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02/21/2008 12:39
Ely2152
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Hi everyone! I am new here. I would like to make friends with all of you. how is everybody? Well I am taking Lacmital to control my seizures. Anybody drink the same pills? If yes, how have they work for you?

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02/22/2008 14:01
doubledelightjs
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Hi,

My name is sonia, I am 39 and I also have epilepsy. I take Lamictal and dilantin. I still have seizures sometimes, I will usually go 3 weeks without any and then I will have clusters of them, around 5-8 within a couple of days. I just wanted to welcome you to the site.

Sonia

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02/22/2008 15:22
Ely2152
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THANK YOU SONIA FOR TAKING THE TIME TO WRITE TO ME. SO YOU ARE ALSO TAKING LACMITAL, HUH? CAN I ASK YOU WHY THEY PUT YOU ON TWO MEDICATION? WELL I USED TO TAKE Dilantin ALSO. I WAS ON DILANTIN FOR ABOUT 4 TO 5 YEARS, BUT I DIDN'T WORK FOR ME. I WOULD STILL GET SEIZURE AND SOMETIMES 4 TIMES A DAY. I TOOK LIKE 6 A DAY. IT GAVE ME GINGIVITUS AND I LOST WEIGHT AND I WAS REALLY DEPPRESSED. I CHANGED DOCTORS AND THEY PRESCRIBED LACMITAL AND I HAVE BEEN SEIZURE FREE FOR ALMOST A YEAR, WELL LIKE ONCE OR TWICE I HAVE HAD AURAS WHEN I DRINK COFFEE OR DON'T DRINK MY MEDICATION ON TIME. SO WHAT IS THE CAUSE OF YOUR EPILEPSY? THEY TOLD ME I WAS BORN WITH A LITTLE PIECE OF MY BRAIN IRRITATED AND THAT MAKES MY NERVE CELLS CRASH WITH EACHOTHER AND IS WHEN I HAVE A SEIZURE. BUT I BEGAN TO HAVE THEM WHEN I WAS 13 YEARS OLD. WELL HOPE WE BECOME GOOD CAHT FRIENDS. WRITE BACK WHEN YOU CAN. TAKE CARE NOW.


Popular posts by Ely2152
    I AM EPILEPTIC
    epilepsy walk
    lacmital
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02/22/2008 19:56
doubledelightjs
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Hi, it was good to hear from you.

I started having seizures 24 years ago (I was 15), but someone has yet to find out why. My neurologist has tried me on almost every seizure medicine that there is, there was one that stopped my seizures when I was 26(it was great I was able to drive & get a job) I was seizure free for 7 wonderful years, & then when I was 33 I got married and my neurologist wanted me to be on birth control so I would'nt have an unplanned pregnancy & I started having seizures again. You had asked why I was on 2 medicines my neurologist started me on combinations of medicines to try to get me seizure free.

It was good talking to you.

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02/26/2008 03:50
Bronzey
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hi sonia and Ely how are u???

i was on lamical for 2 weeks and it really didnt work for me.. it made me break out in a very bad rash and blurry vision and bad abdominal pain and other stuff i've been on Keppra now for 2 months (i've been recently diagnosed) and its been workin good for me.. so what does drinking coffee have to do with the seizures.. could it trigger them?? i never had a seizure in my life till almost about three months ago and like a few weeks before that i was drinking loooooooooots off coffee i would drink like 2 or 3 mugs of black strong coffee.. and sonia i wanted to ask u is there a problem if u get pregnant if ur Epileptic?? i love children and ever since i was young i planned to have a big family one day and i hope this wont effect it?? what did the doctor tell you??

