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What helps your tremors



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05/30/2008 14:02
JolieAdora
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Hi All, does anyone have ways of controling tremor? I was told to count to 5000 or use a paper lunch bag. Also that massage is good. I'm not on any meds yet for ET. I go in June for that. Also what brings on your tremors? My start if i over do it and heat and being tired. What i mean by heat is when i take a shower always makes me shake. Hope to see some more whys to control this.

JolieAdora

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06/18/2008 20:54
metalynn
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My tremors seem to get worse with: caffeine, low blood sugar, and anxiety. As far as counting or using a paper lunch bag - I don't think that would have much effect other than frustration!

Hope you appointment went well.

Shannon


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07/01/2008 15:18
JolieAdora
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HI Shannon ,, nice to meet you.He put in the hospital for 3 days.THen put me on Topamax. that about it. OH yeah ,,He said it would take 6 mos to a year to fix my problem.LOL paper bag works. The counting is frustration LOL.
JolieAdora



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07/01/2008 19:34
metalynn
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Seriously, the paper bag works?! I have got to give that a try! Please keep us posted on how the Topamax works for you...and side effects.

If you don't mind me asking, what type of tests did they run while you were in the hospital?

Shannon


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07/03/2008 10:27
gjmus22
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I find when my hands are bad, to roll the wrists a bit, massage the palms, and I quickly try and touch my fingers to my thumbs. I repeat these things together and it helps a bit, especially while I'm playing my instrument. I'm not sure what part of your body is affected the most. Like I said, for me, it is my hands.

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07/03/2008 11:36
metalynn
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My tremors are in my hands and in my head. My head is not noticiable unless I am at church and taking "common cup" communion. Of course, using the individual cups - my fingers need to try and manuever to grab one cup and then pick the little thing up without spilling it. Usually I'll use Propanolol before and that takes care of the hands.

I'm guessing someday I may end up like Kathryn Hepburn with my head. I think what I worry about more than just the head shaking is it affecting my voice - not just the talking, but I do quite a bit of singing and I've finally gotten over alot of my "stage fright" (fright was usually because I'd worry about people seeing my tremor - go figure!).

gjmus - is it the piano that you are referring to? I also play the trumpet, but played the piano when I was younger. My hands will usually stop when I come into contact with something, but many times I have a hard grip - especially when I am playing my trumpet because there really isn't any resistance like there is with a piano. My hands will fly on the keys, however.

I will give your method a try also.

Shannon


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07/03/2008 11:55
gjmus22
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Well I play the piano, but in the case I use those exercises mainly for the clarinet. I know what you mean about picking up something light and hoping it won't fall out of your hand or spill all over the place. Katherine Hepburn, you will not become.. she had Parkinson's.. a different species, though easily confused by doctors. Take it day by day and don't stress what you can't control until the time comes. Enjoy each day for what it is.


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07/06/2008 01:03
jdancey
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I was diagnosed not too long ago with ET, but I have had it for sometime now. I was taking propanadol (I think that is how it is spelled) but I recently stopped taking it. I am only 25 and have two children and the meds make me so tired that I can't keep up with them anymore. So of course being off my meds I am shaking so bad I can't take it sometimes, so I am wondering is there anything else I can do to help? Besides meds?
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07/06/2008 08:46
metalynn
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I also take propanolol, but I don't use it on a regular basis. My doctor said I can take it whenever I feel I need it and since it's fast acting (for me at least) that's what I do. I used to be able to make a bottle last quite a while, but I'm noticing that I'm using it more often. What doseage are you on and how often?

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07/06/2008 20:08
jdancey
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I was taking 40 mg twice daily. They told me there was an opportunity to take a fast acting one but they also wanted me to try out meds to see which ones are good for me. But I don't see my neurologist for another month or so, so I was hoping I could find something to help me out in the mean time.
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