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  "In memory of my aunt who died shortly after she was born due to Spina Bifida." (TiffanyRenae)

MDJunction to me

Macv"For me, MDjunction has been a place where I can share my experiences
living with the very rare bone disease called Ollier's ( Enchondromatosis ) with the parents of children recently diagnosed. I can help them not to run
into the pitfalls my parents did when I was young, give them a bit of a view
from their child's perspective and simply be there to offer support and
hope to people who are scared and just had their lives upended. I also belong to a chronic pain group and it's been a Godsend to be able to actually
talk with others who understand what I'm dealing with. Besides them helping me through my tough times, I can be there to help them as well. Here too, I can use my years of experience to help others avoid pitfalls and it makes me feel good, gives my life more purpose. MDjunction brings people
together when their suffering, at their darkest and feeling alone in this world and allows some light to be brought back into their lives. HOPE, that's what
MDjunction means to me!
Linda aka Macv
" (Macv)

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Tremor ForumsGeneral & Supportkeeps going on and on....
11/11/2011 06:23 PM
harobed
harobed  
Posts: 1144
Senior Member

between weakness, balance issues, tremors of varying degrees, illegible handwriting... lots of symptoms, but no real diagnosis yet. I've been fighting depression, but I just lost one of my jobs because of my "presence" and my cane.

Ugh - I know I've not been around much but that's part of the depression and the struggle to hit keys!

H.

You know it's gonna get you, somewhwere along the line... ~B. Joel
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11/11/2011 07:22 PM  Top
Ginag
Ginag  
Posts: 2788
Senior Member
I'm an Advocate

Hi

Good to se you again. We don't puch a time clock here....come and go as you can.Smile


12/02/2011 06:49 PM  Top
harobed
harobed  
Posts: 1144
Senior Member

Smile Thanks. It does go on and on. I've been reading posts from the past 2 years. It appears that we suffer similarly maybe at different times, but we all experience chronic symptoms with aggravations. geez It's as if I'm ticking my life away w/meds, dr appts, monitoring tremors, pain, etc.

Luv y'all and hope all of us had a good T'giving and can get thru Christmas with as few massive tremors as possible.

H.

You know it's gonna get you, somewhwere along the line... ~B. Joel

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12/03/2011 10:22 AM  Top
Ginag
Ginag  
Posts: 2788
Senior Member
I'm an Advocate

Hi

While others are writing in their calanders...Dinner with friends, movies with girlfriends, shopping with mom, dancing with boyfriend, dinner with family.... i have 5 differnt Dr'. I socialize with lol. I base everything around thoes visits...Dizzy


12/03/2011 08:36 PM  Top
harobed
harobed  
Posts: 1144
Senior Member

Amen, Gin!!

H.

You know it's gonna get you, somewhwere along the line... ~B. Joel

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12/09/2011 07:35 PM  Top
harobed
harobed  
Posts: 1144
Senior Member

btw, does anyone suffer with the muscle weakness - have to use a cane, etc?

H.

You know it's gonna get you, somewhwere along the line... ~B. Joel

Previous discussions I participated in:
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changes
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12/09/2011 08:04 PM  Top
massillon
 
Posts: 32
New Member

I don't but I've only had tremors for about 3 or 4 years if that make any difference. Besides the shaking, I've noticed a balance problem lately.

Chickadee

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