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02/26/2008 10:14
doubledelightjs
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Hi! My neurologist was very adament about me not getting pregnant while I am on seizure medicine. When I was finally ready for kids, my neurologist put me on FOLIC ACID about a year before I did get pregnant. I was worried my whole pregnancy about my twins would be like, (I have heard about different medical problems that babies have when there mother was on a seizure medicine while pregnant). My twins are so beautiful they are 4 now. they have no medical problems whatsoever, I know it was the FOLIC ACID. When you do decide to get pregnant, I recommend higly being on FOLIC ACID. I hope this helps. Sonia
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02/26/2008 12:44
Ely2152
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HELLO EVERYONE. HOPE YOU ARE ALL DOING GOOD. ABOUT FOLIC ACID IT DOES HELP YOU SPECIALLY TAKING IT BEFORE YOU GET PREGNAT. I HAVE A 3 YEAR OLD WHICH IS VERY HEALTHY. I WAS TAKING Dilantin WHEN I FOUND OUT I WAS PREGNAT WHICH WAS WHEN I WAS 2 MONTHS. I WAS REALLY SCARED BECAUSE I WAS TAKING LIKE 6 DILANTINS A DAY BECAUSE MY SEIZURES WERE NOT CONTROLLED. THE FIRST THING THAT CAME IN TO MY MIND WAS THAT MY BABY WAS GOING TO COME OUT WITH DOWN SYNDROME OR WITHOUT A HAND OR A LEG. IT WAS REALLY SCARY. THE DOCTOR TOLD ME I COULDN'T STOP TAKING MY MEDICATION BECAUSE IT WAS WORST IF I HAD A SEIZURE BEING PREGNAT. I STARTED TAKING FOLIC ACID AND VISITED THE DOCTOR EVERY WEEK AND HAD A LOT OF ULTRASOUNDS DONE. WHEN MY DOCTOR TOLD ME MY BABY WAS WELL FORMED I JUST TOOK A DEEP BREATH AND THANK GOD. BUT NOW I SEE MY 3 YEAR OLD HAVE TANTRUMS AND GETS REALLY HYPER, I THINK THAT THE MEDICATION AFFECTED HIM A LITTLE OR THE ULTRASOUNDS. I DON'T KNOW IF HE BECAME THAT WAY OR HE WAS BORN WITH THAT. HE COULDN'T TALK BY AGE 1, SO I GOT A SPEECH THERAPIST WHICH HELP HIM ALOT. NOW I CAN'T MAKE HIM SHUT UP. LOL. I AM THANKFULL THAT HE DOESN'T HAVE OR SHOW ANY EPILEPTIC SIGN BUT I AM WORRIED ABOUT HIS BEHAVIOR BECAUSE I CAN'T GET HIM TO STAY CALM. HE IS VERY BUT VERY SMART BUT IS JUST HIS TANTRUMS THAT ARE NOT HELPING ME TO HAVE A NORMAL LIFE. ANYBODY HAS HEARD ABOUT THIS OR HAVE THE SAME PROBLEM? ABOUT COFFE, WELL FOR ME IS BAD AND MAYBE FOR SOME IS NOT. MY MEDICATION MAKES ME TREMBLE ALOT AND WHEN I DRINK COFFEE I SHAKE EVEN MORE AND MY HEART STARTS BEATING REALLY FAST AND SOMETIMES I GET AURAS AND THAT'S WHEN I KNOW I CAN'T COMBINE COFFEE WITH MY MEDICATION. WE EPILEPTICS CAN HAVE CHILDREN BUT WE GOT TO GET IN TO TREATMENT BEFORE WE GET PREGNAT WE GOT TO TAKE FOLIC ACID AND OTHER VITAMINS LIKE A YEAR BEFORE AND TALK TO OUR NEUROLOGIST. SINCE MY DOCTOR CHANGED MY MEDICATION TO LACMITAL I HAVE BEEN SEIZURE FREE FOR ALMOST A YEAR. DILANTIN WASN'T WORKING FOR ME AT ALL. HAVE A NICE DAY!


Popular posts by Ely2152
    I AM EPILEPTIC
    epilepsy walk
    lacmital
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03/24/2008 06:30
Bronzey
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does folic acid have any interactions with the AEDS?
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