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06/10/2011 01:28 PM
KellieR
KellieRPosts: 1
New Member

Our brains are designed to protect us and keep us alive. Deep in our brain is a region that constantly samples our blood to be sure that we are breathi...ng well, and that we are breathing clean, "healthy" air. If it detects anything wrong with our breathing or the air around us, it can send out an alarm signal that something is wrong. This might feel like as sudden rush of anxiety, or even panic. This feeling is supposed to prod us to get up and get away from whatever dangerous situation has caused our breathing to set off our "suffocation alarm".

With COPD, you regularly have trouble breathing and your suffocation alarm can become "hyperactive". You might feel anxious and edgy. Even little changes, like strong odors or being hurried, can fire off a full suffocation alarm signal. This is the reason that patients with COPD frequently complain of increased episodes of panic and anxiety. This response is common and does not mean that there is something wrong with you mentally or emotionally.

With help from your doctor, there are a number of things you can do to "reset" your suffocation alarm. These may include:

* Breathing Training * Counseling * Medications Managing Worry Fears and worrying are common problems for people with COPD. These can be caused by your "suffocation alarm" or result from all the changes that have occurred because of your COPD. Below is a list of some of the ways that "too much worrying" can show up. Print this page and check off those items on the list that you feel apply to your experience:

* I have trouble getting to sleep because I’m worrying.

* I can be sitting quietly and suddenly become short of breath. * I almost always have a nagging worry about when I’m going to have an episode of difficult breathing. * I seem to be getting more and more frightened to leave the house. * I’d rather stay home so I can avoid being exposed to the "dangers" out there, e.g. people’s germs or excessive perfumes.

* I’m frightened of getting onto elevators, airplanes, or bridges and will go out of my way to avoid them.

* I walk around feeling as if something bad is going to happen. If you are experiencing any of these symptoms or the following feelings, talk to someone on your treatment team and you'll get help. It is also not uncommon for people with COPD who are depressed or feeling overwhelmed by the stress in their lives to want to "take a break" from being sick. At these times they may find themselves not paying enough attention to the illness, or on some level denying that they even have the health problem. They may notice some of the following (again, check off the ones that apply to you):

* I frequently overextend myself and pay for it with worse symptoms the next day or two.

* I try to use as little medication as possible, and as little oxygen as possible, even when my doctor wants me to use more.

* Sometimes I pretend I don’t have COPD, even in situations when I know it might be important to let others know. * When I’m feeling "hassled" by my COPD, I drink more alcohol than I should because it lets me forget about the COPD. What is "An Ideal Level of Worry"? The fact is that there is an "ideal level of worry." At this ideal state, you understand that you have a chronic and challenging illness. You know there are things you can do that will help and hurt your experience with the illness. Over the long course of COPD you will likely go through periods of time when you worry "too much" and other times when perhaps you should give your illness more consideration. These fluctuations are absolutely normal. It is important to find the "just right" amount of worry that can help you keep your life and your illness more in balance.

This information has been approved by Rachel Norwood, MD (September 2006). Note: This information is provided to you as an educational service of National Jewish Health. It is not meant to be a substitute for consulting with your own physician. © Copyright 2008 National Jewish Health

Kellie Rice
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06/12/2011 09:13 AM  Top
ThomasHope
ThomasHope
 
Posts: 1915
Senior Member

WOW, Kellie! I didn't know this part but having read it, it makes perfect sense! Thank You for sharing - I'm sure a lot of us have experienced the feeling but felt guilty for something that is simply part of our illness!!! I know I have! So glad to have you on board with us!
My advice is purely personal! I am not a medical professional and there is no substitute for getting Medical diagnosis and advice!

06/13/2011 06:55 AM  Top
auntdee
auntdee
 
Posts: 2525
Group Leader

Hi Kellie!!

...to our Group. It is good to meet you.

Thank you so much for what you posted, Kellie. That makes perfect sense. What i did is i decided that i cannot fix my emphysema, and my sats are not as low as some people, so i try to enjoy myself. And get as much work done as possible. Sometimes i overdo and go down right away and the whole next day or two.

Right now, i am worried about this downturn i am experiencing with my energy. Will it stay like this or go away? I don't know. I will talk to my Pulmo Dr. about it, though. It is hitting me pretty hard.

Kellie, post more, ok? That way we can get to know each other and where we are with this rotten illness.

Take really good care of you.

Gentle Hugs,

Doris

Post edited by: auntdee, at: 06/13/2011 06:57 AM

I am not a Doctor. My advice is a product of my own experience and knowledge of it.:)

06/16/2011 06:20 PM  Top
smokeyjo
smokeyjo
 
Posts: 2834
Senior Member

GUILT absolutly!! if i didnt smoke like i did or for as long as i did i wouldnt be where iam today.i think all of us feel like that. but we cant change that eaither, it is what it is, all we can do now is whatever makes us happy, iam all for live for today b/c u never know where u will be tomm. gota make life changes and hope for the best, i also dont sleep well have depression and anxity worry is my middle name latly,they put me on celexa and xanax to sleep, startin tonight im on 02 to sleep, that bothers me some.ur right too, ill have a reli good day then 2 bad days behind it. is that wat they mean by dont over do it Smile) i say just try ur best. i got my portable nebulizer, itll fit in my bag,itll go where i go.Smile) well, welcome to the life of copd huh!!! who woulda thought?????

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06/17/2011 06:40 AM  Top
auntdee
auntdee
 
Posts: 2525
Group Leader

Yes, Jojo, it is what it is. And we need to get our fun in when we can. I want to go down to the shore. First, i think my husband wants to get a car. A used one, of course. But a reliable one. Our Camry is 19 years old. Anyway, someday soon, i want to go to the beach. Maybe crabbing, too.Fun! We all worked all our lives and we can have fun now too. yay!!!

I try to remember 'don't overdo it' whether it's physical or emotional. i do forget that a lot, though. I just overdid it cleaning my carpets. I did other chores, and more emotional upset, in between so i would not get bored, too. lol Boy did i crash this time. I feel like an elephant is sitting on my shoulders. I have no idea when i will feel better, but i will let you know, ok? Even if i have to sit in the car while my husband runs in for the chores, i will get out for a while and take a ride!! yay!

Love you all,

Doris

I am not a Doctor. My advice is a product of my own experience and knowledge of it.:)

06/17/2011 06:59 AM  Top
smokeyjo
smokeyjo
 
Posts: 2834
Senior Member

good for u,getting out always makes me feel better,even if its alil bit ya no,Sick

i might go for a ride today also.W00t well where ever u go and whatever u do,enjoyCool


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06/18/2011 09:31 AM  Top
auntdee
auntdee
 
Posts: 2525
Group Leader

Thank you, Jojo. I did not get to go anywhere yesterday.Sad Maybe i can talk him into going somewhere today.:? I hope so. It gets my mind of it a little bit. It is sooo hot outside, i can't do anything out there. Styphling(sp) hot lol Hope you get out today, if you want to Jo. Did you go for a ride yesterday? In either case i hope you have a really good time, honey.

Love Ya Much,

Doris

I am not a Doctor. My advice is a product of my own experience and knowledge of it.:)
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