and bloated. Gained most of my weight with 1st and only child 17 years ago. Gained 10 more lbs this last few months. I have changed eating habits but can't seem to loose weight. I also have a drink or two every night. This has been a wake up call for me and I want to loose weight and stop drinking. My concern is that there seems to be no symptoms with fatty liver and I hurt so bad that it might be too late. I know there is something wrong. All the blood work came back perfect. I just had a EDG done in Nov. for follow up on Barretts. I had a colonoscopy a year ago which found IBS but was not put on medications. I want so bad to feel good. It is hard to exercise when you are always in pain. I have been searching the internet for help and it seems that fatty liver is silent and usually found when scanning for other problems. How can fatty liver be a silent disease if I hurt so bad Any feedback would be appreciated.
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03/29/2009 04:01 PM
mpmom
mpmom  
Posts: 3275
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shasta,

Welcome to the group and I'm sorry you feel so bad.

I understand your point, I agree its seems silent only if you're not the one with it! However this refers to the fact that there are few symptoms and they can be related to many other things. They also don't usually show up until the liver has been affected in a adverse way.

fatty liver itself doesn't necessarily harm the liver. There is another , more dangerous part that can cause permanent damage to the liver called Nash ( non alcoholic steatohepatitis) since you do drink some I'm not certain how this would relate to you but its possible.

NASH can cause Cirrhosis

Alcohol induced fatty liver can be dealt with with weight lose and not drinking (ANY) Improvement in the symptoms takes time but it does happen.

Are you Diabetic this also causes fatty liver and must be controlled for improvement.

Usually along with weight reduction you must control diabetes & keep cholesterol down, Metformin and zocor are given frequently.

Important All ANSAIDS (advail) should be avoided not only do they increase the risk of bleeding but they can cause kidney problems in liver patients.

Now By the time I found out I had fatty liver it had already progressed to cirrhosis. I had spider veins on my arms,chest& throat. My Palms were very red , I was in constant pain,vomiting daily and had started loosing weight & was very bloated.

I'm glad you are seeing a specialist. with liver disease this is important . I urge everyone to keep copies of ALL test results they really come in handy down the road.Even if your fatty liver has progressed you can still make a difference by how you handle it.There is no magic wand and it is really hard. You should start with the issue you have with alcohol Most people don't realize that transplant centers require a 6 months (Documented) proof of abstinence. So if you intend to stop you should go ahead and make sure that your progress is documented( AA and your Dr. can help with this. The weight lose is hard I know I need to loose 40 lbs. and the insulin I have to use makes you gain weight.Talk with your Dr. Join a group,(like weight watchers)Join the y if there is one in your area. Many hospitals have weight lose programs.But start with your DR.

I know its scary , I haven't felt good in 3 years . But there is hope. Let me know if you have any questions

Gail Ermm


03/31/2009 08:05 PM
shasta
Posts: 7
New Member

Went to the dr yesterday and after spending almost $300 he told me to loose weight and stop drinking. I already knew that. I have not had a drink since i was told about the fatty liver. He did take more blood for testing but I expected more help. Maybe a diet plan or something. Can you tell by blood work what shape the liver is in? I thought they would do a biopsy next to male sure I have not damaged the liver too bad. Still don't know why I am in so much pain and I take advil to get through work and to sleep. Very disapponted with this specialist. I will have to pay $200 for the follow up visit and I have insurance. Any diet ideas?

04/01/2009 02:09 PM
mpmom
mpmom  
Posts: 3275
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I'm an Advocate

shasta,

The blood work will tell them some things

If your Bilirubin is high or your albumin is low. Your platelets your INR your creatinine all can tell them how your liver is functioning. I would expect them to do more test if these are out of line

I am suprised they didn't order a ultrasound.

I would ask my primary care physician to order a consult with a dietitian.

The pain I think I can explain. ( I'm very familiar with it) The liver itself do not have pain fibers, However the lining around it has plenty, As the liver becomes inflamed it doesn't have room to swell so it presses against everything else thus the pain.

One point I would ask the Dr. if I had NASH ( non-alcholic steohepatitis)

Fatty liver itself doesn't usually cause much pain but with NASH the Steohepatitis (inflamation )causes more pain and can lead to Cirrhosis

You should limit your salt intake

One more point Advil is a no no for liver patients , Because it increases the risk of Heptorenal syndrome.

Gail


04/01/2009 06:07 PM
shasta
Posts: 7
New Member

Thanks so much for your support. The Dr. said he would call today with results but never heard from him. I am still in pain but since I was off today, I stayed on a heating pad and did not take any pain reliever. Dont know how I will sleep tonight if I take nothing for pain. My liver was 18 cm. What is the normal size? The Dr seems to think my pain is more muscular than liver problems. Not sure what to think now. I guess I just have to play the waiting game right now.

04/02/2009 11:59 AM
mpmom
mpmom  
Posts: 3275
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I'm an Advocate

shasta,

Where is you pain exactly. Put one finger on the sport that hurts the worse.

The liver weighs a average of 3 to 3 1/2 pounds

It measures 21cm to 22 .5cm at oits widest point

15cm to 17.5 cm vertically

and 10cm to 12 cm from front to back

they usually referr to vertical when they state the measurement

Gail


04/02/2009 12:49 PM
shasta
Posts: 7
New Member

My pain is mostly in the mid to lower back on right side. When I went to the dr the first time. Now it is worse and on the lower left side. Right under the rib gage. It hurts everytime a take a deep breath

04/02/2009 02:41 PM
mpmom
mpmom  
Posts: 3275
VIP Member
I'm an Advocate

That really doesn't sound like the liver when my Liver hurts (most of the time)I hurt on my right side betweeen my last 2 ribs.Its a bad boring pain. It feels like my ribs are drilling a hole in my liver.

Your spleen is usually enlarged with liver disease and it hurts on the left side under the rib cage kinda the same kind of pain(boring)

When I had Gallbladder pain it was up hight on my right back. If you put a hand below your Rt. breastand follow it around to your back that's where it hurt.

Gail


04/03/2009 09:03 AM
shasta
Posts: 7
New Member

I still have not herd from the liver specialist. I now think I have plurisey. The pain has shifted to under my left rib cage and hurts every time I take a deep breath or cough. In reading about it on the net it seems it came be associated with the liver. And it is recommended to take antinflamitory meds for pain relief which I am trying to stay away from. I don't want to go the the ER but I may end up there this weekend if I can't get any better. I just want the blood results before I go to the ER but no one will return my calls.

04/03/2009 09:04 AM
shasta
Posts: 7
New Member

Again thank you so much for your support!!!!!Dizzy
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