Hello all. I am looking forward to meeting you all. I have generalized dystonia in which it seems to be in remission if that is possible.??? I started on Cogenten a week ago, and my symptoms went from so many storms to none. I have been battling this for 5 years. At first I thought I was an epileptic, having so many seizures ( gran mals )but now I know that they were dystonic storms. I have a rare form of muscular dystrophy called mcardle's disease which consists of muscle cramping and fatigue, winch makes my dystonia worse. The strangest thing that happens to me is at times I feel totally drunk. And it doesn't have anything to do with medication, but at the same time after I take my meds, the drunkin feeling goes away. I don't drink at all. When the doctors here at the nursing home thought I was having seizures, they treated me with ativan, now that they know it is dystonia they basically refused to treat me. I am way too sedated and they won't do anything about it. I could sleed 24/7. My MD specialist an hour and a half away put me on cogentin which has worked wonderfully. My family support is non icsistant. I am on 40 mg's of baclofen, 20 mg's of cogenton and 3 mg's of ativan. Bless you all Norm |
"MDJunction has been just an amazing support for me. The people who are on mdj are so nice! Unlike the many other support sites that I have been on. I have made several friends on mdj who are so supportive and so educated about mental illness. Of course non of us are doctors, but we certainly offer each other hugs, opinions, and advice. I have learned a great deal from my friends on mdjunction. I am also encouraging other people who suffer from mental illness to come on to MDJ. It can be a life line." (jenniferdiva)
