Hey, You might want to inquire about any specialist who can evaluate the status of your cranio-cervical junction. This area can be just as unstable and prone to chronic inflammation and stenosis, degenerative disease, herniated disks, constant subluxation, bone spurs or a Chiari Malformation....as any other of our EDS joints. I have several different types of headaches based upon the settling of my cranium, partially due to injury during surgery, partially due to ovER stretching to relieve pain, and just as a result of having EDS. Cranio-sacral therapy can be useful as well as neck braces and cervical traction of one kind or another and inversion therapy if this is the case for you. One should naturally be advised as to the possible risks with any of these treatments. Dr. Clair Francomano is a good geneticist to trust who can evaluate these additional conditions that often accompany EDS. It's complex and extremely difficult to find specialists who understand these rare conditions, but worth the effort. Common sense is always your best defense in the end however. The above conditions (and others) can also cause problems with your ears and eyes that contribute to head pain, along with the familiar TMJ, (common with EDS) I have found glasses with prisms in them and tinted help with the eye sensitivity some (photobia and dyplopia) double vision that sometimes accompanies cranial settling and instability. BEST! prism |
