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ZadieBlue Posts: 3784
VIP Member
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Hi, I'm new to this forum but not to MDJ -- I have Bipolar, Tachycardia, asthma, terrible allergies, and now, possibly, simple partial seizures?!? I was going to see a neurologist anyway because during the last few bipolar episodes I've "lost" time, up to 80% of 2+ weeks. Then, over the last year I have had what I believe to be 3 simple partial seizures while operating heavy machinery -- it scared the holy hell out of me! I felt detached, unable to focus, scared, body got rigid, didn't have much control over my arms and legs, very well could have pissed myself, and felt like I would suddenly fall asleep. The only reason I got through it all was to focus intensely, more than ever before. I'm on a lot of meds right now, and I feel they are the main source of these seizures. I can't stand the thought of possibly having yet another illness. Then again, some have cited a link between bipolar and seizures. Should I be surprised? Does any of this sound familiar to those who get simple partial seizures? Thx, Zadie "I'm going to quit -- dried turkey." - Anonymous
"I forgot my mantra." - Annie Hall
"Knocked me on the head and sent me spinning
It was a blast I can't remember the last time
Stand between two poles and hold your arms up
I'll kick me over your head and stock down . . . " - Throwing Muses
Female, age 37
Bipolar I (mild)
• Episodes / cycling happen most often during Spring and Fall allergy season; some dissociation possible during episodes.
• GAD dx 12/11, PTSD traits, ED (in recovery)
• Boarding school survivor :)
PSYCH:
Adderall 15 mg x 2 • Prozac 40 mg • Ativan 1.5 mg • Geodon 120 mg • Starting Lithium again
(Levothyroxine 50 mcg • Atenolol 12.5 mg x 2 • Clonidine 0.1 mg x 3).
ALLERGY / ASTHMA -- (Winter / Spring cocktail): Levocetirizine • Alvesco HFA 160 mcg • Ketotifen Fumarate PRN • Flovent • ProAir PRN
Mercy Buckets to everyone!!!
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2steveb Posts: 5747
Group Leader
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hi ladie blue, can you understand what ppl are saying during these? if it isnt broken, dont fix it
steve |
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ZadieBlue Posts: 3784
VIP Member
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I'm alone, concentrating. But it does feel like I'm suddenly underwater, the texture of everything is so different. It's scary. And I feel like I'm going to nod off. "I'm going to quit -- dried turkey." - Anonymous
"I forgot my mantra." - Annie Hall
"Knocked me on the head and sent me spinning
It was a blast I can't remember the last time
Stand between two poles and hold your arms up
I'll kick me over your head and stock down . . . " - Throwing Muses
Female, age 37
Bipolar I (mild)
• Episodes / cycling happen most often during Spring and Fall allergy season; some dissociation possible during episodes.
• GAD dx 12/11, PTSD traits, ED (in recovery)
• Boarding school survivor :)
PSYCH:
Adderall 15 mg x 2 • Prozac 40 mg • Ativan 1.5 mg • Geodon 120 mg • Starting Lithium again
(Levothyroxine 50 mcg • Atenolol 12.5 mg x 2 • Clonidine 0.1 mg x 3).
ALLERGY / ASTHMA -- (Winter / Spring cocktail): Levocetirizine • Alvesco HFA 160 mcg • Ketotifen Fumarate PRN • Flovent • ProAir PRN
Mercy Buckets to everyone!!! |
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2steveb Posts: 5747
Group Leader
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im no neuro Dr but what you say doesnt sound like what you think it is? had any neuro tests done for it? if it isnt broken, dont fix it
steve |
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ZadieBlue Posts: 3784
VIP Member
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I need to go see a neuro doc anyway due to some spells of amnesia. I have had "events" lasting less than 20 seconds that have almost gotten me into accidents. They might have been very very brief anxiety attacks, but I doubt this. I need to get checked out by neuro. Besides, I've sustained several serious blows to the head and at age 10 I had a full-fledged seizure in front of an entire church congregation. "I'm going to quit -- dried turkey." - Anonymous
"I forgot my mantra." - Annie Hall
"Knocked me on the head and sent me spinning
It was a blast I can't remember the last time
Stand between two poles and hold your arms up
I'll kick me over your head and stock down . . . " - Throwing Muses
Female, age 37
Bipolar I (mild)
• Episodes / cycling happen most often during Spring and Fall allergy season; some dissociation possible during episodes.
