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Why wear a ribbon?

 
 "My baby had trisomy 13." (sene)

MDJunction to me

Macv"For me, MDjunction has been a place where I can share my experiences
living with the very rare bone disease called Ollier's ( Enchondromatosis ) with the parents of children recently diagnosed. I can help them not to run
into the pitfalls my parents did when I was young, give them a bit of a view
from their child's perspective and simply be there to offer support and
hope to people who are scared and just had their lives upended. I also belong to a chronic pain group and it's been a Godsend to be able to actually
talk with others who understand what I'm dealing with. Besides them helping me through my tough times, I can be there to help them as well. Here too, I can use my years of experience to help others avoid pitfalls and it makes me feel good, gives my life more purpose. MDjunction brings people
together when their suffering, at their darkest and feeling alone in this world and allows some light to be brought back into their lives. HOPE, that's what
MDjunction means to me!
Linda aka Macv" (Macv)

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Ebstein's Anomaly Support Group

Ebstein's Anomaly Support Group

A community of patients, family members and friends dedicated to dealing with Ebstein's Anomaly, together.
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Ebstein's › Ebstein's Forums › Introductions & Personal Stories
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Introductions & Personal Stories  
Page: [1] 
    Topics Replies Views Author Last Post
 
  Just found out on EA0102miraclebaby
01/20/2013 05:14 AM
by miraclebaby		 Show most recent message 
  Hello8350jkdudley
10/17/2012 06:34 PM
by KwiteKontrarie		 Show most recent message 
  New Here4285lizusmc
09/09/2011 05:53 AM
by KwiteKontrarie		 Show most recent message 
  Hello1209phnxnxil3
06/16/2010 08:49 PM
by KwiteKontrarie		 Show most recent message 
  Hello1234MiyasMom
08/25/2009 07:28 PM
by KwiteKontrarie		 Show most recent message 
  Hi There1344Chant3l
08/25/2009 07:26 PM
by MiyasMom		 Show most recent message 
  Unborn baby diagnosed with ebstein's anomaly
[Page: 1,2]		123648Helen32
04/03/2009 08:17 AM
by Maria09		 Show most recent message 
  Technical stuff related to the Ebstein's support group0224Alon
11/21/2007 03:14 AM
by Alon		 Show most recent message 
  Hello Ebstein's Anomaly Support Group, I’m roy0285roy
11/21/2007 03:14 AM
by roy		 Show most recent message 
Page: [1] 
 
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