Hey all, my name is Jen and I am 25 years old and I was recently diagnosed with ET. I am not too sure what to feel about this at this time, because I don't know much about it. I would love some insight on what this is and how it may effect me as I get older. If anyone can help me out that would be great
Hi Jen, What has your doctor put you on for your temors? Mine put me on Topamax. I don't know if its going to work yet.I just started taking it Tuesday. I search the internet for ET. The mayo clinic is a one to go to.
My doctor put me on propranolol, it doesn't seem to be working that well, but I only started it two weeks ago. But I know one thing, it sure is making me tired and it is frustrating because I am so tired that I can't play around with my kids without wanting to pass right out. My doctor told me if I really wanted to I could stop taking them and try to just live with the tremor, so I may just need to try that for a while, even though I know that it will be difficult. I have been also trying to find support groups in my city, because they say that can help, but I have not been able to find any. Has anyone else looked into this, and if so how did you find them? Thanks for the info Jolie
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