• GAD dx 12/11, PTSD traits, ED (in recovery)
• Boarding school survivor :)
PSYCH:
Adderall 15 mg x 2 • Prozac 40 mg • Ativan 1.5 mg • Geodon 120 mg • Starting Lithium again
(Levothyroxine 50 mcg • Atenolol 12.5 mg x 2 • Clonidine 0.1 mg x 3).
ALLERGY / ASTHMA -- (Winter / Spring cocktail): Levocetirizine • Alvesco HFA 160 mcg • Ketotifen Fumarate PRN • Flovent • ProAir PRN
Mercy Buckets to everyone!!! |
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2steveb Posts: 5747
Group Leader
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sounds like your onto a good plan of action there keep us posted had an EEG? or is that planned if it isnt broken, dont fix it
steve |
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Farleybean Posts: 2
New Member
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My 10 yr old son started having simple partial seizures in dec. last year. He had a few "biggies" and then settled in to having about one every week. Doc started him on Trileptal which caused a rash and more seizures. ER visit...Keppra. Lots of Keppra. He had a horrible reaction...hallucinations an some time in the ICU. We tried Topamax, Vimpat, Klonapin. Seizures continued to occur... between twice daily and every other day. He missed over a month of school. sadly, he wasn't the same boy I knew for a decade. He was scared, unfocused, unmotivated, and dull (brain altering meds). I suspected something more than the doctors offered as an explanation (heads of neurology at children's hospital - we saw several). A visit to a DO, left us encouraged for the first time in months! We went gluten free. We tested it by eliminating it for 2 weeks, and reintroducing it with one cookie. Within minutes he was crying. His face was red, palms sweaty, and getting electric shocks and zaps. The next day he was an emotional wreck and unable to concentrate at school. Since then, there have been a few accidental gluten ingestions...all end the same...with an over emotional boy, sweaty palms, electric zaps, stomache pain, and brain fog. Non-celiac gluten sensitivity or gluten intolerance causes neurological symptoms. Google it. My boy is back...bright again! He's happy and thriving. He has an episode about twice a month, but he is back to himself and off all drugs. Our neuro doesn't even care to see him anymore! So so grateful. Also started seeing a NUCCA chiropractor...great! |
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2steveb Posts: 5747
Group Leader
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hi farlybean, thats encouraging and great news for all of you ah, 'what you are is what you eat', im i firm believer in that old cleche. seretonin is a body chemical were low on and is found in certain foods and 5HTP herbal pill, ive been prone to mixing it all into a nice yaughart. (should be in articles or 'herbal' in forum. safe to say youve just had the best newyears present ah  if it isnt broken, dont fix it
steve |
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Cthebird Posts: 2609
Senior Member
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Hello Zadieblue. I don't know if you recognize my username from the bipolar forums, but I am diagnosed with having simple partial seizures. Mine are very much linked to my elevated moods, although I have had one while depressed. I am always conscious but am usually not concentrating on other people. An example of my big one was when I ran downstairs and wanted to run outside in my nightgown. During it I was screaming gibberish rapid fire. My husband tackled me and I fought him. Then I calmed down, breathing heavily but shaking strongly. Then I got up and went up to bed tired and rested for a while. Other times I tend to repeat words or phrases. I've done this in public. Once I said "this is pretty, this is pretty, this is pretty, this is pretty, this is pretty" or something like that very quickly. I've repeated other words and phrases in public as well. I know I am doing it but can't stop. I see people looking at me either quizzically or in mild horror. Once after doing this in the pharmacy I went to the pharm tech and asked her if I should go to the hair salon. She looked at me quizzically and told me it was up to me. I went home and cancelled the hair salon and repeated words to that clerk via phone. I've read that symptoms of SPS vary by person. I suppose mine could be much much worse. I take Tegretol XR to control mine and it helps, but not perfectly if I'm in an elevated mood. I have also had musical hallucinations, which I was told were seizure related. That started out to be interesting and turning more than disconcerting. I'm find at the moment. Bipolar 1, Simple Partial Seizures, and migraines
Psychiatric meds:
Lithium ER (900 mg)*Tegretol XR (1400 mg)*Lamictal (100 mg)*Geodon (160 mg)*Navane (5 mg)*Seroquel XR (100 mg)*Klonopin (.5 mg)
Ativan 1 mg "as needed" (I rarely take it.)*Seroquel regular 50 mg "as needed" (Only if I'm getting elevated.)
Other meds:
Propranolol (40 mg)*Levothyroxine (150 mcg)
My mix is side effect friendly for me. |
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