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lisaraman Posts: 795
Member
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Dear Emma- I would love to offer support and wise words, but my daughter who has cervical dystonia, hasn't started her botox yet. We go in a few weeks. I did hear from somebody on this site though, that the first 2 weeks after the injection, can sometimes be worse than before receiving it. she also said that she believes over time, it has kind of a cumulative effect. Maybe your mom needs to give it a little time. Or, alternatively, maybe the doctor who is injecting it, is not hitting the right muscles. If it is guided by EMG, (also learned on this site), then there is more accuracy. I hope some of this is helpful; but as I said, we haven't officially started Botox yet. Well, for dystonia anyway. About2 years ago, her pain management doc gave Botox for pain control, in her left trapezius muscle, but like your mom, she was worse than before the injection. The pain for me was awful too, because our health insurance company refused to pay-so I had to pay $1,000 for the injection. Be thankful for your NHS system. We actually moved to the UK in 2004, specifically for the public transport and the NHS. My daughter missed her life in MIchigan though, so we came back after 4 years. Now her health care costs are significant. I do wish your mum the best, and am happy to tell you how we make out when we go for the Botox. Lisa |
"What MD Junction means to me is a place where i can feel like im not alone. As someone with something as rare as hydrocephalus, it feels like im the only one in the world with it. When i came to MD, its like everyone has it. It doesnt feel like im alone. And that people need to hold up a sign to say what i have, because people know. And they understand. I can get questions answered from people who have been through it rather than from doctors or people who only can tell you from a physical standpoint. THat is what MD junction means to me." (tomboykimi)
