MDJunction - People Helping People

Why wear a ribbon?

  "I wear this ribbon because my mother has osteoporosis, I know she is in pain and..." (TheGiftedOne)

MDJunction to me

Macv"For me, MDjunction has been a place where I can share my experiences
living with the very rare bone disease called Ollier's ( Enchondromatosis ) with the parents of children recently diagnosed. I can help them not to run
into the pitfalls my parents did when I was young, give them a bit of a view
from their child's perspective and simply be there to offer support and
hope to people who are scared and just had their lives upended. I also belong to a chronic pain group and it's been a Godsend to be able to actually
talk with others who understand what I'm dealing with. Besides them helping me through my tough times, I can be there to help them as well. Here too, I can use my years of experience to help others avoid pitfalls and it makes me feel good, gives my life more purpose. MDjunction brings people
together when their suffering, at their darkest and feeling alone in this world and allows some light to be brought back into their lives. HOPE, that's what
MDjunction means to me!
Linda aka Macv
" (Macv)

MDJunction testimonials
A community of patients, family members and friends dedicated to dealing with Ebstein's Anomaly, together.
Join This Group
Group Home   Forums   Members (39)   Diaries   Videos   Leaders   Guidelines
Ebstein'sEbstein's Forums Introductions & Personal Stories
Ebstein's Forums
Introductions & Personal Stories  
Page: [1] 
    Topics Replies Views Author Last Post
    Just found out on EA 0151miraclebaby
01/20/2013 05:14 AM
by miraclebaby
    Hello 8417jkdudley
10/17/2012 06:34 PM
by KwiteKontrarie
    New Here 4318lizusmc
09/09/2011 05:53 AM
by KwiteKontrarie
    Hello 1230phnxnxil3
06/16/2010 08:49 PM
by KwiteKontrarie
    Hello 1245MiyasMom
08/25/2009 07:28 PM
by KwiteKontrarie
    Hi There 1370Chant3l
08/25/2009 07:26 PM
by MiyasMom
    Unborn baby diagnosed with ebstein's anomaly 123933Helen32
04/03/2009 08:17 AM
by Maria09
    Technical stuff related to the Ebstein's support group 0247Alon
11/21/2007 03:14 AM
by Alon
    Hello Ebstein's Anomaly Support Group, I'm roy 0309roy
11/21/2007 03:14 AM
by roy
Page: [1] 
Start a New Discussion

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.
Contact Us | About Us
Copyright (c) 2006-2014 All Rights Reserved