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cinderella"MDJunction to me is a life saver... when i first was diagnosed with Scheuermann's Disease i wrote a message to a page i found on google, hoping that they could help me.... you'd never know it but that weird feeling (you know that one where it feels like someone actually cares) came over me when i opened my email next day to find that someone on the other side of the world (at the American Medical Library)had read my message while i was sleeping, and there low and behold was the address to MDJunction.... well it is everything to me, i live it breathe it and love it!!!!! I have found many people who are struggling with similar issues banding together to help each other. It is the best place in the world, and i couldn't think of another place to go to meet so many lovely people....

thanks MDJunction
" (cinderella)

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07/14/2009 05:26 PM
Sunshine48
Sunshine48  
Posts: 5
Member

My name is Sunshine 48 and I am new to this Site and Support Group for Epilepsy. I have had epilepsy for 4 years going on 5 now and decided I needed to talk with others whom have dealt and or dealing with what I am so I can get some advice. SO, I am open to any and all who wish to share with me.

Smile

Thanks!

Reply

07/14/2009 08:23 PM  Top
kardie
kardie  
Posts: 1601
VIP Member

Hello Sunshine, I just wanted to welcome you to the site. I'm not much help with epilesy as I'm still not sure that I have it. I have been told I might have a mild case of left temporal epilepsy.

Kardie

I'm not a Dr. and anything I write is my oppinion and my opinion only. I am just like you, I'm here for support and friendship from people who understand what I'm dealing with.

07/15/2009 07:01 AM  Top
belinda1217
 
Posts: 1290
Senior Member
I'm an Advocate

Hi sunshine,welcome to the forum

I've had epilepsy for 45 years.

I have seizures coming from my right and left temporal lobe.

Belinda

(a)abort (b)fail (c)retry (d)throw computer against wall
southern and proud of it.

I'm on Tegretol 1100MG a day Clonazepam 0.5 MG a day and Topamax 400MG a day.

Previous discussions I participated in:
Hello
I live with autism
Memory loss due to seizures

08/20/2009 08:56 AM  Top
shakey4525
shakey4525  
Posts: 3
Member

Hello Sunshine,

I have had seizures since I was 22 months old, 32 years now. It is hard to get used to and very tough to handle at first. I really suggest you get a great doctor who keeps up on your medication and checks the levels on a normal basis and also make sure they get you on a medication that works for you not them. If you need anything just message me and we can chat.


Previous discussions I participated in:
Has anyone heard of migrians b4 a grand mal?

08/20/2009 09:26 AM  Top
Sunshine48
Sunshine48  
Posts: 5
Member

That is my problem...medication isn't working for me. I am now being put on second medication again. Hope this will stop them for a while until my opportunity for the Neuorpace case study comes up; which will be next year. Thanks for your encouragement...keep in touch.

08/20/2009 09:31 AM  Top
Sunshine48
Sunshine48  
Posts: 5
Member

Hello Kardie, thanks for the welcome and I hope wish the best for you. Are you being tested? I am keeping my chin up; hard at times but have to keep moving forward and be strong. Hope to chat again with you. Smile

08/20/2009 09:36 AM  Top
Sunshine48
Sunshine48  
Posts: 5
Member

Hey Belinda, glad to see you here...hope you are doing good and hope all is well. I am trying to get back on my feet again (LOL) and staying there! Hope things will be back to normal again when I start this new medication. Take care of you! Wink

Sunshine


08/20/2009 11:56 AM  Top
kardie
kardie  
Posts: 1601
VIP Member

Hi Sunshine, yes I have had several eeg. I had my last one on the 4th of this month and all was good. My Neuro. now feels my grand mal seizure was from my migrain escalating to the point of causing the seizure.

He took me off the phenytoin and I have to have another eeg and see him in 6 months. If I haven't had any more seizures I think I'll be clear. We are now trying to ensure I don't have any more full blown migrains.

Any time you feel like talking, feel free to pm me. Take Care!

Kardie

I'm not a Dr. and anything I write is my oppinion and my opinion only. I am just like you, I'm here for support and friendship from people who understand what I'm dealing with.

08/20/2009 01:22 PM  Top
Sunshine48
Sunshine48  
Posts: 5
Member

Hope you get a clear bill of health! Having seizures routinely isn't fun. I was diagnoised with epilespy 5 years ago. I has been a change in my life that makes everything else look like nothing. I am a strong woman but I do have weak moments ... but we all do ... but I believe that everything happens for some reason. I don't want it...but I got it and have to deal with it somehow. I will be strong and weak through it with my friends support. Thanks for becoming one of those friends!

08/20/2009 05:02 PM  Top
kardie
kardie  
Posts: 1601
VIP Member

Thanks, I know it wouldn't be fun to have routine seizures. I only had the one that I know of and it was anything but fun. I agree that we all have weak moments. I don't think we would be normal if we didn't.

I'm happy to be one of your friends and I look forward to getting to know you.

Kardie

I'm not a Dr. and anything I write is my oppinion and my opinion only. I am just like you, I'm here for support and friendship from people who understand what I'm dealing with.
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